Hi I am 65 and was diagnosed with PSP in December 2010 and have felt so much better now I know the symptoms are not ME but the disease!
I had fallen and fractured my ankle badly 4 years previously and was falling over on a regular basis plus handwriting and co-ordination problems etc. etc. and the eyes closing and not blinking
So despite living on my own with my cat i am happier now with a good anti depressant to help me and have got through the winter sorting out care/ walking frames etc and accepting help from anyone who offers it.
I really have no idea when I shall become incapacitated - any ideas as it is such an individual disease?
Thanks for reading
Jill Friar
Written by
jillannf6
To view profiles and participate in discussions please or .
I'm sorry to hear that you've been diagnosed with PSP but I'm glad you can share it on here.
I know exactly what you mean when you say that it is the disease and not you! It must be so frustrating for you. Hopefully we can all provide you with some support- you're not alone in this. My Dad also has PSP and I know that the falling is particularly frightening.
In regards to your question I can't give a medical perspective/ opinion on it however I think every case of PSP is different so it would be hard to say exactly. I think your neurologist would be able to give you a better idea.
Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.
Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.