Hi I am 65 and was diagnosed with PSP in December 2010 and have felt so much better now I know the symptoms are not ME but the disease!
I had fallen and fractured my ankle badly 4 years previously and was falling over on a regular basis plus handwriting and co-ordination problems etc. etc. and the eyes closing and not blinking
So despite living on my own with my cat i am happier now with a good anti depressant to help me and have got through the winter sorting out care/ walking frames etc and accepting help from anyone who offers it.
I really have no idea when I shall become incapacitated - any ideas as it is such an individual disease?
Thanks for reading