Posts - PBC Foundation | HealthUnlocked

PBC Foundation

9,391 members • 8,002 posts

All posts for November 2019

Sharing, caring wife 😂

Hi everyone 😊 apologies for not being on very much recently. I’ve been busy with my wee hobby. I’m heading to sunnier climates on Wednesday, so have been...

Hi everyone 😊 apologies for not being on very much recently. I’ve been busy wit...

P13jne

•4 years ago

12 Replies

Antibiotics

Is doxycycline safe for dental infection if you have pbc?

Drug

•4 years ago

15 Replies

Giving Thanks

All, It's Thanksgiving here and I wanted to express my gratitude for all of you! What a gift to have this space where we can share our ups and downs and our...

All, It's Thanksgiving here and I wanted to express my gratitude for all of you!...

EileenUSA

•4 years ago

11 Replies

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Pain in the liver

Hi all, I was diagnosed with PBC some years ago and I have been relatively symptom free. However, a month ago, just after visiting my consultant, I began to...

Hi all, I was diagnosed with PBC some years ago and I have been relatively symp...

Mayflower53

•4 years ago

6 Replies

Alk P

ALK P #’s down to 116 !! Yay me ! 🙂

1155Cat

•4 years ago

13 Replies

Increased urination with urso

Just wondered if anyone else has experienced having to go to the loo at least twice an hour when taking Urso. Very inconvenient! Last night was up 4 times...

Just wondered if anyone else has experienced having to go to the loo at least tw...

JenniferTh

•4 years ago

6 Replies

MY NHS APPOINMENT NEXT WEEK

Hi guys, Eventually got my NHS appointment through for next week but need some help with interpreting my recent blood test results ...They were lower than...

Hi guys, Eventually got my NHS appointment through for next week but need some ...

Cathycomehome

•4 years ago

3 Replies

More medications

Hi can anyone give me a loan of a magic wand please? I’ve been advised to take a new medication to help with the dreaded itch. It’s called Colesevelam 625mg....

Hi can anyone give me a loan of a magic wand please? I’ve been advised to take a...

P13jne

•4 years ago

19 Replies

Biopsy results by post?

Does everyone receive liver biopsy results by post or does that mean it's good news my consultants secretary told me my biopsy results are ready and a letter...

Does everyone receive liver biopsy results by post or does that mean it's good n...

J468468

•4 years ago

2 Replies

Eosinophils!

Hi all, I have just been told that I have a raised eosinophils count (0.9) and that if it is raises again then I will be referred to heamotology. From what i...

Hi all, I have just been told that I have a raised eosinophils count (0.9) and t...

Lost1977

•4 years ago

8 Replies

Tylenol?

Does anyone know if Tylenol PM is safe to take (2xs/wk)? I know ibuprofen is our enemy, but not sure about Tylenol, especially to help sleeplessness/getting to...

Does anyone know if Tylenol PM is safe to take (2xs/wk)? I know ibuprofen is our...

meginaromas

•4 years ago

12 Replies

Life insurance/health insurance in UK. Please advise!!! Thank you.

Dear all, I'm finally getting my head around my PBC diagnosis, it took me almost 2 years to accept it but I think I'm there. I have to think about the future...

Dear all, I'm finally getting my head around my PBC diagnosis, it took me almost...

Beatris03

•4 years ago

6 Replies

Ox bile

Does anyone know if you can take oxbile with ursofalk. . I don’t have a gallbladder and find it hard to digest fats. I take a digestive enzyme and HCL

Does anyone know if you can take oxbile with ursofalk. . I don’t have a gallblad...

Gwelos

•4 years ago

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Continued nausea

I can’t find past posts but lately my alp went up by 50 points and I’m nauseated all the time.... part of pbc?

I can’t find past posts but lately my alp went up by 50 points and I’m nauseated...

Pamela4475

•4 years ago

24 Replies

Newly diagnosed .....been stuck indoors 5 weeks , is this normal

I'm asking for help again !!!! Newly diagnosed, had private consultation and now waiting for NHS appointment . The problem is other than going to the hospital...

I'm asking for help again !!!! Newly diagnosed, had private consultation and no...

Cathycomehome

•4 years ago

11 Replies

Life Insurance in UK

Life Insurance in UK Does anyone have anyone have any recommendations for Life Insurance for PBC’ers Any leads would be greatly appreciated. Many thanks

Life Insurance in UK Does anyone have anyone have any recommendations for Life I...

Pokerhontas75

•4 years ago

3 Replies

Dr advice

Is there any dr on this site that can provide their thoughts on whether a PBC patient should get a flu vaccine? I am really on the fence and need some advice....

Is there any dr on this site that can provide their thoughts on whether a PBC pa...

