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All posts for April 2018

Haemolytic Anaemia

Anyone out there got any experience of Haemolytic Anaemia? NOT autoimmune haemolytic anaemia (AIHA). Had 4 bags of blood last weekend (made me feel much...

Anyone out there got any experience of Haemolytic Anaemia? NOT autoimmune haemo...

badpiglet

•7 years ago

7 Replies

ESA

Hi my husband attended he’s ESA assessment on the 9/12/17 but he scored no points and the ATOS lied in her report so I appealed for him he got the paper...

Hi my husband attended he’s ESA assessment on the 9/12/17 but he scored no point...

Harnell32

•7 years ago

8 Replies

Liver issues

In 2008 I was told I had an enlarged fatty liver and I believe my liver enzymes were elevated at that time. I was told to lose weight and nothing else was...

In 2008 I was told I had an enlarged fatty liver and I believe my liver enzymes ...

Hidden

•7 years ago

6 Replies

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Pbc

Hello, I have been diagnosed with PBC. Is it safe to drink a glass of wine per. Week?

Hello, I have been diagnosed with PBC. Is it safe to drink a glass of wine per....

Senon

•7 years ago

13 Replies

For those of you who would like to change their diet

Hi everyone!...just thought I would share this info with you...... I have read and re-reading The Plant Paradox-the hidden dangers in “healthy foods that...

Hi everyone!...just thought I would share this info with you...... I have read ...

LeanCat

•7 years ago

5 Replies

Anyone experiencing constipation while taking ursodiol?

Hello all. I've been newly diagnosed with PBC. I'm also dealing with breast cancer at the moment. I was put on 300mg ursodiol three times daily, & have been...

Hello all. I've been newly diagnosed with PBC. I'm also dealing with breast canc...

Caseymayr1102

•7 years ago

12 Replies

urso medication: mg/kg and when is the best time to take them

hello!I was wanderind about the correct therapy with urso! I read that the dose must be 13 mg per kg.If it is more is not ok because the side efects will...

hello!I was wanderind about the correct therapy with urso! I read that the dose...

Andrei

•7 years ago

21 Replies

PBC and work?

I am wondering how many of you who have pbc being controlled with urso to some extent still manage to work? I am a teacher and due to a flexible and...

I am wondering how many of you who have pbc being controlled with urso to some e...

Jmorrison

•7 years ago

42 Replies

Australian pbc sufferers?

I am wondering whether there are other Australian pbc sufferers on this forum and also whether an Australian support group also exists?

I am wondering whether there are other Australian pbc sufferers on this forum an...

Jmorrison

•7 years ago

19 Replies

What does equivocal mean

I'm 52 years old and went in for my yearly physical and found out that my alkaline phosphates was 237 so I took the anti mitochondrial antibody and that came...

I'm 52 years old and went in for my yearly physical and found out that my alkali...

keepin15

•7 years ago

3 Replies

+AMA, No liver function, no symptoms

Hi everyone, I am 40 year old mother of a 7 and 9 year old that resides in the US. This year I went in for regular health screening, and was found to a...

Hi everyone, I am 40 year old mother of a 7 and 9 year old that resides in the U...

soulshine02

•7 years ago

7 Replies

Pain upper abdomen?

Hi friends! Does anyone ever experience pain in their upper abdomen? This is different from URQ pain, really in the center. I’ve been having it for the last...

Hi friends! Does anyone ever experience pain in their upper abdomen? This is dif...

Ottley3

•7 years ago

1 Reply

Numbness/falling asleep in hands and feet?

I have been experiencing feet or hands 'falling asleep' intermittently for a while now and I am wondering if other pbc patients experience this?

I have been experiencing feet or hands 'falling asleep' intermittently for a whi...

Jmorrison

•7 years ago

10 Replies

Please I need advice

Hello iv had pbc for a couple of years im on uro tablets for the last 4 months iv had a very itchy rash on my forehead and my face does anyone know if its to...

Hello iv had pbc for a couple of years im on uro tablets for the last 4 months i...

ronniedobbie

•7 years ago

3 Replies

First post!

I was diagnosed with pbc about 4 years ago and have been on Urso ever since. Although having read posts from the pbc foundation before I don't recall ever...

I was diagnosed with pbc about 4 years ago and have been on Urso ever since. Al...

Jmorrison

•7 years ago

8 Replies

Pbc/Aih

Hi everyone Hope all well. Today i was out driving when my whole body drained and i felt really off. My legs went really weak. Has anyone else suffered from...

Hi everyone Hope all well. Today i was out driving when my whole body drained an...

janine541

•7 years ago

8 Replies

Any insights?

I was diagnosed in October 2016 with PBC. The AMA test was ordered after repeated elevated liver function numbers and chronic fatigue. Liver biopsy confirmed...

