Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

21,084 members • 39,881 posts

All posts for March 2020

NHS England letter for the vulnerable: If you haven't had one

They have allowed all week but I gather you can also apply online using this link: https://coronavirus-vulnerable-people.service.gov.uk/live-in-england But...

They have allowed all week but I gather you can also apply online using this lin...

PMRpro

Ambassador•5 years ago

6 Replies

Good coming out of bad: Welsh inventions for the NHS (and us)

https://www.bbc.com/news/uk-wales-52008745?at_campaign=64&at_custom4=964C81A6-6D96-11EA-9F12-C6A0FCA12A29&at_custom3=bbc_wales_news&at_custom1=%5Bpost+type%5D&a

https://www.bbc.com/news/uk-wales-52008745?at_campaign=64&at_custom4=964C81A6-6D...

PMRpro

Ambassador•5 years ago

8 Replies

Cleaning food from a home delivery during the Coronavirus

I’ve seen a post recently about it but just can’t find it. Many thanks.

Sandybo

•5 years ago

10 Replies

Want to take advantage of all our features? Just log in!

******WORRIED RE COVID AND YOUR RISK....What is your risk score...USE THIS IMAGE AND/LINK ....replies are turned off now. 👍😊

Rheumologists have provided this risk score sheet for patients...you can use the photo or download the original. Pmrpro...

Rheumologists have provided this risk score sheet for patients...you can use the...

Hidden

•5 years ago

49 Replies

Criteria for at risk - Rheumatology (2)

https://www.rheumatology.org.uk/News-Policy/Details/Covid19-Coronavirus-update-members There is a link on this page with very detailed info:- NHS England...

https://www.rheumatology.org.uk/News-Policy/Details/Covid19-Coronavirus-update-m...

Hidden

•5 years ago

1 Reply

Criteria for at risk Rheumatology

I found this info on the :- https://www.rheumatology.org.uk/News-Policy/Details/Action-needed-coronavirus-identifying-high-risk-patients There are three...

I found this info on the :- https://www.rheumatology.org.uk/News-Policy/Details/...

Hidden

•5 years ago

Has anyone with PMR experienced flushing of the face? My cheeks will randomly get blood red!

Red cheeks

Joy713

•5 years ago

12 Replies

Staying at home? Bored yet?

Here are a few websites collected over the past few days with a wide variety of things to while away the time. Whatever you do, follow the rules regarding...

Here are a few websites collected over the past few days with a wide variety of ...

HeronNS

•5 years ago

10 Replies

At home

I am worried i was on 60mg of prednisolone for about 2 weeks before i started tapering down which took me a very long time to get down to 3 mg which i am on...

I am worried i was on 60mg of prednisolone for about 2 weeks before i started ta...

ballyboy

•5 years ago

35 Replies

COVID CHAT - Tuesday 24th March STAY AT HOME.. +++++++++++++++++++++++PLEASE READ ALL LINKS BELOW BEFORE ASKING QUESTIONS PLEASE

Many of us here has got letters or texts today saying we are vulnerable due to conditions and /or treatments and need to be part of the shielded ones for at...

Many of us here has got letters or texts today saying we are vulnerable due to c...

Hidden

•5 years ago

161 Replies

NHS Text... Not even a peck on the cheek from the old girl

Anyone else get the vulnerable person text from the NHS? I knew it was coming but am shocked. I can't even wander outside I am sorely tempted to start an...

Anyone else get the vulnerable person text from the NHS? I knew it was coming bu...

Hidden

•5 years ago

20 Replies

Tapering Pred.

I have GCA and PMR .Started on 60mg Prednisolone in December 2018 and struggled to get down to 6mg last September and then had flare up with pains,loss of...

I have GCA and PMR .Started on 60mg Prednisolone in December 2018 and struggled ...

passerdomesticus

•5 years ago

4 Replies

Shielded category and coronavirus

Have just been informed that I am on the list for shielding - guess this must be because I am on Tocilizumbab and Mycophenelate. Seems you now have to distance...

Have just been informed that I am on the list for shielding - guess this must be...

christine2715

•5 years ago

10 Replies

Bowel concerns

I have been diagnosed with GCA and PMR I have been on high doses(45 mg) of Prednisone and then tapered down in a slow taper This time back up to the same high...

I have been diagnosed with GCA and PMR I have been on high doses(45 mg) of Predn...

Darcy2000

•5 years ago

16 Replies

Self-isolating? Posters for your front door

This link was posted on the LupusUK forum today: https://chronicallyawesome.org.uk/posters-for-those-who-are-self-isolating-as-a-preventative-measure/ If you...

This link was posted on the LupusUK forum today: https://chronicallyawesome.org....

PMRpro

Ambassador•5 years ago

11 Replies

Help please !

Well , super doc has gone and caught A cold so is off sick , I'm left with A problem , on 30 mg pred for GCA , due to reduce this week , after trying to...

Well , super doc has gone and caught A cold so is off sick , I'm left with A pro...

Rosbud

•5 years ago

6 Replies

Covid-19 Information for patients with vasculitis from Vasculitis UK

https://www.vasculitis.org.uk/news/coronavirus-covid-19 This has one of the better explanations of social distancing and self-isolation that I have seen. This...

https://www.vasculitis.org.uk/news/coronavirus-covid-19 This has one of the bett...

PMRpro

Ambassador•5 years ago

12 Replies

Tocilizumab

I’ve just seen that biologic drug users are going to be included in the 12 week self isolation instruction, and will receive a letter. I’m taking Tocilizumab...

I’ve just seen that biologic drug users are going to be included in the 12 week ...

