I thought I would introduce myself before I start sharing my thoughts about and experiences of PSP; it may help you to understand where I am coming from in later posts. I am single, a Christian, part-time employed and part-time self-employed. I am the middle child in the family, older brother and younger sister.
My Mum was diagnosed with PSP in 2008. Prior to that we had been concerned about Mum's health but persuading her to see her GP took some time. Mum has always taken the view that if you ignore an illness it will go away soon enough on its own; this works well for the common cold but not for PSP! In the end Dad told her that if she didn't make an appointment with the Dr, he would. We were fortunate that the neurologist was quick to spot one of the distinctive features of PSP, Vertical Gaze Palsy and equally fortunate that Mum liked him and was therefore willing to follow his suggestion for more tests to eliminate other conditions.
The shocking thing has been how quickly things have changed. In February 2009 my sister bought Mum a walking stick which she reluctantly agreed to use but within 6 months Mum was using a wheeled walker outside the home; 6 months or so after that she was using a wheelchair. The difference between Mum now and Mum just prior to diagnosis is huge and one of the hardest things to get used to. I will return to this theme again I am sure but that is enough from me for now.