Well for the time being! I have lasted all afternoon and evening. S is in bed, I hope safely and will sleep all night.
We have just got back from a very successful week away. S went into respite in Paignton and I stayed with my daughter. We were able to take him out lots, so he feels as if he has had a break. I feel a new woman. I treated myself to a Spa break in the middle, two days and nights in a lovely Spa hotel, lots of relaxing massages and treatments, plus the added bonus of a pool to lay beside, in the hot afternoon sun. (Well a couple of hours!!!) All that time, when people were running around, doing things for ME!!! I do exist!
We also went to the theatre to see Cats. For those few precious hours, we were just a husband and wife, holding hands, enjoying! For some reason, the stage was very blurry and I developed this condition, where water was pouring from my eyes. Didn't help with "Memories" being sung. Hopefully nobody noticed, except my daughter and partner. As it was my Christmas present, she was really pleased we were able to enjoy it.
Now back to reality. To-date, he slept all afternoon, was extremely co-operative all evening. I have been at my most patience best. I know it won't last, but oh I am savouring every minute. Before we left, I was at rock bottom, could only see one way out, but now, I feel I can carry on, for that little bit longer. They are going to book my respite breaks a bit closer now. If I can get to at least half way through, until then, that will be brilliant. Yeah, I saw that little piggy fly as well, OK, until tomorrow morning, that will do!!!
Nothing can take away the feeling of having S's arm around me. Really thought I would never experience that again!
Oh, in this home, they had a lady with PSP, so knew all its little tricks and were able to keep him safe. Although going in with a very painful rib cage, did help keep him still.
Again, the lesson of making sure I get enough help, has been drummed into me. How many times do we have to fall flat on our faces, before we take notice???????
Big hugs to everyone.
Lots of love