Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,342 members • 38,113 posts

All posts for March 2020

Link to COVID 19 European Rheumatology register

Another bit of research we can contribute to. Patients with a rheumatological disease can register to help provide data on the incidence and effect of COVID...

Another bit of research we can contribute to. Patients with a rheumatological di...

PMRpro

Ambassador•4 years ago

19 Replies

Link to COVID 19 European Rheumatological Patient registry

Apologies if already shared. Patients can register and input information about their disease, meds, co morbidities etc. Essential to get data about the effects...

Apologies if already shared. Patients can register and input information about t...

Brussels

•4 years ago

1 Reply

Blood pressure tabs whilst being on prednisone

Hi there, my mum has been on prednisolone for a few years now, she's just started blood pressure tabs to lower bp, she started on amlodipine 10mg but got...

Hi there, my mum has been on prednisolone for a few years now, she's just starte...

mrsQuics

•4 years ago

26 Replies

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Blood test back

Yay ! blood test back already from yesterday. Obviously all their time is being taken up with the virus. ESR down from 17 to 5 and Monday's CRP down from 22...

Yay ! blood test back already from yesterday. Obviously all their time is bein...

Hidden

•4 years ago

9 Replies

GCA or not update 4

I had my phone appointment on Monday with my rheumy consultant. Still on 20mg Prednisolone, he's decided not to reduce yet as my bloods are abnormal. CRP 11.7,...

I had my phone appointment on Monday with my rheumy consultant. Still on 20mg Pr...

Marlenec

•4 years ago

16 Replies

Free Entertainment for Opera and Theatre Buffs

For anyone tired of what TV has to offer, The Original Theatre Company, The Royal Opera House (London) and The National Theatre (London) are streaming various...

For anyone tired of what TV has to offer, The Original Theatre Company, The Roya...

Omanain

•4 years ago

2 Replies

Amytrptaline query

Thank you everyone for replying to my Amytrptaline query yesterday evening. I’m not planning to stop taking it as it is working for me nicely. Glad to hear...

Thank you everyone for replying to my Amytrptaline query yesterday evening. I’m ...

Cyclegirl54

•4 years ago

9 Replies

PPI's

Those of us on 40 mg and higher, or even lower Pred. What mg are you taking for the Proton Pump Inhibitors (PPI's) I take 20 mg of Omeprozale by once a day....

Those of us on 40 mg and higher, or even lower Pred. What mg are you taking for...

Hidden

•4 years ago

37 Replies

Amytryptaline

I’ve been taking 10 mg AmyT nightly for last 6 weeks. How long is it safe to take and are there withdrawal problems if I stop? It has given me restful sleep...

I’ve been taking 10 mg AmyT nightly for last 6 weeks. How long is it safe to ta...

Cyclegirl54

•4 years ago

16 Replies

Covid-19 Chat: Thursday 26th March

After a rather heavy post last night I am just bringing up a comment I saw on another form which may be of interest to any who are to self-isolate and who have...

After a rather heavy post last night I am just bringing up a comment I saw on an...

PMRpro

Ambassador•4 years ago

199 Replies

How to access support for people in self-isolation and shielding

I have borrowed this from LupusUK - obviously the lupus-related links are not applicable to us but the other information is relevant: for example, how to...

I have borrowed this from LupusUK - obviously the lupus-related links are not ap...

PMRpro

Ambassador•4 years ago

5 Replies

UK ...ICELAND HAVE OPENED SLOTS FOR VULNERABLE AND ELDERLY...GOING FAST.

Hope I'm not too late for today's Covid posts but I wanted to let people know that here in the UK Iceland are doing special home delivery for the elderly and...

Hope I'm not too late for today's Covid posts but I wanted to let people know th...

maria40

•4 years ago

8 Replies

Posting on Covid chat

Should this post be on the Covid chat? I’m on an IPhone. I can access the chat by scrolling down but don’t see how to post. Any general advice on...

Should this post be on the Covid chat? I’m on an IPhone. I can access the ...

Mstiles

•4 years ago

4 Replies

Followup to my last post. Sometimes I feel like a ton of bricks.

My rheumatologist agreed that i could up my dose of prednisone from 2.5 to 5mg. I’ll see if that gives me relief from recurrent symptoms. Only problem is she...

My rheumatologist agreed that i could up my dose of prednisone from 2.5 to 5mg. ...

Heinrich7

•4 years ago

9 Replies

Me again 🐵

Firstly , thank you all for your kind words xx to you all . So many of you have asked me to tell you of my journey with this so I’m going to do a daily diary (...

Firstly , thank you all for your kind words xx to you all . So many of you have ...

Monkeymate

•4 years ago

14 Replies

PMR still here

Hi, think now after 8 years it's going to be a permanent thing. Down to 3mg Pred but sometimes get flare ups. On the amount I take what would be the best...

Hi, think now after 8 years it's going to be a permanent thing. Down to 3mg Pred...

