Hello everyone, I have been on Predisolone since 28th October (20mg a day) recently dropped to 15mg. I have my first rheumy appointment at my local hospital on Tuesday and wondered what sort of questions I should ask please?
I believe from what I have read and my symptoms that I have PMR. Back and for doctors since April last year with severe shoulder and back pain, extreme difficulty getting out of bed, terrible paid turning over in bed, hip pain waking me up at night, unable to lie on back, pain then down buttocks and back of thighs, etc. lived on co codamel. After changing GP surgeries my new doctor sent me straight to the acute emergency dept at the hospital where a consultant felt 90% sure I had PMR and put me on steroids immediately. Within 3 days I felt 70% better. I attend a restorative yoga class once a week and also an osteopath to help keep the pain and tension in my shoulders at bay to enable me to work.
On a recent visit to my GP although my ESR had dropped back down from 63 to 8 my CRP from 25 to 3. However the GP was very concerned that my haemoglobin had dropped to 10.8 and it should be 13 and prescribed 600mg of ferrous sulfate which seems to have slightly improved my shoulders.
My personal goal is to get off the steroids as soon as possible as I now need a flaming knee replacement operation and they will not operate whilst I am steroids. However my knee is not too painful (possibly due to the steroids) and know it is important to reduce steroids slowly.
Any advice on what I should be asking would be appreciated.