Message for Cate

[Kathy]

Hi Cate,

Just wanted to say I'm thinking of you and hoping things are improving xx

love Kathy xx

[CateT]

Hi Kathy,

Thank you so much for thinking of us. Things are better. Mum is still in hospital and she had her PEG fitted on Monday. She is doing remarkably well considering she is so weak and it was a general anaesthetic. I just hope we don't regret the decision. They have started feeding her through it already but she has been eating so much better on her own the last week anyway. Yesterday I fed her trifle while she was being fed through her PEG!!

Was just reading your post about your mum clamping her mouth. We have that too. I have seen my mum use her hands to open her mouth when it won't respond to her brain telling it to open! We will try lollies/icecream too.

Thanks again Kathy. I hope your mum is doing better with her sores too.

xxxxx

[Kathy in reply to CateT]

Hi Cate,

Glad to hear your Mum is picking up a bit! Mum's sores have improved quite rapidly since they put a catheter in! At the moment it's only a temporary one but the GP has referred for a permanent (Suprapubic) one.

Hoping it can be done as a day surgery so she doesn't have to stay in hospital!

Take Care

love to all

Kathy xxx

[dllera]

Hi Cate - I am so glad to hear that your mom is doing better- -you won't regret the PEG decision. You made the right decision at the right time. The PEG doesn't change the outcome of PSP but can sure help make your mom more comfortable. My dad's tastes changed with PSP -he was always a "meat and potato" kind of guy but when he got PSP -it was sweets all the way! I told my dad that he can get his nutrition through the tube and all the sugary junk through his mouth. He was happy with that and we shared LOTS of cheesecake and ice cream!

[CateT]

That you for your support Danielle. We do feel relieved. Yes my mum never had a sweet tooth before PSP but now she can't get enough puddings, sweets/candy and cola! I have read that it is part of the frontal temporal lobe dementia part of PSP.

She is still in hospital but we are hoping to have her home next week some time.

xx

[jillannf6]

i so hope youe mum comes home soon

it is so much better than hospital

once she is stable pl z tell her we r all thinkign of her

lol Jill