Well I don't know quite what to say, I was busy getting everything ready for Keith coming home on Monday evening when the phone rang, it was the nursing home, they were concerned about him, he wasn't responding to them, they couldn't get him into bed as he was rigid so they used a hoist, he had a temperature and was having spasms! Had I ever seen this before! No, I replied I'm coming straight over! I had such a shock when I saw him, he didn't know me and was making weird grunting noises, it was frightening, he looked so vulnerable 😔
The ambulance arrived and did all the usual checks and cut his clothes off him as his temperature was so high! They decided to take him to hospital and I followed in the car.
By the time we got there he was looking a little better. They did lots of scans, X-Ray's, blood tests and urine test, they couldn't find any infection or anything that may have caused this strange reaction, it was a mystery!
They decided he needed to stay in overnight and put a catheter on him, after several hours of trying to explain his condition, which surprise, surprise they had never heard of, I returned home in the early hours, shattered and worried to death!
I've been to see him today and apparently he had pulled the catheter out (ouch!) during the night, pulled at his wrist band till it snapped and pulled out the drip feeders! He can't seem to stand anything unusual on his body and won't give in till he's got rid of them!
Because he hasn't had a wee all day they decided he would have to have another catheter in as his bladder was full and stay in another night. So I still haven't got him home, am worried to death and don't feel as though I've had a break! This bloody awful PSP is the absolute pits, I hate it so much for destroying him bit by bit, he looked so I'll when I first got to the nursing home and all I can do is cry, sorry for going on, I'm just so upset 😢 xx