Posts - PBC Foundation | HealthUnlocked

PBC Foundation

9,389 members • 7,995 posts

All posts for February 2023

Human Betaretrovirus and PBC - can antiretrovirals fix us?

Hello all What do people think please about the research on PBC as an infectious disease and the potential of antiretroviral drugs? There was a flurry of...

Hello all What do people think please about the research on PBC as an infecti...

•1 year ago

iron tablets and raising lFT

4 years diagnosed, stopped responding to Urso . I have been started on Bezalip after a year my lFT are raising again , I have been taking iron tablet’s could...

4 years diagnosed, stopped responding to Urso . I have been started on Bezalip ...

•1 year ago

Atkins or Keto?

It's been a long time since I've checked in. I hope everyone is hanging in there! Lot's of new faces/names. I'm just wondering if anyone has attempted the...

It's been a long time since I've checked in. I hope everyone is hanging in there...

•1 year ago

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PBC/ADD/Adderall/Fatigue

Does anyone take Adderall? I have ADD and in the past have taken 5mg adderall when I needed to focus. Now in addition to that, I use it when fatigue gets in...

Does anyone take Adderall? I have ADD and in the past have taken 5mg adderall wh...

•1 year ago

What I find helps my itch…

Hi there, In case this helps anybody else, as the only (annoying) symptom I get on a daily basis is the itch, is antihistamines. In particular I take benedryl...

Hi there, In case this helps anybody else, as the only (annoying) symptom I get...

•1 year ago

PBC AND NAFLD

HI what did your DR specialist say about PBC AND NAFL? there is not much about this. I have both. One specialist said eat what you want, other said no...

HI what did your DR specialist say about PBC AND NAFL? there is not much about t...

•1 year ago

Urso has to be the correct weight ratio. Mine was wrong for years make sure yours is correct. All the best!

•1 year ago

Fibroscan and ultrasound

Hi friends Haven’t posted for a long time and thought I’d feed back on my recent experiences of ultrasound and fibroscans - two of them because the first...

Hi friends Haven’t posted for a long time and thought I’d feed back on my recen...

•1 year ago

AMA positive with itchy skin

Not gonna lie, my head is still spinning since being AMA positive. I’ve recently had a fibro scan with score 4.7 which I believe is a good result. Of course...

Not gonna lie, my head is still spinning since being AMA positive. I’ve recently...

•1 year ago

Has anyone been able to lower ALP and GGT without meds?

Just curious if anyone has managed to do this through life style changes, diet and exercise, maybe during the early stages of PBC?

Just curious if anyone has managed to do this through life style changes, diet a...

•1 year ago

Advice about getting a fibroscan

hi there, I’m finding this site so useful. So my question is about fibroscans and particularly how to get one in Edinburgh, scotland, as that’s where I live....

hi there, I’m finding this site so useful. So my question is about fibroscans a...

•1 year ago

milk thistle and PBC?

hi - just wondering if anyone take milk thistle with PBC? if so does it matter what stage your PBC is?

hi - just wondering if anyone take milk thistle with PBC? if so does it matter w...

•1 year ago

Low white blood cells and platelets

hi there, I’m 44 year old female living in Scotland and my recent bloods are pointing to PBC. I’m still waiting on my AMA results but given my raised ALP and...

hi there, I’m 44 year old female living in Scotland and my recent bloods are po...

•1 year ago