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PBC Foundation

9,385 members • 7,989 posts

All posts for April 2012

Endoscopies

How often do other people have endoscopies, I have had a oesophogeal bleed and have had my varicies tied a couple of times now, and am on 12 weekly...

How often do other people have endoscopies, I have had a oesophogeal bleed and h...

busylady

•12 years ago

12 Replies

Has anyone got fibromyalgia aswell as pbc

Hidden

•12 years ago

7 Replies

Does anyone else out there feel like a fraud sometimes?

Have had a really bad week beginning with a confusing consult with a new gastro specialist. Already asked for advice from you guys on that one and you were...

Have had a really bad week beginning with a confusing consult with a new gastro ...

SamT

•12 years ago

14 Replies

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Have you had a liver biopsy just after PBC diagnose?

I got diagnosed with PBC Dec 2010 following 8mths of various blood tests, an ultrasound scan and then the antibodies blood test (AMA high titre, ANA none...

I got diagnosed with PBC Dec 2010 following 8mths of various blood tests, an ult...

Hidden

•12 years ago

17 Replies

support group in USA

Does anyone on this site live in USA, if so have you tried to receive SSDI, I also have PBC. I live in Louisville, Ky can't find a support group for either...

Does anyone on this site live in USA, if so have you tried to receive SSDI, I al...

BOBBIETINKER

•12 years ago

8 Replies

What is the timescale for you for the review of the urso meds?

Just wondered as apparently I've been informed it is every 6mths. First I had heard of these when I was diagnosed with PBC Dec 2010 as prior had kept away...

Just wondered as apparently I've been informed it is every 6mths. First I had h...

Hidden

•12 years ago

13 Replies

BRITISH LIVER TRUST.............

More of a statement than a question. Just to let you know that in the next couple of weeks the British Liver Trust will be launching a new community on the...

More of a statement than a question. Just to let you know that in the next coup...

Jtxx

•12 years ago

2 Replies

Saw new liver specialist

Saw second liver specialist yesterday. I wish everyone could have as caring and informative of a specialist as she is. She is at George Washington University...

Saw second liver specialist yesterday. I wish everyone could have as caring and...

Maddieroo

•12 years ago

7 Replies

when your bloods have been checked and come back elevated what does it mean

ariana

•12 years ago

4 Replies

Liver growth outside liver site

Has anyone else ?liver growing outside of their liver. Diagnosis of PBC was finally given after a biopsy was done through the liver into unknown something...

Has anyone else ?liver growing outside of their liver. Diagnosis of PBC was fina...

Helmary

•12 years ago

4 Replies

im confused! specialist confused

hi h ave just been diagnosed with pbc have had a liver biopsy which showed no scarring,but as well as ama antibodies ive got ana antibodies which my doc said...

hi h ave just been diagnosed with pbc have had a liver biopsy which showed no sc...

liverj

•12 years ago

26 Replies

Does anyone have Lupus? Have noticed that it could be like the "umbrella" with all these other diseases "under" it.

Tumbleweed41

•12 years ago

26 Replies

How many days supply of urso do you get prescribed?

I had to argue my case with my GP over urso as originally he was going to just give me a prescription for 30 days (that is the denomination apparently). I...

I had to argue my case with my GP over urso as originally he was going to just g...

Hidden

•12 years ago

18 Replies

Restless Legs - GP answers the question.

Just to let the people who asked me to post how I got on at the GPs with my restless legs and twitching. The dr said it is possible to treat, as I think...

Just to let the people who asked me to post how I got on at the GPs with my rest...

Val02

•12 years ago

6 Replies

Did everyone have as much trouble getting a definitive diagnosis as I am having?

I've had two biopsies. The first was inconclusive and the second stated AIH, with features of PBC and sclerosing cholangitis. My consultant retired and have...

I've had two biopsies. The first was inconclusive and the second stated AIH, wit...

SamT

•12 years ago

8 Replies

Is everyone a member of the PBC Foundation UK

Hi I was wondering if everyone on here is a member of the PBC Foundation. The Foundation cares for those who suffer from PBC you will get a Bear Facts magazine...

Hi I was wondering if everyone on here is a member of the PBC Foundation. The Fo...

janethomas

Moderator•12 years ago

16 Replies

Liver discomfort? The experts say we shouldn't have but I have especially, when my LFT's are raised! Anyone else?

Jtxx

•12 years ago

17 Replies

Dreaded Itch! Does a high Billirubin count cause this due to bile being leaked into the bloodstream? If not what causes the itch to start?

