AARP Swallowing Webcast

[Christine47]

Attached is a link to some information on swallowing. Although it is directed to PD patients, you may find some tips you can use. I hope the link works. If not, I can attach it to an email. PS. I found the most valuable information for me about 30 minutes into it. There was a lot of physiology in the begining.

This webcast is now on-demand, should you like to view it again.

Use the link below to enter the webcast at any time.

WEBCAST LINK: event.on24.com/wcc/r/122237...

EMAIL: [e-mail]

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[easterncedar]

Dear Christine, thanks for keeping us all abreast of current information. You are an amazing resource in yourself! I don't know if you have seen it; I often have suggested new folks to search for your posts when they are looking for information on a given topic. Again, Thanks! ec

[abirke]

I just listened to this webcast. It's very good. interesting to compare my husbands symptoms with PSP to those with just Parkinsons; for instance this doctor doesn't recommend thickened liquid for his Patients whereas those with PSP , thickened liquids is highly recommended.....I thank you for the link. Thisw should be very helpful for those who are just starting out in the world of swallowing issues.

AVB

[am2015]

Thank you so much for sharing the link. My mum has recently started on thickened liquids, so any information is valuable.

[Bianca]

Thank you, Christine. I've found the webinar very useful on the issue of swallowing difficulties and the options available.

[JMDean]

Hi, thank you for posting this. I'm the presenter on this webinar and your feedback is very helpful. It seems like you might want more practical information and I could drop a lot of the science, does that sound correct?

Have any of you looked at the webinars available via CurePsp.org ? I did one for them several years ago on the same topic (but the information is similar). I might recommend ones done by my colleague Laurie Purcell Verdun - psp.org/events/webinars.html

She's done a couple of them on different topics including a basic overview of swallowing issues associated with atypical Parkinson's diagnoses like PSP, CBD and MSA as well as one specifically on the use of feeding tube. You just need to search on that page of it to find hers

If you do end up watching my webinar (and again, a lot of the information is presented in the AARP webinar), please note that I don't have advocate use of neuromuscular electrical stimulation for swallowing anymore. I don't think the research supports its use in many neurodegenerative diseases. It's one of those the areas my opinion has evolved since I presented that webinar for that organization about four years ago

Thanks for posting this Christine. I really value the input from people who are dealing with this problem on a day-to-day basis. I'll definitely use it to inform the next time I do this presentation.

I'll keep my eyes open on this thread if anyone has any specific questions I can answer. Be well, John