Posts - PSP Association | HealthUnlocked

PSP Association

9,345 members • 11,394 posts

All posts for May 2013

Restlessness, bursts of energy and then bouts of tiredness-how common is this in PSP?...

My dad is approximately in the sixth year of PSP since onset, and has recently been increasingly restless and seems to have real bursts of energy and then...

My dad is approximately in the sixth year of PSP since onset, and has recently b...

•11 years ago

throwing things

i tend to throw htings down rather than putting them down anyone else have the same problem ?? it drives my partner MAD LOL JILL :-)

i tend to throw htings down rather than putting them down anyone else have the ...

•11 years ago

Did anyone else notice the article posted on the Fox news site about potential treatment for Parkinson's & other neurodegenerative diseases?

It was posted yesterday. I tried to copy & paste the link but it didn't work. Try going to www.foxnews.com & click on their Health section. It doesn't refer...

It was posted yesterday. I tried to copy & paste the link but it didn't work. Tr...

•11 years ago

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I Sprained My Eyes.

Oh yes I did. I didn't know it was even possible. (I do have moderate eye-tracking problems which was discovered during my extensive testing last summer to...

Oh yes I did. I didn't know it was even possible. (I do have moderate eye-tracki...

•11 years ago

"But Dear, you're 21!"

I've waited since Monday to calm down enough to write this post in an eloquent and supportive way versus the rapid-to-slow-to-no boil I've been feeling this...

I've waited since Monday to calm down enough to write this post in an eloquent a...

•11 years ago

One memory that still makes me laugh .....

Just reading a post which has made everyone laugh made me think of an incident years ago with my Mom, Irene. She was in a wheelchair but could walk slowly...

Just reading a post which has made everyone laugh made me think of an incident y...

•11 years ago

GAPS diet - has anyone tried it.

My Mom Irene, who had PSP, used to say that the problems with her fuzzy head were linked to her stomach ! My husband thought that was a mad thing to say. Mom...

My Mom Irene, who had PSP, used to say that the problems with her fuzzy head wer...

•11 years ago

Sharyn Update - PSP

Hi, just an update on my wife Sharyn who as PSP. When we saw the Neurologist last he and Sharyn and I didn't think the Carbadopa/Levadopa she was taking was...

Hi, just an update on my wife Sharyn who as PSP. When we saw the Neurologist la...

•11 years ago

I Think I'm Going To Buy Me A Helmet.

Seriously. I'm not doing this for any reason but to liberate myself a little more from the grasp of PSP. Over the winter (it was a bad one here in MN),...

Seriously. I'm not doing this for any reason but to liberate myself a little mor...

•11 years ago

My husband suffers excruciating pain

Is it just a typical symptom of PSP or are the doctors just missing something. My husband is suffering so much and no one seems to think it's all that...

Is it just a typical symptom of PSP or are the doctors just missing something. M...

•11 years ago

MRI, Hate it!!!!

Just came back from going in the dreaded machine!! 3rd one in a year, never again, i must have put on weight since last one, had to fold my arms in to fit in,...

Just came back from going in the dreaded machine!! 3rd one in a year, never aga...

•11 years ago

Having a PEG fitted

My Father in Law has PSP but because he had Neuropathic problems previously we do not know how long he had it before he was told he also has PSP. Is there a...

My Father in Law has PSP but because he had Neuropathic problems previously we ...

•11 years ago

Any Ideas for tasty soft food diet

My Father in law has PSP and is now on a soft diet but he finds his meals very boring. I wondered if anyone has some nice tasty meals that they could suggest...

My Father in law has PSP and is now on a soft diet but he finds his meals very b...

•11 years ago

Wheelchairs can be good things!

Hi everyone, I don't post very often, but read this website almost every day. It's such a comfort to be able to feel less isolated. I convinced hubby today...

Hi everyone, I don't post very often, but read this website almost every day. It...

•11 years ago

"Why am I so tired all the time?"

Hi any one out there please help me give a more positive and true answer to my Mum? My Mum constantly asks me the same question every day "Why am I so tired...

Hi any one out there please help me give a more positive and true answer to my M...

•11 years ago

Stupid or what?!!!!!!!!!!!!!!!!!

I felt pretty good this morning, decided to do a bit of cleaning as getting a bit neglected, I started with the kitchen, not too bad, back went into spasm...

I felt pretty good this morning, decided to do a bit of cleaning as getting a bi...

•11 years ago

Has anyone tried Artane ((Trihexyphenidyl) ?

Hello to all.Today i read in a group in facebook (it belongs to an italian website for psp called "pspfocus") a post about a psp patient who is on the drug...

Hello to all.Today i read in a group in facebook (it belongs to an italian websi...

•11 years ago

Help to communicate!!! Amazing...

I want to tell you all this......my Dad has PSP and has an ipad that is suppose to help, a tango that is suppose to help. I think that ANYTHING like that is...

I want to tell you all this......my Dad has PSP and has an ipad that is suppose ...

•11 years ago

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