I am becoming increasingly aware that our house where we have lived for the past 20 years is becoming increasingly difficult to live in with PSP . Veronica now has our living room as her bedroom whilst it still doubles up as our living room . Getting between things and getting to her wardrobe often produces falls .Our hallway is quite small and the downstairs wc we are intending to convert into a small wet room - but the space will be tight .Our other downstairs room is our large family kitchen where in the past we have spent most of our time . Unfortunately you have to go down 3 steps to get into it and although I have had them altered to make them wider and less steep I have to supervise Veronica going up and down them as she can't do them by herself and if she trys it could be dangerous . At the moment she can just about manage them but I keep thinking of the future when she can't and then that will mean her total living area will be the bed/sitting room which presumably will get more cluttered with equipment as time goes on . It will also mean me having to take trays of food three times a day backwards and forwards from kitchen to bed/sit . There is no way we can gain access to the kitchen other than by the stairs . A chalet bungalow which we looked at a year or so ago has come back on the market .It is in the same village so all our local facilities stay the same but it is not such a nice position and not as individual or quirky as our house - however the space inside is easy to manage with two ground floor bedrooms a good sized bathroom sitting room and big kitchen .Doorways are all wide for wheelchair access so going from one room to another is easy . It is also financially viable .
The problem is Veronica's cognitive state- she gets easily confused likes things to stay the same -depends on her routine .Obviously she would not be able to help with the move in any way nor would she be able to put her stamp on the new place- the whole thought of moving throws her into disarray .I don't want to move - not sure I have the energy to do it even with my daughter's help who has moved so many times I have lost count .One thing that really gets to me is that every where I look in our house 'especially my wife's studio although she never goes in it now as it is upstairs - I see her mark - a piece of drift wood here a child's drawing there - so much of the house is an extension of her and as I am now losing her bit by agonising bit I want to hang on to her for as long as I can. If I go to a new place she won't be there around me not as the person I know anyway .People say if their house was burning down they would try to save their photographs - well it feels a bit like that if we go and try to start a fresh - it will be without substance . Sorry -I don't know if this makes any sense - I suppose at the end of the day its a question of heart over head . I don't expect people to come up with a solution - I know I have to make the decision myself but if any one has gone through a similar process please tell me how you dealt with it . Very perplexed and not sleeping very well Georgepa