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PBC Foundation

9,386 members • 7,990 posts

All posts for May 2019

Antibiotics

Had a tooth pulled and was given clyndamycin for infection. Was wondering if that antibiotic is too strong for the liver?

Had a tooth pulled and was given clyndamycin for infection. Was wondering if tha...

Ballgrl

•5 years ago

17 Replies

Epstein Barr virus.

Hello all. I have a feeling that PBC may be triggered by the Epstein Barr virus ( ie Mono) which most of us have in north america. I say this because my...

Hello all. I have a feeling that PBC may be triggered by the Epstein Barr virus ...

shared

•5 years ago

6 Replies

Weight

Hi there Really struggling to loose weight lost 3 stone before I was diagnosed with pbc but really struggling eating all the right things does anyone else...

Hi there Really struggling to loose weight lost 3 stone before I was diagnosed...

Purdy2017

•5 years ago

18 Replies

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Possible PBC?

Hello everyone! I am a 40 yr old woman with 2 children under 5 and despite my best efforts I am freaking out a bit! Brief background - I had Graves as a child...

Hello everyone! I am a 40 yr old woman with 2 children under 5 and despite my be...

Gwenhw

•5 years ago

2 Replies

Sun sensitivity

Hi all, I started urso last fall after being diagnosed. I sat in the sun the other day but not that long. I got a sun burn which really surprised me. Is sun...

Hi all, I started urso last fall after being diagnosed. I sat in the sun the ot...

Flowerwh

•5 years ago

10 Replies

Cbd oil

Hi guys. I’m taking small amounts of cbd oil for joint pain. Has anyone else used cbd oil? wondering is it has any negative interactions with urso and if...

Hi guys. I’m taking small amounts of cbd oil for joint pain. Has anyone else u...

jplitt

•5 years ago

18 Replies

Observation of Abbreviations.

Hi Everyone hope you are all as well as can be. I have just read all your post to a new subscriber and I suggest we dont put the abbreviations as we know them...

Hi Everyone hope you are all as well as can be. I have just read all your post ...

Leighton56

•5 years ago

30 Replies

Hello all

Just introducing myself. I have Ménière’s disease, bad balance, fell, fractured two vertebrae, diagnosed with osteoporosis. Then diagnosed with breast cancer,...

Just introducing myself. I have Ménière’s disease, bad balance, fell, fractured...

7443jec

•5 years ago

16 Replies

Please help! I'm in need of answers..

Hello guys, I am new to this all and I am trying not to get discouraged to say the least. I am a married mother of six, and I am only 35 years old. I just...

Hello guys, I am new to this all and I am trying not to get discouraged to say t...

PBCNewbie32

•5 years ago

43 Replies

AMA

What is considered a high AMA. I was told that mine was 1 over 640. Is this high?

What is considered a high AMA. I was told that mine was 1 over 640. Is this hig...

7443jec

•5 years ago

15 Replies

Acid

I was woken up at 4 this morning it was as if my chest and throat was on fire it was like something popped and then burning started was agony has anyone else...

I was woken up at 4 this morning it was as if my chest and throat was on fire it...

Violet79

•5 years ago

6 Replies

Itchy outer ears and warm feeling

It’s been two weeks and I am having this terrible outer ears itch and warmth is coming out from them. It’s started on one then second also got affected. Slowly...

It’s been two weeks and I am having this terrible outer ears itch and warmth is ...

Mg40

•5 years ago

4 Replies

Dizziness?

Last time I went to the Walmart pharmacy to pick up my Urso the said this prescription came from a different lab. I have been on Urso 2 years now and probably...

Last time I went to the Walmart pharmacy to pick up my Urso the said this prescr...

4pjx__

•5 years ago

23 Replies

Making progress but feeling rough

Hi all I haven't posted for a long time as I'm still waiting for a definite diagnosis for PBC. After waiting 8 months I had an appointment with the consultant...

Hi all I haven't posted for a long time as I'm still waiting for a definite diag...

Palebluesky

•5 years ago

22 Replies

Ocaliva financial assistance

Had blood work yesterday and my ALP continues to be over 500 (original diagnosis 2 years ago). At my Nov. Dr's appointment I was told if ALP didn't improve...

Had blood work yesterday and my ALP continues to be over 500 (original diagnosis...

kp1234

•5 years ago

11 Replies

PCE and teeth

I have hd PBC for at least 5 yrs. My teeth are getting very loose. I was wondering if anyone went to a dentist and they considered it a medical condition...

I have hd PBC for at least 5 yrs. My teeth are getting very loose. I was wonde...

