Diagnosed Dec 15. 30 mg of Prednisone took pain away instantly. Doc reduced the dose by half and I had full flare. Back up to 20 mg but had to stop as swelling from Prednisone caused such major edema that my breathing was affected. Changed to 4mg of Dexamethasone 2 weeks ago. I now wake up at 3:00 am every morning and the pain is coming back in epic proportions. Round the hips and down thighs now being the worst. Lack of sleep and increased pain are dragging down my energy and mood. I feel like a hypochondriac but where else does one turn for help. I am on an anti muscle spasm drug, a diuretic, T3 (tylenol and codeine). Should add that son 43 was diagnosed with ankylosing spondylitis 2 yrs ago. My 72 birthday is 1 week away. If the pain is getting worse, should meds be increased. My ESR went from 50 down to 23 since I started all this, so I don't understand the increased pain.
This is a lonely voice calling out from the depths of the Canadian west. As PMR is essentially a european thing, and I am a brit by birth, there is no support here for PMR and you folks are my only guides with this journey. Thanks for letting me go on a bit.