Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,294 members • 38,018 posts

All posts for March 2020

COVID POSTS

As i have already stated numerous times there should be NO COVID POSTS on the main forum. Any posts mentioning covid risk having replies stopped or being...

As i have already stated numerous times there should be NO COVID POSTS on the m...

Yellowbluebell

•4 years ago

16 Replies

Prepared for a Pandemic

Seriously? That’s absurd. How on earth, could I (or anyone else for that matter) have been emotionally, mentally or physically prepared, for this? This...

Seriously? That’s absurd. How on earth, could I (or anyone else for that matte...

Hidden

•4 years ago

7 Replies

Public Service Announcement: Covid 19 to music

https://www.youtube.com/watch?v=MMBh-eo3tvE I bet no-one can listen just once! They DO need some work on their social distancing - it could be argued they are...

https://www.youtube.com/watch?v=MMBh-eo3tvE I bet no-one can listen just once! T...

PMRpro

Ambassador•4 years ago

18 Replies

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Mistake

I've altered the mistake I made on my post about tapering. I said that he'd told me to take 20 mg down from 40 mg......it's 30 mg from 40 mg, then 20 mg after...

I've altered the mistake I made on my post about tapering. I said that he'd tol...

Hidden

•4 years ago

11 Replies

Face masks

https://youtu.be/2_8hojsF-nY

Leepeelee

•4 years ago

3 Replies

PMR and coronavirus

I’m like most of us that are seniors and have symptoms, thinking I could have this virus. For Almost two weeks now I am intermittently running a low grade...

I’m like most of us that are seniors and have symptoms, thinking I could have th...

Aleish

•4 years ago

3 Replies

The PMRGCAuk Community Guidelines..we have had lots of new and returning members who may not read them yet.

Community Guidelines for our PMRGCAuk HealthUnlocked Forum - with Coronavirus post guidelines PMRGCAuk HU Community Guidelines (additional rules re coronavirus...

Community Guidelines for our PMRGCAuk HealthUnlocked Forum - with Coronavirus po...

Hidden

•4 years ago

Covid 19 Chat: Sunday 29th March

I hope everyone in Europe remembered to change their clocks last night: spring forward an hour if anyone isn'r clear! An hour more light at night and a longer...

I hope everyone in Europe remembered to change their clocks last night: spring f...

PMRpro

Ambassador•4 years ago

77 Replies

Does old prednisone lose its potency?

Does prednisone lose its potency over time? I’m not interested in the question of whether or not it is better to take “fresh” prednisone as opposed to old...

Does prednisone lose its potency over time? I’m not interested in the question o...

skipspmr

•4 years ago

48 Replies

steroid mg's

For those of us that are still on high strength Pred, what mg are you taking per tablet. My sister in-law who lives in Spain and sometimes has to take them...

For those of us that are still on high strength Pred, what mg are you taking per...

Hidden

•4 years ago

27 Replies

Dose question, back\scapula pain in the wee hours

Hi everyone, hope you're all well. During taper, how often do you notice shoulder scapula pain in the early hours c5am? I find after a night's sleep, and esp...

Hi everyone, hope you're all well. During taper, how often do you notice shoul...

Cyclo5

•4 years ago

14 Replies

Tingling Sensation

I was diagnosed with PMR 9 months ago. Started with 15mg Prednisone and now on 3.5mg. However recently began to experience tingling sensation which started...

I was diagnosed with PMR 9 months ago. Started with 15mg Prednisone and now on 3...

Threerivers

•4 years ago

14 Replies

Making new friends around the world

Hi there,I m new to this so excuse any mistakes. I love reading your posts,I have pmr since last dec,but had to wait a long time to get the right treatment had...

Hi there,I m new to this so excuse any mistakes. I love reading your posts,I hav...

Canarylady

•4 years ago

36 Replies

Fungal nail treated with Terbinafine

What is the most popular treatment for fungal nail and how long can it take to cure?

What is the most popular treatment for fungal nail and how long can it take to c...

TimTooYoung

•4 years ago

22 Replies

Pred dose??

Hi I hope you are all managing ok during this very stressful time? I have been on 12mg preds, have been taking the preds as a split dose 7mg in the evening...

Hi I hope you are all managing ok during this very stressful time? I have bee...

Leepeelee

•4 years ago

29 Replies

CHAT COVID SATURDAY 28TH MARCH.

Let it not be said that we don't listen.....warning...normal service will be resumed 😱😉 You wanted some good news.... The WHO has stated it is launching...

Let it not be said that we don't listen.....warning...normal service will be res...

Hidden

•4 years ago

90 Replies

Visit to Rheumatologist

Hi all I had my appointment with the Rheumatologist today as part of the suspected GCA diagnosis. Glad to say I dont have GCA! However, she said she doesn't...

Hi all I had my appointment with the Rheumatologist today as part of the suspect...

