Posts - PBC Foundation | HealthUnlocked

PBC Foundation

9,484 members•8,374 posts

All posts for November 2016

I am new here. Diagnosed with PBC in 2002 maybe starting Ocaliva soon.

Hello all, I was diagnosed with PBC back in 2002 at the age of 21. I have been taking close to 1000 mg of urso everyday since then. Maybe 6 years into it my...

Hello all, I was diagnosed with PBC back in 2002 at the age of 21. I have been ...

Nicaganew

•8 years ago

9 Replies

Normal LFT after Urso for One Month

Hi all Had my first blood tests after starting urso and all now within normal range! Can't believe it. Only ALP ever been raised was 135/130 and then 157/130...

Hi all Had my first blood tests after starting urso and all now within normal ra...

Chazzy

•8 years ago

4 Replies

PBC and other autoimmune conditions

I have had PBC since 2004 and yesterday went for a Sheerscan, my consultant doesn't think a biopsy will change anything. In the last six months have had a...

I have had PBC since 2004 and yesterday went for a Sheerscan, my consultant does...

Millymollymandy57

•8 years ago

19 Replies

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Liver Biopsy

Good evening everyone. Hope your all keeping well. Just wondered if any one has had a liver biopsy and what it was like. Im having one done on Thursday and...

Good evening everyone. Hope your all keeping well. Just wondered if any one has ...

donnathompson

•8 years ago

25 Replies

Upper stomach pains, nausea & vomiting

I've recently been having bouts of significant pain/discomfort in stomach, direct center not the usual right sided discomfort I get. This comes on fairly...

I've recently been having bouts of significant pain/discomfort in stomach, direc...

moepag

•8 years ago

9 Replies

Possible PBC noob

Itching for 6 months, unbearable at times. Fatigue for about a year. Seriously high liver functions, high c-reactive protein, normal glucose, and mid-range...

Itching for 6 months, unbearable at times. Fatigue for about a year. Seriously h...

rexolio

•8 years ago

9 Replies

Pregnancy and pbc

Hi all, I am hoping to try for another baby soon. I am on ursofalk for elevated liver enzymes. I am AMA negative but my consultant believes I am very early...

Hi all, I am hoping to try for another baby soon. I am on ursofalk for elevated ...

lauralocks123

•8 years ago

4 Replies

Severe insomnia

Does anyone else suffer from never ending insomnia ? I seriously never sleep. My brain will not shut down.

Does anyone else suffer from never ending insomnia ? I seriously never sleep. M...

Bogeeman

•8 years ago

8 Replies

New here and feeling uninformed by my GP

I have just been diagnosed with PBC and have been reading through comments and suggestions. My GP has told me nothing and I have no idea what my blood test...

I have just been diagnosed with PBC and have been reading through comments and s...

fred6577

•8 years ago

36 Replies

Itching and slightly elevated bilirubin

Hello everyone i am new here. From last two month i am suffering from itching all over by body. My all LFTs are within range except bilirubin which is 1.8...

Hello everyone i am new here. From last two month i am suffering from itching al...

Shanky2017

•8 years ago

2 Replies

Paracetamol! !

I started with a cough 2 weeks ago, no sleep, tried Cough medicine, made me feel worse, now I also have a full blown cold, I haven't taken anything else with...

I started with a cough 2 weeks ago, no sleep, tried Cough medicine, made me feel...

Sandie1

•8 years ago

8 Replies

thank you for allowing me to join.

i was diagnosed 4 yrs ago. stage 1-2. I'm on URSO And don't have many complaints. Obe thing I WOULD like to know is if any you have really dark URINE??

i was diagnosed 4 yrs ago. stage 1-2. I'm on URSO And don't have many complaints...

juliepervin

•8 years ago

11 Replies

High bilirubin

Guys I am freaking out.... did full Fbc and liver test and all came out normal but for my total bilirubin .... 54 total and 11 direct..... can someone guide...

Guys I am freaking out.... did full Fbc and liver test and all came out normal b...

Jfdc

•8 years ago

1 Reply

Joint pain

Hi all for the last 4 weeks i have been suffering with painful joints, fingers, wrists and ankles so bad that it is waking me up at night, just wondered if...

Hi all for the last 4 weeks i have been suffering with painful joints, fingers, ...

tinajohnston

•8 years ago

9 Replies

Someone, please pass the magic wand to me

For over two weeks now i have had the pain in my upper right side,now i have the itching which by all accounts is sending me doo lally. Is there anyone here...

For over two weeks now i have had the pain in my upper right side,now i have the...

Julymoon

•8 years ago

11 Replies

Itchy bits

I have and itch on my arms, legs and most of my body which are appearing with what looks to be insect bites but I haven't been bitten recently.

