I was diagnosed with PMR/GCA in May 2015. I started on Prednisone 40mg, but went up to 60mg when I had a GCA flare. It's been a rocky road since May. I just started on Acterma IV infusion 2 weeks ago. There are some exciting clinical trials going on with this medication being used for GCA. Acterma has been available for juveniles and adults with rheumatoid arthritis. The trials are showing some pretty significant remission with GCA.
Today, I decreased my dosage from 40-35mg of Prednisone. I so hope to be able to slowly decrease the Prednisone while taking the Acterma. I've never been able to get below 40mg of Prednisone without GCA flares.
I was in a car accident January 2, and have a whiplash as a result of the accident.
I've experienced an increase in frontal/temporal headaches, and upper back,
Left shoulder and neck pain. It has been difficult to sort out what is causing the symptoms, as these are areas where I experience a lot of pain.
I started some physical therapy yesterday for the whiplash. Very gentle stretches and posture exercises.
I have learned so much from this forum, and all of your experiences. I can't thank you enough for your commitment to this group of people. We live and learn so much from one another.