After a very long road we just found out yesterday my dad has PSP. We haven't even had the meeting with the consultant yet so all I know about it is what I've read online.
I have been caring for my dad for 2 years, but he's only really needed me 2-3 times a week to help with shopping/housework etc. Then the last 6-8 weeks things have got much worse where he is falling 3-4 times a day, every day.
We took him to a&e last Thursday and as I am 8.5 months pregnant they realised I cannot currently look after him and so have kept him in.
I have a 3 year old and will be having a caesarean with my second baby on Wednesday. We are due a meeting with social services about his ongoing care at some point in the next few weeks. It seems likely that for now he will be in respite care until we can make some longer term decisions.
I just feel clueless. They want him to go into residential care, I don't feel like he's at that stage yet. Currently he's in his own 3 bed semi, but 10 miles away from me. Right now my feeling is he would be ok in sheltered accommodation in my area so I can help him out every day. Yes he falls a lot and speech is slurred but right now he's not too bad with other things. Am I naive to think that for now sheltered would be ok if he has all the right aides in place? Or would I be putting him in a dangerous situation?
I don't want to be the person who puts her dad in care, but I'm about to have 2 small children, I need to go back to work after maternity as we just can't afford to live on my partners wage. Me and my dad both agreed that when it gets 'too much' we could look again at residential care. But how long is it likely to be that I can manage to look after him with my other responsibilities, if at all?
Does anyone know any other care options? Such as can I do some and then have carers come in too? Such a fine line between getting enough care and getting too much care as I feel whipping his independence away too soon would kill him off.
My head is all over the place, as is my dads. We are both just at the heartbroken and overwhelmed phase, any advice would be hugely appreciated xx