Jtxx

•12 years ago

13 Replies

Just diagnosed, few symptoms as yet. Does everyone give up all alcohol as it is too toxic to the liver? Thanks

dinnyd

•12 years ago

12 Replies

Another thing to add to the list calification

I had another fall x ray showed calcification of the collat bone ! It really hurts I have been in so much pain as its, close to shoulder bone . Has anyone...

I had another fall x ray showed calcification of the collat bone ! It really hu...

cowren

•12 years ago

4 Replies

PBC Diagnosed in 2004. Now the itching has started. Advice needed.

My PbC was diagnoswd in 2004. Not many symptoms since except for the tiredness. Told in hospital that my blood results were in "normal limits" although I am...

My PbC was diagnoswd in 2004. Not many symptoms since except for the tiredness. ...

cazzi

•12 years ago

29 Replies

I am looking for mortgage term insurance and life insurance cover

Hi Everyone I was diagnosed with PBC in 2010 and am a first timer on this site. Having read some of your concerns and queries it seems we are all in the...

Hi Everyone I was diagnosed with PBC in 2010 and am a first timer on this sit...

PiPi

•12 years ago

3 Replies

PIP

PIP the new DLA for 2013 Oh dear!

Neata

•12 years ago

7 Replies

I need travel insurance for my family and my husband has type 2 diabetes, can you recommend a company who will cover this? I have PBC.

nonnies

•12 years ago

9 Replies

ESA tribunal good news bad news

Good news was awarded 15 points on my ESA tribunal ,bad news was put in the work related group and as it's contribution based no monies after the 30 April,

Good news was awarded 15 points on my ESA tribunal ,bad news was put in the work...

Neata

•12 years ago

16 Replies

Nothing to do with PBC but wonderful website that makes me smile.

Here is a link to a website that makes me smile. They only post cute photos and videos of cute animals, with funny subtitles. Mostly cats and dogs but they...

Here is a link to a website that makes me smile. They only post cute photos and...

Maddieroo

•12 years ago

1 Reply

Does anyone have a parent or sibling with PBC?

The doctor tells me that PBC is not a genetic disease. He did say that although rare, there are families that have female members with PBC. I would appreciate...

The doctor tells me that PBC is not a genetic disease. He did say that although ...

Hidden

•12 years ago

36 Replies

Anyone in Manchester area?

Does anyone live in the manchester area just it would be nice to meet up with local people. I know there are the quarterly meets but they are in macclesfield...

Does anyone live in the manchester area just it would be nice to meet up with lo...

Hidden

•12 years ago

4 Replies

New to this group.

Hi! All - Found this group thru another forum that I joined 4 1/2 yrs ago (Aug. 2007) when I was diagnosed with AIH/PBC overlap syndrome stage 3. I am...

Hi! All - Found this group thru another forum that I joined 4 1/2 yrs ago...

Tumbleweed41

•12 years ago

9 Replies

Is anyone allergic to Penicillin?

Jtxx

•12 years ago

20 Replies

Posts - PBC Foundation | HealthUnlocked

PBC Foundation

All posts for April 2012

Endoscopies

Has anyone got fibromyalgia aswell as pbc

Does anyone else out there feel like a fraud sometimes?

Have you had a liver biopsy just after PBC diagnose?

support group in USA

What is the timescale for you for the review of the urso meds?

BRITISH LIVER TRUST.............

Saw new liver specialist

when your bloods have been checked and come back elevated what does it mean

Liver growth outside liver site

im confused! specialist confused

Does anyone have Lupus? Have noticed that it could be like the "umbrella" with all these other diseases "under" it.

How many days supply of urso do you get prescribed?

Restless Legs - GP answers the question.

Did everyone have as much trouble getting a definitive diagnosis as I am having?

Is everyone a member of the PBC Foundation UK

Liver discomfort? The experts say we shouldn't have but I have especially, when my LFT's are raised! Anyone else?

Dreaded Itch! Does a high Billirubin count cause this due to bile being leaked into the bloodstream? If not what causes the itch to start?

Just diagnosed, few symptoms as yet. Does everyone give up all alcohol as it is too toxic to the liver? Thanks

Another thing to add to the list calification

PBC Diagnosed in 2004. Now the itching has started. Advice needed.

I am looking for mortgage term insurance and life insurance cover

PIP

I need travel insurance for my family and my husband has type 2 diabetes, can you recommend a company who will cover this? I have PBC.

ESA tribunal good news bad news

Nothing to do with PBC but wonderful website that makes me smile.

Does anyone have a parent or sibling with PBC?

Anyone in Manchester area?

New to this group.

Is anyone allergic to Penicillin?

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