MrsChips

•5 years ago

39 Replies

Lifting spirits

Our flats are built in a square and this is the internal courtyard. Truly beautiful. It is impossible to be depressed sitting here. Regards to all. Keep...

Our flats are built in a square and this is the internal courtyard. Truly beaut...

Constance13

•5 years ago

Exercise at home

https://zgdance.wixsite.com/jacqueline Hi folks I teach Zumba Gold which is now cancelled because of the virus. Because we are all confined to home I have put...

https://zgdance.wixsite.com/jacqueline Hi folks I teach Zumba Gold which is now...

keepfitdoll

•5 years ago

8 Replies

My family joy~~

Here it is 10:16 PM in the states and POW! I remembered it was Family Day and I wanted to share the loves of my life~my grandson, Mattias and my granddaughter,...

Here it is 10:16 PM in the states and POW! I remembered it was Family Day and I ...

Grammy80

•5 years ago

6 Replies

Regular Blood Tests

My Medical Centre no longer does blood tests as of three months ago, so we now have to go to the local hospital. Is everyone happy to go to hospital to give...

My Medical Centre no longer does blood tests as of three months ago, so we now h...

piglette

•5 years ago

7 Replies

Being selfish it’s all about me

I am sorry to talk about me in these awful times. I am tapering and now at 4mg. My son has a chest infection. Long story short I took 4 of his 5mg tablets...

I am sorry to talk about me in these awful times. I am tapering and now at 4mg....

Osteoqueen

•5 years ago

11 Replies

Auto immune system compromised?

Steroids are suppressing our auto immune system, so are we at greater risk of Colonovirus? I am only on 5mg but am so achey again l was thinking of putting...

Steroids are suppressing our auto immune system, so are we at greater risk of Co...

Trulyscrumpious

•5 years ago

4 Replies

Forgot to take Prednisone

Well, I'm never going to forget to take my prednisone again!! In in agony tonight. Should I leave it until tomorrow morning to have my medication as it is...

Well, I'm never going to forget to take my prednisone again!! In in agony tonigh...

Kathrynt18

•5 years ago

32 Replies

Ways to clean your Home Deliveries to reduce your risks

Many people are concerned about how to reduce their risk of exposure to virus or bacteria , including Covid 19 , from shopping and postal deliveries coming...

Many people are concerned about how to reduce their risk of exposure to virus or...

Blearyeyed

•5 years ago

34 Replies

My Story with pmr/GCA - Ragnar (Sweden)

Not very often a person writes about a successful tapering, so I decided to post my story. When PMRpro describes the DSNS method of tapering prednisone, she...

Not very often a person writes about a successful tapering, so I decided to pos...

Domstad

•5 years ago

25 Replies

Hesitant to take a higher dose of prednisone. Symptoms returning.

PMR since 2018 and on Pred since July 2018. Rheumatologist wants me to taper and go off. I’m at 2.5mg., BUT am off work because I felt heaviness and fatigue....

PMR since 2018 and on Pred since July 2018. Rheumatologist wants me to taper and...

Heinrich7

•5 years ago

4 Replies

🌈 HAPPY MOTHERS DAY🌈

🌈🌼🌈🌼🌈🌼🌈🌼🌈🌼🌈🌼🌈🌼🌈🌼🌈🌼🌈🌼🌈🌼🌈🌼🌈🌼🌈🌼🌈🌼🌈 HAPPY MOTHER'S DAY To all Forum Mummy's , Aunts , Grandma's , Substitute Mums ( whatever age...

🌈🌼🌈🌼🌈🌼🌈🌼🌈🌼🌈🌼🌈🌼🌈🌼🌈🌼🌈🌼🌈🌼🌈🌼🌈🌼🌈🌼🌈🌼🌈 HAPPY MOTHER'S D...

Blearyeyed

•5 years ago

10 Replies

PMR vs Hyperparathyroidism

PMR vs Hyperparathyroidism I have had PMR for over 2 years. After other issues came up I also got dx with HPT and the doc says it can mimic PMR and I need to...

PMR vs Hyperparathyroidism I have had PMR for over 2 years. After other issues ...

ShannonT

•5 years ago

13 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for March 2020

NHS England letter for the vulnerable: If you haven't had one

Good coming out of bad: Welsh inventions for the NHS (and us)

Cleaning food from a home delivery during the Coronavirus

******WORRIED RE COVID AND YOUR RISK....What is your risk score...USE THIS IMAGE AND/LINK ....replies are turned off now. 👍😊

Criteria for at risk - Rheumatology (2)

Criteria for at risk Rheumatology

Has anyone with PMR experienced flushing of the face? My cheeks will randomly get blood red!

Staying at home? Bored yet?

At home

COVID CHAT - Tuesday 24th March STAY AT HOME.. +++++++++++++++++++++++PLEASE READ ALL LINKS BELOW BEFORE ASKING QUESTIONS PLEASE

NHS Text... Not even a peck on the cheek from the old girl

Tapering Pred.

Shielded category and coronavirus

Bowel concerns

Self-isolating? Posters for your front door

Help please !

Covid-19 Information for patients with vasculitis from Vasculitis UK

Tocilizumab

Lifting spirits

Exercise at home

My family joy~~

Regular Blood Tests

Being selfish it’s all about me

Auto immune system compromised?

Forgot to take Prednisone

Ways to clean your Home Deliveries to reduce your risks

My Story with pmr/GCA - Ragnar (Sweden)

Hesitant to take a higher dose of prednisone. Symptoms returning.

🌈 HAPPY MOTHERS DAY🌈

PMR vs Hyperparathyroidism

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