PSP POEM

[jimandsharynp]

Thought I'd share this PSP poem. Enjoy! Jimbo

A Poem I found about Progressive Supranuclear Palsy, the disease my dear Sharyn had.

HOW DID IT HAPPEN ? FROM WHERE DID IT COME ?

How did it happen? From where did it come?

This monstrous illness known only by some.

No treatment to help, no cure is in sight,

It strikes with a vengeance, like a thief in the night.

It's symptoms are many though diagnosis not clear,

Victim's held in suspense with unending fear.

As each stage develops a part of self goes,

As it renders them helpless to life that each knows.

Confined to a wheelchair and later to bed,

Unable to eat by self, now must be fed.

Sometimes a feeding tube it must be.

As they think of life past, now prisoners, not free.

Deprived now of speech, eyes fixed in a stare,

Others could think, "that person's not there"

Don't fool yourself people, the brain is intact

Each word that you utter - she knows exact.

Sometimes she may signal with a finger or two,

Until she's unable to show them to you.

Is this not torture - this sentence to death?

They struggle to live until the last breath.

What will it take for a cure to be found,

To give hope of life before they're in the ground.

This evil invader is called PSP,

With research and knowledge someday it’ll cease to be

[NannaB]

Thanks for that Jimbo. A perfect description of this horrible disease.

How rare you doing? Still painting?

Take care

God bless you

X

[jimandsharynp in reply to NannaB]

Yes still painting. You can see my updated art site at jimandsharynp.tripod.com/ji...

[Fadwa]

Thank you good poem I go with my father all the stage till the ground so it make my cry , god bless you

[Georgepa]

Very poignant Jimbo - thanks Georgepa .

[peterjones]

hi jimbo thanks for poem im still above the ground mate so far just keep on keeping on peter jones queensland Australia psp sufferer I hoper this em finds you bright and bushy tailed matey

[Hidden]

An amazing poem which will help me explain to those I meet what this horrible condition is like.

My Mum lost her battle to PSP nearly 8 years ago and I had a poem then that I gave to her carers, it helped them understand and touched them in a way I couldn't.

Thanks for finding it for us all.

[Yvonneandgeorge in reply to Hidden]

What a lovely poem made me cry ! Yvonne x

[GillJan]

Thanks for the poem - it sums PSP up well and it is also helpful for showing to those who just dont or wont understand.

[Yvonneandgeorge]

Jim just been on your web site toy paintings are just absolutely fabulous well done wish I could draw and paint like you unbelievable Yvonne x

[jimandsharynp in reply to Yvonneandgeorge]

Thanks Yvonne. I love painting and it helped when my wife had PSP to keep me busy.

[Yvonneandgeorge]

Jim I really thought your paintings were unbelievable well done keep painting maybe you should get an exception somewhere Yvonne x

[zjillian]

Thank you for this poem,

Jill