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PBC Foundation

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Pbc and over active hydroid

Hi, I have been diagnosed with pbc and overactive thyroid within the same month. I know it's common to get under active thyroid with pbc but haven't seen...

Hi, I have been diagnosed with pbc and overactive thyroid within the same month....

•2 months ago

PBC and Joint Hypermobility Syndrome

Hi, I have joint hypermobility syndrome and possible PBC. I was just wondering if anyone else has the same two health issues. It would be nice to speak to...

Hi, I have joint hypermobility syndrome and possible PBC. I was just wondering i...

•4 months ago

PBC pins & needles

hi everyone, I have the pins and needles in my hands and feet as well, as quite a few other people on here. Is that associated with Pbc? I also have...

hi everyone, I have the pins and needles in my hands and feet as well, as quit...

•5 months ago

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Fibroscan Results with PBC

I had a private fibroscan today which was surprisingly normal and even healthy! CAP198 and Kpa5.5. I say surprised as my LFT's are off the scale high. Over...

I had a private fibroscan today which was surprisingly normal and even healthy! ...

•5 months ago

Thrombocytopenia

Hi all, I have just been diagnosed with autoimmune thrombocytopenia, which is very low platelet count and can cause bruising and excessive bleeding....

Hi all, I have just been diagnosed with autoimmune thrombocytopenia, which is ...

•6 months ago

Liver Biopsy Negative can it still be PBC?

I had elevated Alkaline Phosphate of 146, ALT (SOGT) of 45 and a positive ANA with a titer of 1:320 so my primary doctor sent me to a gastroenterologist. He...

I had elevated Alkaline Phosphate of 146, ALT (SOGT) of 45 and a positive ANA wi...

•8 months ago

Pbc auto immune

Has anybody had low white blood cells ... mine are very low and they have cut my rifapancin down. I'm only hoping the dreaded itch will not get any worse

Has anybody had low white blood cells ... mine are very low and they have cut my...

•9 months ago

"PYRUVATE HD +" Has anyone had this or know what this is- looked on interweb- goggledygook! what is it- in simple terms please?

Hi guys- hope you are all doing OK. I've had my PBC diagnosis confirmed- relief finally! Changed GP, hopefully, new surgery will listen and be helpful... got...

Hi guys- hope you are all doing OK. I've had my PBC diagnosis confirmed- relief...

•11 months ago

PBC and Granulomas

In my early 30’s a scan showed several granulomas, 1 in my lungs, spleen, liver, etc… I was told it was probably caused by an undiagnosed case of...

In my early 30’s a scan showed several granulomas, 1 in my lungs, spleen, liver,...

•1 year ago

NEW with PBC

Hi everyone I did an AMA test at my GP after 4,5 years of elevated Liver enzymes- with me it has been the GGT and ALT , Plus cholesterol( the bad one) is...

Hi everyone I did an AMA test at my GP after 4,5 years of elevated Liver enzy...

•1 year ago

Hrt help

I was diagnosed in 2021 with PBC, but unfortunately I’ve ended up having a hysterectomy 2 weeks ago I had stage 4 Endometriosis, and because I’m only 41 I...

I was diagnosed in 2021 with PBC, but unfortunately I’ve ended up having a hyste...

•1 year ago

Statins and PBC

I’m male and was diagnosed with PBC 12 years ago. I’m broadly asymptomatic but because of raised cholesterol levels (caused by PBC?) have recently been...

I’m male and was diagnosed with PBC 12 years ago. I’m broadly asymptomatic but b...

•2 years ago

severe pain

Yesterday morning after being up a while and out of the blue, I suffered severe pain in upper abdomen on the right and agoing around my back. This lasted...

Yesterday morning after being up a while and out of the blue, I suffered seve...

•2 years ago

Taking the "Cirrhosis" out of PBC

You will be delighted to read that we are knocking on the doors of a wonderful opportunity. There is an international initiative right now building momentum...

You will be delighted to read that we are knocking on the doors of a wonderful o...

Partner•10 years ago

Merry Christmas

I just wanted to wish everyone here a very Merry Christmas. We each have different things going on in our lives: health, work, finances, kids, etc that...

I just wanted to wish everyone here a very Merry Christmas. We each have diff...

Partner•11 years ago

Working Together

I just wanted to say how heartening it is that peole are working together here. People are asking questions dear to them and are gaining insights from others...

I just wanted to say how heartening it is that peole are working together here. ...

Partner•12 years ago

Welcome

Welcome to the PBC foundation pages on Health Unlocked. Thank you for taking the time to join us. We, as an organisation, have a huge wealth of...

Welcome to the PBC foundation pages on Health Unlocked. Thank you for...

Partner•13 years ago

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