Elliweim

•4 years ago

7 Replies

Can I take Cetirizine tablets for allergic rhinitis? Thank you

Hello everyone! Every couple of years, always in November my nose gets blocked and I can only breathe through my mouth. Very annoying, cannot sleep well,...

Hello everyone! Every couple of years, always in November my nose gets blocked a...

Beatris03

•4 years ago

3 Replies

Peripheral Neuropathy in PBC

I have PBC stage 2 just diagnosed with PN started with numb tingling painful toes feet legs fingers hands. Curious if anyone else here has these symptoms?

I have PBC stage 2 just diagnosed with PN started with numb tingling painful toe...

Michiganpbc

•4 years ago

28 Replies

Pip awarded but

I know I should be happy I've been awarded pip,but they have decided I only get standard care part, I didnt get mobility, they gave me a score of 4 for that...

I know I should be happy I've been awarded pip,but they have decided I only get ...

Pinkcrush

•4 years ago

1 Reply

ASP Test

Can anyone tell me what this is, was tested and again, like all my other numbers. is normal,

Can anyone tell me what this is, was tested and again, like all my other numbers...

Jaycee

•4 years ago

7 Replies

Pbc

Pbc /Aih Hi everyone had to stop treatment and then went on holiday Been poorly with asthma and sinus but ok Hope everyone else ok ... has anyone else had to...

Pbc /Aih Hi everyone had to stop treatment and then went on holiday Been poorly...

janine541

•4 years ago

6 Replies

PBC and Pancreatic cancer link

Hi guys,i was diagnosed with pbc 3 years ago my older brother and sister have since been diagnosed with pbc also. My brother gas now been diagnosed with...

Hi guys,i was diagnosed with pbc 3 years ago my older brother and sister have s...

Marysla

•4 years ago

7 Replies

Plasmapheresis not helping

Hello all just following up on here as I'm in tears not only due this being the day my sister transitioned in 2104 just 3 months after my mommy but I'm...

Hello all just following up on here as I'm in tears not only due this being the ...

genj65

•4 years ago

28 Replies

Trip to West Africa

Hello everyone! I need your advice please. Has anyone travelled to Africa since diagnosed? I'm planning a trip to Senegal and I need a few vaccines (yellow...

Hello everyone! I need your advice please. Has anyone travelled to Africa since ...

Beatris03

•4 years ago

10 Replies

Recommendations for clinics in UK and Canada for a patient with PBC

Dear All, could you recommend some good liver clinics in UK and Canada for a patient with PBC? Thank you.

Dear All, could you recommend some good liver clinics in UK and Canada for a pat...

Chaqeh

•5 years ago

2 Replies

Dry mouth

Hi everyone, just a quick question. I know pbc can cause dry eyes and mouth but mine have never been as bad as they are at the moment. I have really itchy eyes...

Hi everyone, just a quick question. I know pbc can cause dry eyes and mouth but ...

Spanishnan

•5 years ago

15 Replies

Never ever sign a DNR——-

Just putting this on blast if I can help one person not go through what my poor mother did in a hospital setting I will try my hardest. NEVER EVER sign a DNR...

Just putting this on blast if I can help one person not go through what my poor ...

Arlie

•5 years ago

7 Replies

Holiday insurance no longer a problem

Holiday Insurance annual nightmare for some not for me thank goodness once again I had a quote from Insureancewith covering PBC along with other ailments for...

Holiday Insurance annual nightmare for some not for me thank goodness once again...

Biddyb

•5 years ago

2 Replies

CBT OIL

Does anybody take CBT oil. I have been advised that people with PBC should not take this. If you do let me know the result please. ShazzieP

Does anybody take CBT oil. I have been advised that people with PBC should not t...

shazziepx

•5 years ago

14 Replies

Posts - PBC Foundation | HealthUnlocked

PBC Foundation

All posts for November 2019

Sharing, caring wife 😂

Antibiotics

Giving Thanks

Pain in the liver

Alk P

Increased urination with urso

MY NHS APPOINMENT NEXT WEEK

More medications

Biopsy results by post?

Eosinophils!

Tylenol?

Life insurance/health insurance in UK. Please advise!!! Thank you.

Ox bile

Continued nausea

Newly diagnosed .....been stuck indoors 5 weeks , is this normal

Life Insurance in UK

Dr advice

Can I take Cetirizine tablets for allergic rhinitis? Thank you

Peripheral Neuropathy in PBC

Pip awarded but

ASP Test

Pbc

PBC and Pancreatic cancer link

Plasmapheresis not helping

Trip to West Africa

Recommendations for clinics in UK and Canada for a patient with PBC

Dry mouth

Never ever sign a DNR——-

Holiday insurance no longer a problem

CBT OIL

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