Another bit of research we can contribute to. Patients with a rheumatological disease can register to help provide data on the incidence and effect of COVID 19. It’s linked to the COVID 19 Global Rheumatology Alliance, well worth supporting
Link to COVID 19 European Rheumatology register - PMRGCAuk
Link to COVID 19 European Rheumatology register
Done.
For those of us not in Europe the survey conducted by the COVID 19 Global Rheumatology Alliance May be more suitable. I have just completed this and it enables response from all countries.
When I started to complete the JAR project there was no provision for non European residents.
I guess it will all feed into the same database.
Can you post the link to this other survey?
This is weird. I got there via the jar project, but now can’t find the register for patients. I’ll keep trying...
Don't worry about it. If it pops up sometime you can always make a post about it then, there are a lot of us here who don't live in Europe who would be interested. Thanks.
Is this it?
except it's a provider registry, so not what someone like me would fill in.
However I did just drop scorer how to enter the jar project survey. In the country you live in section Scroll down to the end of choices and tick “other” . You can then enter your country.
Sorry to sow confusion!
I’ve just completed the JAR Project survey. It is a bit more thorough and detailed than the one with Global Rheumatology Alliance.
Done , poor folks who have to write up my others , both Rheumy and Non Rheumy and my Medications 😋
Completed!
Thanks completed
Done.
Yes joined this - will be interested when they have completed research.
Will definitely join in,