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PBC Foundation

9,387 members • 7,992 posts

All posts for November 2014

WORRIED MUM

My daughter has had a lot of blood tests done and all clear, but the ama was positive. She had lfts etc and all fine and she has no symptons. She has been told...

My daughter has had a lot of blood tests done and all clear, but the ama was pos...

Winnie1955

•9 years ago

11 Replies

Bad days

Hi everyone, am kinda new at this. Was just recently diagnosed with pbc and still on a learning curve. Am on urso and was told it was for the rest of my...

Hi everyone, am kinda new at this. Was just recently diagnosed with pbc and sti...

Macushla

•9 years ago

12 Replies

First consultation since diagnosis

Hi Am due to go for my first consultation tomorrow since being diagnosed in July of this year. Just wondering if anyone would suggest any questions that would...

Hi Am due to go for my first consultation tomorrow since being diagnosed in July...

Jayne1863

•9 years ago

7 Replies

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Cystitis sachets ok with Urso?

Hi. Does anyone suffer with cystitis? And if so, does anyone know whether taking the over-the-counter sachets which you dissolve in water are ok with Urso/PBC?...

Hi. Does anyone suffer with cystitis? And if so, does anyone know whether taking...

KK72

•9 years ago

2 Replies

Any advice on bit d and k?

Recently been back to see my consultant.everything good except pain -oh what pain-in legs.although I've been told I've recently developed bursitus I've had...

Recently been back to see my consultant.everything good except pain -oh what pai...

cazz22

•9 years ago

21 Replies

How come

Morning fatigue still persists despite negative AMA result? AMA is now negative, will it be positive the next test?

Morning fatigue still persists despite negative AMA result? AMA is now negative,...

Batatis

•9 years ago

5 Replies

AMA test showed negative

I am wondering why I am still on ursofalk if my AMA test showed negative recently.

I am wondering why I am still on ursofalk if my AMA test showed negative recentl...

Batatis

•9 years ago

2 Replies

Blood in poo

Hi everyone I have pbc and osteoporosis I was diagnosed a year ago I have been up and down with all typical symtoms itching fatigue vomiting diarrhoea and...

Hi everyone I have pbc and osteoporosis I was diagnosed a year ago I have been u...

sophie666

•9 years ago

3 Replies

Nose Bleeds?

Hi, I have been getting short lived, light nose bleeds probably once a week/fortnight for quite a long time although they are not serious, I wondered if anyone...

Hi, I have been getting short lived, light nose bleeds probably once a week/fort...

Mayflower53

•9 years ago

3 Replies

Stomach ulcers

I am so worried and I feel this site is the only place to turn to for information and advice. I have been suffering with an extreme burning sensation in my...

I am so worried and I feel this site is the only place to turn to for informatio...

MoPo

•9 years ago

6 Replies

Other symptoms?

I have had pbc and antiphospholipid syndrome for 10 years and am doing well.I have other symptoms now and wanted to know if other people have similar...

I have had pbc and antiphospholipid syndrome for 10 years and am doing well.I h...

jane1964

•9 years ago

6 Replies

So tired of people not "getting" it.

I know I have heard many people lament about this on here, but I guess I have had this disease long enough now that its getting me down. I'm tired of having...

I know I have heard many people lament about this on here, but I guess I have ha...

NotorDJP

•9 years ago

16 Replies

PBC and Pregnancy risks??

Hi, I was diagnosed woth PBC 2 years ago, I have no symptoms and i'm not on any medication. Myself and my husband are going to see my consultant on the 24th...

Hi, I was diagnosed woth PBC 2 years ago, I have no symptoms and i'm not on an...

Gemma01

•9 years ago

8 Replies

PBC

Hi, I just was wondering if anyone in the US has tried to be put on Social Security Disability that was diagnosed with PBC? I was just laid off. And, I can't...

Hi, I just was wondering if anyone in the US has tried to be put on Social Secur...

uandisharing

•9 years ago

14 Replies

is transplant possible after discovery of tumour?

I'm new to this board and wondered if anyone has any experience of having been told they are at the point of needing to be referred for transplant to then be...

