It took 18 monhts 4 rme from when i 1st was referred 2 a neurologist to getting the diagnosis oF PSP--and now no one has heard of it but i am letting people know!1
I just want to do what i can whilst i still can
Adn make alll practical preparations for the futureh
lpa si not easy but my cousin (my next of kin goes along with my wishes)e g brain donation already done
lpa still to b sorted - i have all the forms - a mass of stuff to get right -
did you have a solicitor to help or do it yourself?
i have got the DLA at the highest rates which helps financially
Are you on benefit - i had to apply twice for it but the diagnosis and gp and consultant's input and the psp nurse all clinched it just b4 my 65 birthdyay!
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