I was diagnosed in October 2016 with PBC. The AMA test was ordered after repeate...

ILik3Pizza

•7 years ago

5 Replies

Won Esa appeal.

Hi, I'm hoping someone can help me on this, I recently won my appeal for ESA, and was placed back into the support group after being on the reduced appeal...

Hi, I'm hoping someone can help me on this, I recently won my appeal for ESA, ...

Kimeara

•7 years ago

1 Reply

Travel insurance

Hi any recommendations for travel insurance , I'm in the uk had to cancel holiday to Florida as couldn't get insurance while under going test , now have...

Hi any recommendations for travel insurance , I'm in the uk had to cancel holida...

Louisethew

•7 years ago

15 Replies

6-MP drug

Has anyone ever taken the 6 MP drug I was just given that from my doctor if so how was your response? I had to take special blood tests to determine if I was a...

Has anyone ever taken the 6 MP drug I was just given that from my doctor if so h...

mjk98

•7 years ago

8 Replies

Need help about AMA versus M2 test and my results

Can ANYONE here please tell me the difference between an AMA test and an M2 test. they are not the same. I tested positive 2 times with the M2 and tested...

Can ANYONE here please tell me the difference between an AMA test and an M2 test...

Erosen

•7 years ago

13 Replies

PBC foundation about cirrhosis, same experiences?

I found this information about cirrhosis in the leaflet 'living with PBC' from the PBC foundation. If you have cirrhosis, do you agree with the vision showed...

I found this information about cirrhosis in the leaflet 'living with PBC' from t...

Suzie38

•7 years ago

8 Replies

Pbc/Aih

Well folks. I feel as though im here again asking questions. Hope you are all well. Ive had a lot of tiredness through my diagosis but recently my legs and...

Well folks. I feel as though im here again asking questions. Hope you are all we...

janine541

•7 years ago

5 Replies

Budesonide

I’ve been told the disease is progressing fast and will need transplant 3-5 years I’m a non responder to Urso etc. Consultant said he might try a steroid...

I’ve been told the disease is progressing fast and will need transplant 3-5 year...

Melwoods

•7 years ago

19 Replies

Getting no where with drs

My journey has been a long one since 2012 my drs have suspected that I have something going on with my liver. My enzymes remain at 50AST, 54 ALT 112ALP and...

My journey has been a long one since 2012 my drs have suspected that I have some...

mtk0925

•7 years ago

3 Replies

Surprise Surprise

As if life is not challenging enough with PBC now I have also been diagnosed with Sjogren's Syndrome. It is like living with the flu 24/7. Please do not get me...

As if life is not challenging enough with PBC now I have also been diagnosed wit...

lorilee58

•7 years ago

8 Replies

Paracetamol with pbc

Hope there are some knowledgable people here today, who might be able to help. I’am told paracetamol is okay to take and at the moment ( the last four days)...

Hope there are some knowledgable people here today, who might be able to help. I...

Hidden

•7 years ago

28 Replies

Novel Non-Bile FXR Agonist Promising in PBC Patients

This is from PBCers news feed. Sounds exciting. https://www.medpagetoday.com/meetingcoverage/easl/72355 PARIS -- Tropifexor, a non-bile acid FXR agonist,...

This is from PBCers news feed. Sounds exciting. https://www.medpagetoday.com/m...

JaneIng

•7 years ago

4 Replies

Ursodiol

Is it alright to take all three of my ursodiol at once? If so, when is the best time of day?

Is it alright to take all three of my ursodiol at once? If so, when is the best ...

Sissymcc

•7 years ago

25 Replies

Have a caught extremly early PBC?

I think I have extremely early pbc. I have controlled hashimotos and supposedly conteolled hypothyroidism, stomach problems (need aid of other acids to ecen...

I think I have extremely early pbc. I have controlled hashimotos and supposedly ...

PaigeR

•7 years ago

6 Replies

Posts - PBC Foundation | HealthUnlocked

PBC Foundation

All posts for April 2018

Haemolytic Anaemia

ESA

Liver issues

Pbc

For those of you who would like to change their diet

Anyone experiencing constipation while taking ursodiol?

urso medication: mg/kg and when is the best time to take them

PBC and work?

Australian pbc sufferers?

What does equivocal mean

+AMA, No liver function, no symptoms

Pain upper abdomen?

Numbness/falling asleep in hands and feet?

Please I need advice

First post!

Pbc/Aih

Any insights?

Won Esa appeal.

Travel insurance

6-MP drug

Need help about AMA versus M2 test and my results

PBC foundation about cirrhosis, same experiences?

Pbc/Aih

Budesonide

Getting no where with drs

Surprise Surprise

Paracetamol with pbc

Novel Non-Bile FXR Agonist Promising in PBC Patients

Ursodiol

Have a caught extremly early PBC?

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