Hi everyone I thought I would share my fight to try and get Chc for mum
Last October we had a dst done by Chc the outcome was mum would get 40 percent of her care fees paid they said the other 60 percent were social needs which my parents have to pay due to their savings.
It was from this amazing site and in particular Kevin's posts that I realised mum was not getting what she is entitled to, plus since the last assessment in oct 2015 her condition has deteriorated considerably.
I automatically thought because the NHS was funding mums nursing needs that she was eligible for Chc. Apparently not the dst determines if your eligible for Chc or nursing funding or nothing. Mum was not eligible for Chc but for nursing funding which then became I joint package of care with local authority.
I have started the appeal process because as we all know people suffering with psp definetly have a primary health care need which should entitle them to full Chc funding.
I have a meeting with social services on Wednesday to start the appeal process. The social worker telephoned me yesterday to get more information about mum. Her initial comment was this has just landed on my desk and I don't know anything about your mum or the situation. As you can imagine I was not happy, I went on to tell her about mum. She told me that from what I had said mum was not for local authority but for NHS and she would do everything in her power to push for this. I requested this in writing. I was feeling very positive after this phone call but as we all know it's difficult to trust the system.
I then telephoned mums NEuro enablement team, mums case manager was not happy that we were having to fight like this and said the problem is the lack of knowledge about psp. She is going to gather all mums information from everybody involved in mums care and is attending the meeting on Wednesday to support us.
I'm sorry for the long post but I just wanted to share this, there has been times where I just haven't had to strength to see this through, but I definitely have the bit between my teeth now and will do this for mum because she can't do it for herself. So for all you lovely people going through the same there are people out there that do understand and are willing to help.