Hi any one out there please help me give a more positive and true answer to my Mum?
My Mum constantly asks me the same question every day "Why am I so tired all the time?" I have said its the PSP and your brain is working harder than it used to to tell your legs to walk your hands to move etc....
We have been told my Mum is in the final stages of PSP she can hardly walk she transfers very slowly to wheelchair then to her chair then back again to bed, she is talking a lot less now just the odd few words but gets confused with what she is saying, her pupils are looking sideways not straight ahead and is now 7 1/2 stone she is under pallative care and all I want to do is help her and cheer her up as she is so down and very quiet.
Thank you everyone for being here this website is very helpful and you don't feel so alone with this horrible illness.