in your dreams

[shasha]

does anyome have PD or PSP in their dreams - or are you normal again ?

[jillannf6]

hi sha

I do not dream any more but if I did I would be ok!

lol jill

[Hidden]

Hi shasha

What a fascinating question! I'm out of my depth with this one, especially since it's my wife who has PSP. She says she never dreams (although it's more likely she forgets them instantly on waking).....neither now nor before PSP diagnosis!

Just for interest's sake - When I dream , I'm always young, and my wife is young too. I have recently dreamt about her with PSP symptoms, but again she is young and not old.

Dreams are fascinating things, and mainly to do with the thousands of bits of data we receive each day being compiled and stored, and in this complex process, old bits of data are released and mixed with the new data (often reflecting our fears and insecurities, and other emotions both good and bad). Hence, the weird, wonderful and sometimes frightening world of dreams. Well, that's my theory anyway. Probably a load of rubbish really!

All the best and pleasant dreams!

[shasha in reply to Hidden]

not rubbish at all strelly - you only ever talk good sense !

[JudyJ]

OH - ONLY EVERY NIGHT.

I've not brought it up 'cause I felt a little weird about it, but I have told my Doc. I feel the some of the SAME symptoms in my dreams; very unpleasant; very uncomfortable; very disturbing. Can't get away from it.

It ties in further to my severe sleep apnea. I'm leaving soon to go see those people to get fitted for a different mask. It's been kind of an epic failure the past month.

I'd like to get back to this subject later today to share info.

I actually started having a reocurring dream back in 2008 in which I had an undiagnosed neurological disorder. In these dreams, I'd fall down a lot, or move so slowly and painfully I couldn't keep up with anyone etc. Those dreams literally stopped when I was diagnosed during 8-12. Told my Doc about that too. Didn't poo-poo me. More like amazed.

Now the dreams about PSP have switched up a bit.

THANK YOU so much for bringing this topic up. I feel a lot less lonely

Judy

[shasha]

well i am copletely normal in my dreams which is nice but it is a bit of a shock when i wake up !!

[peterjones]

no shasha i do not dream about it having it in reality is quite enough for me so i just try and have a peaceful sleep if i can how are you getting on ok i hope and no hassles and busy i expect take care mate look after yourself peter jones queensland australia psp sufferer

[shasha in reply to peterjones]

i am lucky peter - i sleep really well despite getting fred up for the loo 5/6 times

[shasha in reply to peterjones]

i have just noticed this email was sent to me 16 days ago and yet i have only just received it

[stalbans]

At the onset I used to dream now I don't sleep so well to have a drem , I also once was very fit and srong a marine engineer all my life a cheef for ten years but now I am weak with little mussle left that is not the worse it"s my poor wife copeing with it all

psp in frane

[shasha in reply to stalbans]

psp in frane - is that france ? i am in france near limoges

[shasha in reply to stalbans]

like i said to peter i only just received your email even though you posted 3 days ago

[stalbans in reply to shasha]

yes sorry it' Bretagne France

[shasha in reply to stalbans]

I FEEL THE SAME WAY ABOUT MY HUSBAND WHO IS JUST SO WONDERFUL AND CARING

[peterjones in reply to shasha]

hi shahsa thanks for getting in touch with jill for me i really appreciate that mate i hope that you get this em ok and not 16 days wait\\\\\\ i received one em from you that says shasha replies to shasha not sure what that is i thought i had better look at one first so i could answer just in case anything else went wrong\\ and i could not let you know what was going on \\\\anyway mate i expect jill would be dissapointed if it never happened because last time i got up in the middle of the night in my PJs and sat there waiting for the em to flood in \\ it turned out there was only jill and i on line that night or early morning and i think she was dissapointed then\\\ ah well not to worry her intentions were good\\ if you can read this em jill your still a champion mate so dont worry about a little thing like this well matey i will say goodnight to you take care thanks again for getting in touch with jill for me i will try again maybe tomorrow just to say hi or maybe she will reply to my em mi might be getting it late \\\ see you mate

peter jones queensland australia psp sufferer

[shasha in reply to peterjones]

HELLO PETER . I HAVE RECEIVED THIS EMAIL OK - I GUESS THE SYSTEM IS CATCHING UO WITH ITSELF

[peterjones in reply to shasha]

thats good shasha we will not need the horse and buggy then mind you i would not like to get a system up and running with all of us whinging about it \\ look after yourself take care peter jones queensland australia psp sufferer

[mackie in reply to shasha]

CAN THEY DO MORE FOR PSP IN FRANCE? MACKIE

[shasha in reply to mackie]

I AM SURE THEY COULD DO MORE FOR PSP EVERY WHERE

[mackie in reply to shasha]

seems like it, they say nothing can be done here in Indiana and michigan

[mackie]

peter jones - have been looking for you - are you okay? mackie

[stalbans]

I do not believe we get that much help in France , My Nerologist secutary slows things down, seems she is finding life harder than us

[shasha in reply to stalbans]

my neuro is very good and accomodating so i cannot complain