KCRoyals

•4 years ago

19 Replies

Positive Thoughts for Lockdown

I’m struggling with pacing myself as I have quite a bit to do in the house upstairs to match the downstairs refurbishment after the flood. Then there is the...

I’m struggling with pacing myself as I have quite a bit to do in the house upsta...

Estellemac

•4 years ago

57 Replies

Sinus pain or gca

My husband (78) has had a really bad cold/cough for 8 days now. He keeps complaining of a sore scalp and a niggly pain on left side of head. 4am I phoned 111....

My husband (78) has had a really bad cold/cough for 8 days now. He keeps complai...

Suet3942

•4 years ago

1 Reply

On a positive note- research ongoing and 400,000 people signed up to help others....

Research is still ongoing with research and pharma groups partnering up....

Hidden

•4 years ago

6 Replies

An opportunity to help research on Covid19

https://covid.joinzoe.com/ This is how everyone, even shut ins. can help Kings College Hospital and Guy's & St Thomas's specialists get a better understanding...

https://covid.joinzoe.com/ This is how everyone, even shut ins. can help Kings C...

PMRpro

Ambassador•4 years ago

6 Replies

Blood test

So angry. I took myself off to the surgery on Monday all masked and gloved up to get blood test to check my ESR/CRP to enable me to give results to rheumy on...

So angry. I took myself off to the surgery on Monday all masked and gloved up t...

Hidden

•4 years ago

9 Replies

9.30 am.

Morning everyone. 😎😎 Have a pleasant, pain free, worry free day. TRY! BTW - the contents are purely medicinal.😂😂😂

Morning everyone. 😎😎 Have a pleasant, pain free, worry free day. TRY! BTW - t...

Constance13

•4 years ago

2 Replies

Stress and PMR?

Hi I’ve tapered successfully to 12.5mg (for 3 weeks so far) and I’m wondering if stress affects PMR? I don’t ‘feel’ stressed but obviously the situation at...

Hi I’ve tapered successfully to 12.5mg (for 3 weeks so far) and I’m wondering if...

Loopy65

•4 years ago

6 Replies

O dear I have corona virus

Havnt posted for ages, as my previous illnesses have continued to deteriorate plus more autoimmune have joined in !! I was saying.. corona. Last sat after...

Havnt posted for ages, as my previous illnesses have continued to deteriorate pl...

Monkeymate

•4 years ago

26 Replies

Many, many thanks

Can I offer a great debt of gratitude to all who responded to my questions about fatigue for my assignment. I passed and am so relieved as I had really big...

Can I offer a great debt of gratitude to all who responded to my questions about...

Singr

•4 years ago

7 Replies

Uncertain regarding my blood results.

Hi, have been on Prednisilone since November,and started to get a wheeze and breathlessness on any exertion,so had a range of blood tests which came back with...

Hi, have been on Prednisilone since November,and started to get a wheeze and bre...

BPlady

•4 years ago

3 Replies

Covid Chat thread: Wednesday 25th March

Warning: this is an explicit discussion of how Covid19 travels through our community. It is not a comforting post and may cause anxiety in some people. So the...

Warning: this is an explicit discussion of how Covid19 travels through our commu...

PMRpro

Ambassador•4 years ago

200 Replies

PMR symptom check

Even, so with lock down coinciding with me trying to maintain a semblance of fitness whilst working from home, I have a question. Since my diagnosis in April...

Even, so with lock down coinciding with me trying to maintain a semblance of fit...

Cyclo5

•4 years ago

3 Replies

Food cleaning

Thanks everybody for your responses. Look after yourselves.

Sandybo

•4 years ago

PMR AND GCA POSTS ONLY

Could people please remember that the forum is to be used for pmr and gca queries only and not general chatting. If people want to chat together this can be...

Could people please remember that the forum is to be used for pmr and gca querie...

Yellowbluebell

•4 years ago

6 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for March 2020

Link to COVID 19 European Rheumatology register

Link to COVID 19 European Rheumatological Patient registry

Blood pressure tabs whilst being on prednisone

Blood test back

GCA or not update 4

Free Entertainment for Opera and Theatre Buffs

Amytrptaline query

PPI's

Amytryptaline

Covid-19 Chat: Thursday 26th March

How to access support for people in self-isolation and shielding

UK ...ICELAND HAVE OPENED SLOTS FOR VULNERABLE AND ELDERLY...GOING FAST.

Posting on Covid chat

Followup to my last post. Sometimes I feel like a ton of bricks.

Me again 🐵

PMR still here

Positive Thoughts for Lockdown

Sinus pain or gca

On a positive note- research ongoing and 400,000 people signed up to help others....

An opportunity to help research on Covid19

Blood test

9.30 am.

Stress and PMR?

O dear I have corona virus

Many, many thanks

Uncertain regarding my blood results.

Covid Chat thread: Wednesday 25th March

PMR symptom check

Food cleaning

PMR AND GCA POSTS ONLY

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