Posts - PBC Foundation | HealthUnlocked

It's hard to believe that tomorrow we end another year. 'Flying by'surely has a new meaning as I age. I hope each of us can take the time...

Administrator•3 months ago

12 Replies

It's 'Monday Me'

It's hard to believe that tomorrow we end another year. 'Flying by'surely has a ...

What can you remember as your favorite gift from Santa?

Administrator•3 months ago

4 Replies

Friday Fun Question

Sorry this is so late in the day..... time seems to pass by during the holidays somehow. This time next week we will find ourselves in 2025. How can...

Administrator•3 months ago

4 Replies

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Thursday's Thoughts

Sorry this is so late in the day..... time seems to pass by during the holidays ...

wishing you all peace and health in 2025

Administrator•3 months ago

9 Replies

Merry Christmas!

Administrator•3 months ago

2 Years ago I got PBC. Life has been absolutely overwhelming lately. Physically, I feel like I’m falling apart, and I’m only in my 30s. i am exhausted…...

exhaustion

2 Years ago I got PBC. Life has been absolutely overwhelming lately. Physicall...

Tramezzini

•3 months ago

3 Replies

Excessive sleeping

Hello and first of all Merry Christmas/Happy Holidays 🎄🎉 Chronic daytime sleepiness has been an issue for me since developing PBC. Fatigue and cognitive...

Hello and first of all Merry Christmas/Happy Holidays 🎄🎉 Chronic daytime sle...

Turquoise2075

•3 months ago

9 Replies

holidays

well that flopped, lol! Posted a picture but it’s chopped off. I’ve always had that issue posting pics on here. Anyway, Happy Holidsys to envy near and far...

well that flopped, lol! Posted a picture but it’s chopped off. I’ve always had ...

gwillistexas

•3 months ago

7 Replies

Holidays

Happy Holidays Everyone

gwillistexas

•3 months ago

11 Replies

wanted you to know....

from The PBC Foundation - Christmas can mean different things to different people. Whether you are navigating difficult emotions or simply looking for a...

from The PBC Foundation - Christmas can mean different things to different peop...

Administrator•3 months ago

I know today we are preparing for maybe a busy next few days with Christmas. I just want to ask everyone to take just 5 minutes and sit quietly (alone)...

It's Monday Me!

I know today we are preparing for maybe a busy next few days with Christmas. I j...

Hi all, I have been reading a number of threads on here and have already learnt a lot, far more than my GP had to offer! I've been suffering with severe...

Administrator•3 months ago

1 Reply

GP unsure about blood and FIT results

Hi all, I have been reading a number of threads on here and have already learnt...

Helen427

•3 months ago

5 Replies

Just some words to remember...

Sometimes there is joy and beauty right in front of us if we only look. 🥰

What 's a Christmas tradition in your own family? be it a food, activity or whatever 🎄

Administrator•3 months ago

4 Replies

Friday Fun Question

What 's a Christmas tradition in your own family? be it a food, activity or what...

I have PBC stage 4. Diagnosed 2023 . Very lucky as I was in a very bad way. Not overweight lost 4 stone. Was having weekly blood transfusions, stomach...

Administrator•3 months ago

6 Replies

very painful mouth

I have PBC stage 4. Diagnosed 2023 . Very lucky as I was in a very bad way. Not ...

Researchfreak

•3 months ago

15 Replies

Thursday' Thoughts

Christmas carols, brightly colored lights, and Hallmark movies (too many for me) are all just a part of the season. Glad tidings to all, right? Happy...

Christmas carols, brightly colored lights, and Hallmark movies (too many for me)...

Administrator•3 months ago

Hi Friends, I had my 3 month blood work done. ALP went down, then back up. I'm at 171 now, previously, (three months ago),161....also, my AMA and ANA are...

Fluctuating ALP, AMA and ANA tests

Hi Friends, I had my 3 month blood work done. ALP went down, then back up. I'm a...

TanGram

•3 months ago

3 Replies

Wednesday's Word

osteoporosis This condition refers to the thinning of the bone making patients at greater risk of fractures especially to the hip...

osteoporosis This condition refers to the thinning of the bone making patients ...

Don't forget yourself in all of the holiday rush.... Self care, remember?!

Administrator•3 months ago

14 Replies

You matter...

Administrator•3 months ago

I know this is a time of the year when we, most likely, have more social events than usual - be it with neighbors, work, church, or good......

Tuesday's Tip

I know this is a time of the year when we, most likely, have more social events ...

Administrator•3 months ago

https://www-fiercepharma-com.webpkgcache.com/doc/-/s/www.fiercepharma.com/pharma/fda-declines-grant-intercepts-ocaliva-full-approval-rare-liver-disease

more on Ocaliva as of 11/24

https://www-fiercepharma-com.webpkgcache.com/doc/-/s/www.fiercepharma.com/pharma...

Administrator•3 months ago

https://www.fda.gov/safety/medical-product-safety-information/ocaliva-obeticholic-acid-intercept-pharmaceuticals-drug-safety-communication-serious-liver-injury...

Important Update regarding Ocaliva

https://www.fda.gov/safety/medical-product-safety-information/ocaliva-obeticholi...

I know many of you are busy with shopping, decorating, planning menus and such but don't forget to take time out for just you. We all need...

Administrator•3 months ago

11 Replies

It's 'Monday Me'!

I know many of you are busy with shopping, decorating, planning menus and such b...

Administrator•3 months ago

I saw where the FDA issued a warning on ocaliva 12/12, because of serious liver injuries in patients who do not have cirrhosis. This is scary considering...

ocaliva

I saw where the FDA issued a warning on ocaliva 12/12, because of serious liver ...

gwillistexas

•3 months ago

43 Replies

A Real Gift

After fighting a fungal rash since last April, i can finally say today that it is GONE! I have never had rashes before, and don’t really know if it is...

After fighting a fungal rash since last April, i can finally say today that it i...

Gaspereaux

•4 months ago

7 Replies

Friday Fun Question

What's the one thing you never got at Christmas ( from Santa, of course) that you had your heart set on?

What's the one thing you never got at Christmas ( from Santa, of course) that yo...

Sorry this is so late coming today. This morning I didn't have internet service then a friend came for lunch. All is well now again..... The other day...

Administrator•4 months ago

8 Replies

Thursday's Thoughts

Sorry this is so late coming today. This morning I didn't have internet service ...

Administrator•4 months ago

placebo This refers to a 'dummy' drug given to a group of patients who are participating in a clinical trial. Their appearance is...

Wednesday's Word

placebo This refers to a 'dummy' drug given to a group of patients who are part...

Administrator•4 months ago

I just wanted to 'check in' and see how everyone is doing with the holidays I know the whole season can be a time of sadness for many...

checking in..

I just wanted to 'check in' and see how everyone is doing with the holidays I k...

Any symptoms or change in how you feel can only be addressed if the clinician asks about them or you bring them up in the conversation. It has been...

Administrator•4 months ago

9 Replies

Tuesday's Tip

Any symptoms or change in how you feel can only be addressed if the clinician as...