research trials

[jillannf6]

is sthere any available research trial in UK ongoing?

(apart from the davunetide)

i could not take part because i cannot use a medication via a nasal spray

jill

[ray-wiffen-1958]

hi jill im sorry but i dont know of any i put my name

forward for the davunetide trial but i have cbd and they

where only recruiting people with psp.

[jillannf6]

hi ray

sorrry about hte cbd it is even rarer than psp and msa (which a friend has)

the psp forum has people with cbd and ithe forum can be helpful too

jill

[PSPItaly]

clinicaltrials.gov/ct2/resu...

[PSPA_DebbieB Partner PSPA]

We have an article in our latest edition of PSP Matters (page 4) about the launch of the EU Clinical Drug Trials Register. If you click on the link below it will take you to that article.

pspeur.org/user/docs/PSP%20...

The website address for the register is:

clinicaltrialsregister.eu/

However, for some reason this link won't load from this blog. If you google EU Clinical Drug Trials Register, the website link will show up there.

Hope this helps.

[Hidden]

My husband is on a trial in Liverpool of nypta for psp he finishes it in July but we don't know if he is on placebo or reAl thing but when he finishes the trial he will be given the real thing

[daughter_Julie in reply to Hidden]

Hi Joey, so is my dad! He goes up for the last time next week I think. We are unsure if he gets "the real thing" next week or after the wash out in 12 weeks? Do you know? Has he been helped do you think?

[Lucylidbeck]

I am from MN and have been attending a Local Parkinson's Support Group. I have recently attended a conference on psp in Mnpls. Also just found out that Fargo, ND (Sanford Hospital) has a neurosience center That deals with psp patients.Am finally getting to the right people. Hope it is not too late! I had prayed for acceptance for what was ahead and felt I was okay with it and now have to change my thinking and adjust to having hope! Any help out there? Not that the end result will be any different but that there can be quality of life along the way!