I have and itch on my arms, legs and most of my body which are appearing with wh...

andy788

•8 years ago

5 Replies

GP210 positive- scared

hello everyone! i am so worried. I'm 44 and in a routine test done 20 days ago, i had positive ANA and positive GP210. I am so worried as from all the readings...

hello everyone! i am so worried. I'm 44 and in a routine test done 20 days ago, ...

adaf

•8 years ago

6 Replies

Early retirement

I am finally being considered for early retirement and would appreciate any advice as to what to write on the forms I have been sent. I have no idea where to...

I am finally being considered for early retirement and would appreciate any advi...

Used2be

•8 years ago

7 Replies

Liver biopsy results

Liver biopsy results show focal intraepithelial lymphocytes. They say this is mild and nonspecific, but given positive AMAs, may represent early or minimal...

Liver biopsy results show focal intraepithelial lymphocytes. They say this is mi...

skirsche

•8 years ago

3 Replies

Help

I've just been diagnosed with pbc aged 18, it was just picked up on a routine blood test and I'm really struggling to come to terms. There's so much info on...

I've just been diagnosed with pbc aged 18, it was just picked up on a routine bl...

Lillibet987

•8 years ago

15 Replies

Dithering GP but I'm in perpetual panic

I have under active thyroid that has been pretty badly medicated for 10 years. I get private bloods done and GP always disagrees - runs his own - and tells me...

I have under active thyroid that has been pretty badly medicated for 10 years. I...

luley

•8 years ago

13 Replies

PBC & Statins

I was just wondering if anyone takes statins as well as Urso. I stopped taking my statins once I was diagnosed and put on Urso. I have read that statins aren't...

I was just wondering if anyone takes statins as well as Urso. I stopped taking m...

Hidden

•8 years ago

19 Replies

How do you know what stage you are at with PBC

My consultant has never mentioned what stage I was at with PBC. I was really intrigued by a post I read regarding tanning because I went on holiday in april...

My consultant has never mentioned what stage I was at with PBC. I was really int...

Yvonnetrowman56

•8 years ago

16 Replies

Swollen stomach pbc cirrhosis

Hi all My GP thinks I might have water on stomach as it is swollen so going for an ultra sound..if I have what is the first step,? I know it is often durietics...

Hi all My GP thinks I might have water on stomach as it is swollen so going for ...

Bobbycat12

•8 years ago

20 Replies

Not on treatment for PBC

Hi I was diagnosed with PBC six months ago I had been unwell for months but I also suffer from Ulcerative Colitis and Entropathic Arthritis for 10 years. I...

Hi I was diagnosed with PBC six months ago I had been unwell for months but I al...

Beeverycareful

•8 years ago

7 Replies

Food for thought .... warning is quite long ... but worth the time 😊

https://youtu.be/bQclmTZuPL4h

AliPhillips

•8 years ago

5 Replies

Pregnancy and PBC

Hi, I am 36 and recently diagnosed. Waiting for scan but bloods currently showing normal liver function. My Dr isn't very informative and has already indicated...

Hi, I am 36 and recently diagnosed. Waiting for scan but bloods currently showin...

njc67

•8 years ago

10 Replies

Ursofalk reassurance needed

Hi guys, I have been on ursofalk for 2 weeks now and been taking 3 capsules at night, 750mg total. It's causing me to have bad cramping and loose stools/...

Hi guys, I have been on ursofalk for 2 weeks now and been taking 3 capsules at n...

lauralocks123

•8 years ago

7 Replies

Excessive ,long lasting 'suntan'

Hi ,I was diagnosed with pbc 2 years ago,thought to have started about 7 years ago. No real symptoms with it so far,thankfully, but have noticed skin changes....

Hi ,I was diagnosed with pbc 2 years ago,thought to have started about 7 years a...

emerich

•8 years ago

21 Replies

Best foods to boost immune system

For all those wishing to boost their health through diet, it's easy to tell which foods are good for health, but which should be avoided which might increase...

For all those wishing to boost their health through diet, it's easy to tell whic...

KatherineM_PBC

•8 years ago

7 Replies

Posts - PBC Foundation | HealthUnlocked

PBC Foundation

All posts for November 2016

I am new here. Diagnosed with PBC in 2002 maybe starting Ocaliva soon.

Normal LFT after Urso for One Month

PBC and other autoimmune conditions

Liver Biopsy

Upper stomach pains, nausea & vomiting

Possible PBC noob

Pregnancy and pbc

Severe insomnia

New here and feeling uninformed by my GP

Itching and slightly elevated bilirubin

Paracetamol! !

thank you for allowing me to join.

High bilirubin

Joint pain

Someone, please pass the magic wand to me

Itchy bits

GP210 positive- scared

Early retirement

Liver biopsy results

Help

Dithering GP but I'm in perpetual panic

PBC & Statins

How do you know what stage you are at with PBC

Swollen stomach pbc cirrhosis

Not on treatment for PBC

Food for thought .... warning is quite long ... but worth the time 😊

Pregnancy and PBC

Ursofalk reassurance needed

Excessive ,long lasting 'suntan'

Best foods to boost immune system

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