I was diagnosed with PMR in Nov 15 went to bed perfectly OK and couldn't get out of bed or put my socks on in the morning, and also had pains in my jaw. I went to see my GP in the morning,had a chest x ray at13.00, and saw a rheumatologist that afternoon
(a good example of GP's being aware of the problems of GCA], also had a temporal biopsy a week later which was negative. I was put on 20mg Pred/day and the pain went immediately.
During this year since April have been reducing the Pred and got down to 5mg/day when the pains in my thighs and top of my shoulders came back, GP put me back on 10mg/day but pains still exist although at a bearable level I take Paracetamal sometimes.
Have also had some jerking of muscles in my right arm and shoulder which is controlled with Diazapan., and was referred to a Neurologist who wants me to have a brain scan in case of Parkinsons!
Has anyone else had this jerking of muscles as I think there is a connection with the PMR, would be very pleased to know as it is rather worrying. All these problems are being suffered by someone who has been long distance cycling for years and can't even get on a bike anymore!!