Posts - PSP Association | HealthUnlocked

PSP Association

9,266 members • 11,356 posts

All posts for June 2011

an anxious week

My mum seemed to take a turn for the worse this week. Two posts I've written on my own blog- you should be able to see them by clicking on the links...

My mum seemed to take a turn for the worse this week. Two posts I've written on...

•13 years ago

Diary of a Daughter and Carer

Ive been writing a blog for a few months now and thought I would share...This was my first one posted a few months ago. Its been on my mind to write something...

Ive been writing a blog for a few months now and thought I would share...This wa...

•13 years ago

help and support required...

Living with PSP is a challenge for all of us. If it's at all possible, get to a support group meeting, chat to your nurse, gather what help behind you you can....

Living with PSP is a challenge for all of us. If it's at all possible, get to a ...

•13 years ago

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It's odd but...

... until my Mum was diagnosed with osteoporosis in early 2008 she was generally fit and healthy. She couldn't sit down for more than 5 minutes before she...

... until my Mum was diagnosed with osteoporosis in early 2008 she was generally...

•13 years ago

How do you cope with dreams and hallucinations?

Mum has experienced really vivid dreams and hallucinations for quite some time now, sometimes insisting that something is there when it clearly isn't. How do...

Mum has experienced really vivid dreams and hallucinations for quite some time n...

•13 years ago

Hello

I'm Idris. Obviously this is not my real name. It's a Doctor Who thing. I've been blogging for years about my life and the things I like, which includes some...

I'm Idris. Obviously this is not my real name. It's a Doctor Who thing. I've be...

•13 years ago

My Dad is a star!

My Dad is an absolute star! I know it is not unusual for daughters to think well of their Dads but I can give you several very good reasons why I am right in...

My Dad is an absolute star! I know it is not unusual for daughters to think we...

•13 years ago

Getting the right diagnosis

hi i was 49 when i was diagnosed with corticobasal ganglionic degeneration i throught thats it ill be dead before my kids have grown up but i aint one to give...

hi i was 49 when i was diagnosed with corticobasal ganglionic degeneration i thr...

ray-wiffen-1958

•13 years ago

Has anyone seen the short film A Short Stay In Switzerland? Julie Walters is in it.

I watched it in 2008/09 and thought it was very hard hitting. Having watched it again it doesn't seem as bad as I thought it was and as relevant to my story...

I watched it in 2008/09 and thought it was very hard hitting. Having watched it...

•13 years ago

Where and when did my Dad go?

2006 and I had just got off the phone to my Mum. Flinging my arms around a friend outside the school gates, I cried. Mum told me it was nothing to worry...

2006 and I had just got off the phone to my Mum. Flinging my arms around a frien...

•13 years ago

How does my Mum do it?

I have no idea how my Mum is so strong to care for my Dad. I suppose she does it because she has to. Because she loves him & even though he's not the man she...

I have no idea how my Mum is so strong to care for my Dad. I suppose she does it...

•13 years ago

Hospital Survey

Our Hospital Survey has gone live...this survey is about services provided in the hospitals you use. Search for your local hospital and discover how others...

Our Hospital Survey has gone live...this survey is about services provided in th...

Partner•13 years ago

falling

i have had an exciting morning = taxi to dentist for check up - teeth good despite my last check up when i had had 2 falls on my face and teeth = last...

i have had an exciting morning = taxi to dentist for check up - teeth good desp...

•13 years ago

research trials

is sthere any available research trial in UK ongoing? (apart from the davunetide) i could not take part because i cannot use a medication via a nasal spray jill

is sthere any available research trial in UK ongoing? (apart from the davunetide...

•13 years ago

A Brief Introduction

I thought I would introduce myself before I start sharing my thoughts about and experiences of PSP; it may help you to understand where I am coming from in...

I thought I would introduce myself before I start sharing my thoughts about and ...

•13 years ago

Where we're at

Some personal blog posts describing PSP in my life. I'll update as I do more! :) http://memineandotherbits.wordpress.com/2011/04/03/herself/...

Some personal blog posts describing PSP in my life. I'll update as I do more! :...

•13 years ago

the lee silverman voice treatment

hi i was just wondering if any body has been refered by there speech and language therapest for the lee silverman voice treatment, my therapest has refered me...

hi i was just wondering if any body has been refered by there speech and languag...

ray-wiffen-1958

•13 years ago

trouble with social services and local councils

hi after being diagnosed with cbd at the age of 49 was quite a shock to the system but thats life, Most days are a struggle but you have to stay positive and...

hi after being diagnosed with cbd at the age of 49 was quite a shock to the syst...

ray-wiffen-1958

•13 years ago

Where I am today.

Living in Sheffield (for university), I wish it was easier to cope with my Dad having PSP- it's not! Every time I go home (Nottingham) it hits me in the face...

Living in Sheffield (for university), I wish it was easier to cope with my Dad h...

•13 years ago

getting diagnosed wiTh PSP

Hi I am 65 and was diagnosed with PSP in December 2010 and have felt so much better now I know the symptoms are not ME but the disease! I had fallen and...

Hi I am 65 and was diagnosed with PSP in December 2010 and have felt so much bet...

•13 years ago

When my Dad was first diagnosed..

..I was 18 and was in my first term at Sheffield Hallam University. We had thought something was wrong for a while but couldn't pin-point when he had changed....

..I was 18 and was in my first term at Sheffield Hallam University. We had thoug...

•13 years ago

An article in The Nottingham Post about My Dad during PSP Awareness Week.

http://www.thisisnottingham.co.uk/research-condition-robbing-dad-speech/story-12181504-detail/story.html

http://www.thisisnottingham.co.uk/research-condition-robbing-dad-speech/story-12...

•13 years ago

Raising awareness for PSP on Facebook

This is a link to my page on Facebook which I am using as a medium to raise awareness of PSP....

This is a link to my page on Facebook which I am using as a medium to raise awar...

•13 years ago

Come on in!

HealthUnlocked is in session for PSP! We are so pleased it’s time to load up this service and get going with some blogging action, so we can let you know that...

HealthUnlocked is in session for PSP! We are so pleased it’s time to load up th...

•13 years ago

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