Kellybean33

•5 years ago

11 Replies

Fibroscan results

Question for those of you who have had a fibroscan. I had one with a score of 6.5 and was told I am F0-F1...Two sets of liver docs specializing in PBC have...

Question for those of you who have had a fibroscan. I had one with a score of 6....

Pamcakes718

•5 years ago

8 Replies

Urso Dosage.

Hi, Hoping somebody can help! I keep reading that Urso is usually 15mg per day... but my tablets are 250mg and my specialist/consultant put me on 4 a day, so...

Hi, Hoping somebody can help! I keep reading that Urso is usually 15mg per day.....

FairyFae

•5 years ago

13 Replies

Urso

Hi everyone, I have just had a new prescription from my GP for my urso. I have been taking the capsules but the new ones are in tablet form. Since starting...

Hi everyone, I have just had a new prescription from my GP for my urso. I have b...

Spanishnan

•5 years ago

11 Replies

Chemical reactions/Pbc

Hi, I am on watch for since 2011. I ask if this is Fibromyalgia or PBc causing my severe reactions and weakness when having any meds or preservatives. I...

Hi, I am on watch for since 2011. I ask if this is Fibromyalgia or PBc causing m...

Sdone

•5 years ago

6 Replies

PBC and edible medical marijuana

I have read conflicting reports stating marijuana improves liver conditions and other reports that say it is bad for your liver. I know this is a new frontier...

I have read conflicting reports stating marijuana improves liver conditions and ...

niknob

•5 years ago

17 Replies

Good new

My GP called to tell me although my ALT is still raised it has dropped 10 + points in a month after steadily rising over the last 12 months the only thing I...

My GP called to tell me although my ALT is still raised it has dropped 10 + poin...

Biddyb

•5 years ago

4 Replies

Possible gallstones and treatment

Yes, I am rather new to this community. 8 months ago I had an episode of severe itching to the extent I had to go to emergency clinic. With no diagnosis at...

Yes, I am rather new to this community. 8 months ago I had an episode of severe...

Sassy27

•5 years ago

7 Replies

More information

Yesterday I went to the gp with shoulder pain,ok I've had years but just thought muscle prob,but as soon as she examined me she said arthritis as so crunchy My...

Yesterday I went to the gp with shoulder pain,ok I've had years but just thought...

Pinkcrush

•5 years ago

23 Replies

Urso, correction

Sorry should read urso but my phone keeps changing it.

Twinkle26

•5 years ago

1 Reply

Reacting to urso

I have been on urso for just over two years but around two months ago I had a adverse reaction to it and I’m now no longer prescribed it. I’m to be monitored...

I have been on urso for just over two years but around two months ago I had a ad...

Twinkle26

•5 years ago

5 Replies

Anemia low iron levels

Hi does anyone have problems with their iron levels mine are always low doctor did put me on iron tablets but thay made me fill really poorly I also get quite...

Hi does anyone have problems with their iron levels mine are always low doctor d...

Purdy2017

•5 years ago

15 Replies

Pbc

Hi all I've had pbc for 2 years no symptoms as yet just dry eyes I'm looking in to getting a tatoo is there one for pbc?

Hi all I've had pbc for 2 years no symptoms as yet just dry eyes I'm looking in...

Purdy2017

•5 years ago

26 Replies

Just checking in...

Are you all using the app yet? Still one or two log in issues but we think we are resolving those. A quick chat with us usually sorts that out really quickly....

Are you all using the app yet? Still one or two log in issues but we think we a...

PBCRobert

Partner•5 years ago

12 Replies

Encouraging fibroscan and elastography results

Hi my friends, I wanted to share some good results I’ve had - and not just encouraging for me I hope, because I think this shows once more that it’s possible...

Hi my friends, I wanted to share some good results I’ve had - and not just encou...

Skypony

•5 years ago

67 Replies

Posts - PBC Foundation | HealthUnlocked

PBC Foundation

All posts for May 2019

Antibiotics

Epstein Barr virus.

Weight

Possible PBC?

Sun sensitivity

Cbd oil

Observation of Abbreviations.

Hello all

Please help! I'm in need of answers..

AMA

Acid

Itchy outer ears and warm feeling

Dizziness?

Making progress but feeling rough

Ocaliva financial assistance

PCE and teeth

Fibroscan results

Urso Dosage.

Urso

Chemical reactions/Pbc

PBC and edible medical marijuana

Good new

Possible gallstones and treatment

More information

Urso, correction

Reacting to urso

Anemia low iron levels

Pbc

Just checking in...

Encouraging fibroscan and elastography results

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