I'm new to this board and wondered if anyone has any experience of having been t...

PBCSheila

•9 years ago

11 Replies

Queen Elizabeth Hospital Birmingham

Hi All Here I am again do any of you in our Area go to the QE if so which consultant do you see,I have been given the chance to go there waiting for my...

Hi All Here I am again do any of you in our Area go to the QE if so which consu...

cavi

•9 years ago

23 Replies

urso and pbc

I have been on urso for 14 yrs. it went from $55 for a 3 mo supply to $800 and that's half price! My dr took me off urso for a month. my test results over...

I have been on urso for 14 yrs. it went from $55 for a 3 mo supply to $800 and t...

jpickle

•9 years ago

17 Replies

IgA high with ASMA... normal?

whenever I've looked for ASMA positive info it seems that there is a supposition that IgG is also raised, if it isn't and IgA is what would that mean? I was...

whenever I've looked for ASMA positive info it seems that there is a supposition...

kizzy40

•9 years ago

2 Replies

Carvedilol

Hi All Anyone on this medication for small Varices and Portal Hypertention if so what dose do you take and any side affects lightheaded dizziness if so how...

Hi All Anyone on this medication for small Varices and Portal Hypertention if ...

cavi

•9 years ago

2 Replies

Schisandra

Hi all, Just been told about a Chinese remedy schisandra which is suppose to be good for liver, has anyone tried it ? Angela xx

Hi all, Just been told about a Chinese remedy schisandra which is suppose to be...

Hidden

•9 years ago

6 Replies

Hi i have not wrote anything on here before. But i could do with a bit of support no body in my family understand

I have two types of epilepsy and primary billary schirrocis of the liver and ashma and mechanical back pain i struggle everyday i try to hide a lot of my...

I have two types of epilepsy and primary billary schirrocis of the liver and ash...

mitchell007

•9 years ago

2 Replies

Menopause

Think I've asked this question before so excuse me repeating myself.....I blame it on brain fog! Ha Since coming off hrt 6 months ago my hot flushes and night...

Think I've asked this question before so excuse me repeating myself.....I blame ...

spoul

•9 years ago

7 Replies

Urso

OK bloods aren't good being monitored. Chemist can't supply my urso. Off to gp's wish me luck. Worried.com.

OK bloods aren't good being monitored. Chemist can't supply my urso. Off to gp's...

teddybear7

•9 years ago

4 Replies

Urso and cholesterol lowering drugs?

Hello, wondered whether anyone could tell me whether they are on urso as well as cholesterol tablets ? I had transplant last year for pbc and post transplant...

Hello, wondered whether anyone could tell me whether they are on urso as well as...

mclachlang

•9 years ago

6 Replies

Hi all

Morning all. Been a long time since I've wrote a post. Feeling proud off myself at the moment , managed to lose 3 stone on weight and actually doing a bit of...

Morning all. Been a long time since I've wrote a post. Feeling proud off myself ...

donnathompson

•9 years ago

8 Replies

Hello looking for help with a painful liver

I'll try be brief, I'm an ex alcoholic quit 2012 liver levels dropped to almost normal...and then began to rise. I have bad flank pain for which I took...

I'll try be brief, I'm an ex alcoholic quit 2012 liver levels dropped to almost ...

kizzy40

•9 years ago

18 Replies

Posts - PBC Foundation | HealthUnlocked

PBC Foundation

All posts for November 2014

WORRIED MUM

Bad days

First consultation since diagnosis

Cystitis sachets ok with Urso?

Any advice on bit d and k?

How come

AMA test showed negative

Blood in poo

Nose Bleeds?

Stomach ulcers

Other symptoms?

So tired of people not "getting" it.

PBC and Pregnancy risks??

PBC

is transplant possible after discovery of tumour?

Queen Elizabeth Hospital Birmingham

urso and pbc

IgA high with ASMA... normal?

Carvedilol

Schisandra

Hi i have not wrote anything on here before. But i could do with a bit of support no body in my family understand

Menopause

Urso

Urso and cholesterol lowering drugs?

Hi all

Hello looking for help with a painful liver

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