Posts - PSP Association | HealthUnlocked

PSP Association

9,266 members • 11,356 posts

All posts for February 2015

i would like to share a picture that show a hummer at my windowt

I HAVE HAD PSP FOR4 YEARS BUT WAS DIAGNOSED CORRECTLY ABOUT 4 MONTHS AGO IT IS ADVANCING FAST. I WILL TRY TO SEND THE PICTURE IF I CAN. IENJOY...

I HAVE HAD PSP FOR4 YEARS BUT WAS DIAGNOSED CORRECTLY ABOUT 4 MONTHS AGO IT...

•9 years ago

Help please! My poor Dad can't stop coughing.

Hi, My Dad was only diagnosed with PSP about 3 weeks ago but it is terribly aggressive and already he cannot weight bare, he can barely speak, is more or less...

Hi, My Dad was only diagnosed with PSP about 3 weeks ago but it is terribly aggr...

•9 years ago

Sunday

This morning was one of those mornings which is full of promise - an azure sky , the sound of the church bells and a boiled egg for breakfast - oh and toast...

This morning was one of those mornings which is full of promise - an azure sky ...

•9 years ago

Want to take advantage of all our features? Just log in!

or

Trance like stare

Does anyone have experience of trance like state? My sister yesterday just kept going into a sort of trance. She does not communicate now but this is anew...

Does anyone have experience of trance like state? My sister yesterday just kept ...

•9 years ago

What sort of pads do I use????

Hi folks, I need help. What sort of pads do I use, to try and stop the constant wet bed? S is now using Night pull up pants! Gets up every hour to use his...

Hi folks, I need help. What sort of pads do I use, to try and stop the constant...

•9 years ago

NHS Continued Care

Really pleased to share our news. Found out yesterday that mum has qualified for NHS continued care funding and they are hoping to discharge her next week....

Really pleased to share our news. Found out yesterday that mum has qualified fo...

•9 years ago

Thank you to all who replied

previous post entitled NONE I am feeling more positive tonight , I feel I am in the system and on the radar. Today we went to our new surgery . Dr had never...

previous post entitled NONE I am feeling more positive tonight , I feel I am in...

•9 years ago

PSP POEM

Thought I'd share this PSP poem. Enjoy! Jimbo A Poem I found about Progressive Supranuclear Palsy, the disease my dear Sharyn had. HOW DID IT HAPPEN ? FROM...

Thought I'd share this PSP poem. Enjoy! Jimbo A Poem I found about Progressiv...

•9 years ago

Responses to Dilemma post

Thank you every one for the very helpful responses to my dilemma (spelt correctly this time! ) They are interesting and varied and come from experience...

Thank you every one for the very helpful responses to my dilemma (spelt corre...

•9 years ago

Not opening mouth for food.

When I visited my sister today there was a young student feeding her a baked potato mashed up with butter and cheese, she was using a fork!!! I took over and...

When I visited my sister today there was a young student feeding her a baked pot...

•9 years ago

Strong to the end

My father passed away on Monday after a rapid onset of PSP. His diagnosis was never certain, but his decline since May 2014 has been as cruel as it was rapid....

My father passed away on Monday after a rapid onset of PSP. His diagnosis was ne...

•9 years ago

Dilema

I am becoming increasingly aware that our house where we have lived for the past 20 years is becoming increasingly difficult to live in with PSP . Veronica...

I am becoming increasingly aware that our house where we have lived for the pas...

•9 years ago

None

My husband was diagnosed with "probable" PSP by neurologist and a second opinion gave the same verdict. Diagnosis was 2 years ago. My GP has had no contact at...

My husband was diagnosed with "probable" PSP by neurologist and a second opinion...

•9 years ago

Does foot and toes flop up and down in bed?

My husb left foot swings up and down every night as he tries to get to sleep. Some times it is the whole foot ankle that rocks up and down or side to side and...

My husb left foot swings up and down every night as he tries to get to sleep. S...

•9 years ago

Muzzie head

George has gone to bed complaining of a muzzie head and sweating is this to do with PSP he does not look very well he has been very quiet today just sits in...

George has gone to bed complaining of a muzzie head and sweating is this to do w...

Yvonneandgeorge

•9 years ago

Chris off to work !

He has been a bit wobbly last week after a couple of heavy falls. Spent all yesterday in bed. I persuaded him to come down for evening and then back to bed and...

He has been a bit wobbly last week after a couple of heavy falls. Spent all yest...

•9 years ago

Zolpidem works!! For PSP

I have been giving my mom zolpidem for about 3 months. I kid you not, she was not able to even feed herself but after about 30 mins she becomes so active and...

I have been giving my mom zolpidem for about 3 months. I kid you not, she was n...

•9 years ago

Mitts to stop scratching

Can anyone tell me where I can buy mitts for my Sister who is causing friction marks with constantly rubbing her face when in bed at night. Live in Lanarkshire...

Can anyone tell me where I can buy mitts for my Sister who is causing friction m...

•9 years ago

Head Drooping - Neck Brace??

My wife who was diagnosed with PSP in 2011 is having difficulty keeping her head up. This makes it difficult for her to eat and drink without choking. She...

My wife who was diagnosed with PSP in 2011 is having difficulty keeping her head...

•9 years ago

Respiratory Distress - PSP

Hello All! Just looking for some input as we have experienced something new this wee with my Dad - 70yr old, diagnosed with PSP a few years ago. For the second...

Hello All! Just looking for some input as we have experienced something new this...

•9 years ago

Help

Looking for ideas? Mum is really struggling with her speech and although I see her every day , I'm finding it really hard to understand what she is trying to...

Looking for ideas? Mum is really struggling with her speech and although I see h...

•9 years ago

Rubbing face causing friction.

My sister keeps picking and rubbing her face when she is asleep at night.Night staff are doing hourly checks but she still manages to get these marks on her...

My sister keeps picking and rubbing her face when she is asleep at night.Night s...

•9 years ago

Sloth day

Did anyone say when we was having our day of sloth. Sorry to say I'm haveing mine today. Brian has been washed dressed and breakfasted. I've had a bath while...

Did anyone say when we was having our day of sloth. Sorry to say I'm haveing min...

•9 years ago

Any advice on communication?

It is now becoming increasingly difficult to work out what my husband is trying to say. Sometimes he is very lucid, other times I'm clueless and I hate having...

It is now becoming increasingly difficult to work out what my husband is trying ...

•9 years ago

1
2
3

Search posts

Latest poll

What are your main concerns as a carer?

Topics

All things PSP Association(134)

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.

Archive

2024

Jan Feb Mar Apr May

Jun

Jul

Aug

Sep

Oct

Nov

Dec

2023

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec

2022

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec

2021

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec

2020

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec

2019

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec

2018

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec

2017

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec

2016

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec

2015

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec

2014

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec

2013

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec

2012

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec

2011

Jan

Feb

Apr

May

Jun Jul Aug Sep Oct Nov Dec