the lee silverman voice treatment

[ray-wiffen-1958]

hi i was just wondering if any body has been refered by there speech and

language therapest for the lee silverman voice treatment, my therapest has

refered me and i wonted to know if any body knew anything about it ty

[jillannf6]

yes

THINK LOUD is the mantra

and my speech is so garbled and quick that it has not really worked 4 me

Jill

[comunicaiton is a big problem and 1 that really worries me

[ray-wiffen-1958]

thanks jill at my hospital in colchester i have been told i now

have to see a ear nose and throat spechilist to see weather

the lee silverman voice treatment will work, my speech isnt

garbled its just very quite it worrys me that one day i wont

be able to talk but ill worry about that when it happens,

[PSPA_JillL]

The Lee Silverman voice treatment can be helpful for some people with PSP/CBD. However the full course is intensive and each day for a number of weeks and can be exhausting, especially if you have to travel. Some centres offer less intensive courses, it is important to discuss with your speech and language therapist if it is appropriate and what is best for you.

[ray-wiffen-1958]

thannks jill ive been told that it can be exhausting i have a

meeting on the 21 july with the spl therapist i will talk it

over with her,

[jillannf6]

go for it Ray-

i have a hearing problem too and wiht hearing aids my speech has got a lot quieter

jill

[MovementPT]

Yes the LSVT Loud program can be wonderful for those with PSP. I am an LSVT BIG clinician and have seen it work well with my clients.

Go to LSVTglobal.com for more information.

Best of Luck.

[ray-wiffen-1958 in reply to MovementPT]

hi

thanks very much for the information,

[judy1962]

I feel like we are living with an entire different disease. I cant even imagine speech therapy helping my husband who can barely say yes and no. We use hand signs. I dont remember a time when we knew that he had PSP that he could carry on any sort of conversation. I think he is in the end stages but doctors seem to be clueless. I have him in a clinical trial for davenitide but does not seem to be helping. He could be on the placebo. Seems so cruel.

[ray-wiffen-1958 in reply to judy1962]

hi judy

sorry to here about your husbands speech i think that

im still in the early stages of cbd i can still talk but very

quite and i run out of breath before i can finish my sentence

i do struggle with remembering words and how to spell different

words i know what you mean about doctors being clueless they

dont seem to care any more,

take care

ray

[Anne_Gant]

I took my husband for the LSVT program, 4 days a week for 4 days each, and it made a remarkable difference in his speech. He was barely talking at all in the early PSP stages, and so quietly I could not hear him. That was 2 years ago, and now his voice is loud and it's impossible to get him to stop talking. His throat muscles are much weaker now, so his voice quality is more like a growl, but his volume is LOUD.

[ray-wiffen-1958]

hi anne-grant

Hope your keeping well thanks for the reply so the course

goes on for 4days aweek for 4 weeks how many hours a

day is it please at the moment my voice is very quite i think

i am talking loud my every body keeps saying speak up or

what did you say i will find out for sure on the 21 july weather

i meet the criteria to have it take care,

ray

[Anne_Gant in reply to ray-wiffen-1958]

Ray, it was a standard 50-minute appointment with a speech therapist at a local hospital. We had homework to do every day, as well. Mostly, we worked on getting him to readjust his perception of the loudness of his voice. He thought he was speaking normally, but was barely audible when we started. Good luck with your appointment.

[ray-wiffen-1958]

anne-grant

thanks for the reply i hope its works as well for me

as it did for your husband,

[jillannf6]

hi ray

have yu had your appt with the speech therapist yet?

and the LV treament?

it took 9 months to get an appt with a therapist in my area and then i did not have the PSP diagnosis!

jill

[ray-wiffen-1958]

hi jillann,

hope your keeping well, i had a appointment with

a ear nose and throat specialist on thursday and

my speech therapist was there as well they stuck

a camera up my nose and down my throat they

found a couple of things wrong, They did say that

i will be haveing the lee silverman voice treatment

and i should hear within the next week so we will

wait and see what happens,

take care

ray x

[jimandsharynp]

My wife did the LS course. You can buy the DVD which has all the excercises on it on-line. I think if you do the excercises often and are dilligent with them it might help. Voice doctor told me that the PSP patient doesn't realize they are speaking softly. Their brain is fooled and when they raise their voice to "normal" level it seems to them that they are screaming or speaking very loud. My wife was softspoken to begin with so you can imagine how soft she is now with PSP.