Kathrynt18

•4 years ago

10 Replies

Rheumatologist

Well, Just received the call after all from Mr Saha rheumy, 6:30 pm. What are your thoughts ? He wants me to reduce steroids from 40 mg tomorrow to 30 mg for...

Well, Just received the call after all from Mr Saha rheumy, 6:30 pm. What are y...

Hidden

•4 years ago

27 Replies

What are your numbers?

New Research... https://eurekalert.org/pub_releases/2020-03/cmaj-cdo031820.php

New Research... https://eurekalert.org/pub_releases/2020-03/cmaj-cdo031820.php...

Hidden

•4 years ago

14 Replies

Slightly worried about GCA

For the past few weeks I've had stiffness in jaw. Also tenderness at base of scull and on top of head. I've had PMR for five years and surely wouldn't be...

For the past few weeks I've had stiffness in jaw. Also tenderness at base of scu...

Dopaint

•4 years ago

2 Replies

Screaming silently with frustration

Hello. I'm new here. I can't type in a message myself because I am partially sighted. My husband has spent the past 30 minutes or so typing in my questions and...

Hello. I'm new here. I can't type in a message myself because I am partially sig...

BeeEmmBee

•4 years ago

13 Replies

Re :receiving gov/gp letter about vulnerability and self isolation

Hi my GP called to say I was in the increased risk group but not extremely vulnerable , so as I am classed as a key worker (NHS) Ideally I should only work if...

Hi my GP called to say I was in the increased risk group but not extremely vulne...

Topcar

•4 years ago

5 Replies

Anyone under the age of 30

Hi I’ve been Trying to find a diagnosis for some time I had an MRI scan which showed lesions on the brain about two years ago I was diagnosed with MS my mum...

Hi I’ve been Trying to find a diagnosis for some time I had an MRI scan which sh...

Buckley123

•4 years ago

3 Replies

Sore wrists?

Hi, I've been on pred for 3 years now! Reduced to 4mg and was feeling fine, but since self isolating I have developed painful wrists, hands - sometimes lower...

Hi, I've been on pred for 3 years now! Reduced to 4mg and was feeling fine, but ...

PMRLondon

•4 years ago

13 Replies

Advice from gp

I was due to see my gp today after 7 weeks waiting, but got a phone call to say it was cancelled due to covid 19. Although I understood the reason I did say...

I was due to see my gp today after 7 weeks waiting, but got a phone call to say ...

Rebel21

•4 years ago

7 Replies

Alendron Acid

Hello ladies, May I please ask how many of you are taking the Alendronic Acid and if so for how long, and has anyone experienced any nasty side affects. My...

Hello ladies, May I please ask how many of you are taking the Alendronic Acid a...

Hidden

•4 years ago

16 Replies

? Prednisolone withdrawal

I tapered off Prednisolone about 10 days ago, finally ending on 1mg alternate days. However I have felt most unwell since, starting a week or so ago. I defo...

I tapered off Prednisolone about 10 days ago, finally ending on 1mg alternate da...

Breconblue

•4 years ago

29 Replies

Has anyone received one of the letters from their GP re the virus

Are we included in the priority folk who need to take extra precautions to stay safe.

Are we included in the priority folk who need to take extra precautions to stay ...

Suffererc

•4 years ago

3 Replies

Lower Back Pain

I had PMR from March 2016 stopping steroids Dec 2019 and was planning to tell everyone there was light at the end of the tunnel after 6 clear months but I am...

I had PMR from March 2016 stopping steroids Dec 2019 and was planning to tell ev...

PoolePerson

•4 years ago

6 Replies

Virus v prednisilone.

Friend has sent me a media (think it might be from Facebook) stating anyone on steroids should stop taking them immediately. !! Cannot believe this is correct...

Friend has sent me a media (think it might be from Facebook) stating anyone on s...

suzmum

•4 years ago

23 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for March 2020

COVID POSTS

Prepared for a Pandemic

Public Service Announcement: Covid 19 to music

Mistake

Face masks

PMR and coronavirus

The PMRGCAuk Community Guidelines..we have had lots of new and returning members who may not read them yet.

Covid 19 Chat: Sunday 29th March

Does old prednisone lose its potency?

steroid mg's

Dose question, back\scapula pain in the wee hours

Tingling Sensation

Making new friends around the world

Fungal nail treated with Terbinafine

Pred dose??

CHAT COVID SATURDAY 28TH MARCH.

Visit to Rheumatologist

Rheumatologist

What are your numbers?

Slightly worried about GCA

Screaming silently with frustration

Re :receiving gov/gp letter about vulnerability and self isolation

Anyone under the age of 30

Sore wrists?

Advice from gp

Alendron Acid

? Prednisolone withdrawal

Has anyone received one of the letters from their GP re the virus

Lower Back Pain

Virus v prednisilone.

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A quick SURVEY on COVID-19 & PMR/GCA/LVV Since the start of the COVID-19 pandemic have you experienced any of the following? Part 2

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