Thought I'd share this PSP poem. Enjoy! Jimbo
A Poem I found about Progressive Supranuclear Palsy, the disease my dear Sharyn had.
HOW DID IT HAPPEN ? FROM WHERE DID IT COME ?
How did it happen? From where did it come?
This monstrous illness known only by some.
No treatment to help, no cure is in sight,
It strikes with a vengeance, like a thief in the night.
It's symptoms are many though diagnosis not clear,
Victim's held in suspense with unending fear.
As each stage develops a part of self goes,
As it renders them helpless to life that each knows.
Confined to a wheelchair and later to bed,
Unable to eat by self, now must be fed.
Sometimes a feeding tube it must be.
As they think of life past, now prisoners, not free.
Deprived now of speech, eyes fixed in a stare,
Others could think, "that person's not there"
Don't fool yourself people, the brain is intact
Each word that you utter - she knows exact.
Sometimes she may signal with a finger or two,
Until she's unable to show them to you.
Is this not torture - this sentence to death?
They struggle to live until the last breath.
What will it take for a cure to be found,
To give hope of life before they're in the ground.
This evil invader is called PSP,
With research and knowledge someday it’ll cease to be