Posts - PBC Foundation | HealthUnlocked

PBC Foundation

9,382 members • 7,975 posts

All posts for August 2019

Transplant

I was wondering when is transplant not an option according to your age? I am 71 years old.

I was wondering when is transplant not an option according to your age? I am 71...

Ellyne

•5 years ago

9 Replies

Pbc

Well back to hospital today. So so tired . Need such a break from everything

janine541

•5 years ago

7 Replies

Report from Hep on fibroscan

He said no scarring in liver and no fatty deposits. Happy girl. 💃

gwillistexas

•5 years ago

62 Replies

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Headache

Hi everyone may I ask if anyone suffers from headaches all the time. As I have mentioned my medication was changed from 50 mg mercaptopurin per day to 2000 mg...

Hi everyone may I ask if anyone suffers from headaches all the time. As I have m...

Alley27

•5 years ago

10 Replies

Noise In Ears

Several months ago, I noticed this noise. My description is if you go out on a summer night and hear locusts, not very loud. Wondering if anyone has...

Several months ago, I noticed this noise. My description is if you go out on a s...

gwillistexas

•5 years ago

17 Replies

My story so far

Hi. I was diagnosed with PBC only last January although I’m 73. I live in France so I have to contend with the language as well as the disease! I’m unable to...

Hi. I was diagnosed with PBC only last January although I’m 73. I live in France...

Marmalady

•5 years ago

22 Replies

Pbc

Well started a trial drug that I'm unsure what it was but had to stop all my medication as the itch was un bearable Having to see my consultant every 2 weeks...

Well started a trial drug that I'm unsure what it was but had to stop all my med...

janine541

•5 years ago

18 Replies

The Spoon Theory

Just thought maybe this would be of help to some

gailann59

•5 years ago

13 Replies

PBC and insulin

Diagnosed with PBC 3 years ago . My blood glucose levels are rising and I've managed so far with diet but now GP wants to put me on insulin instead of any...

Diagnosed with PBC 3 years ago . My blood glucose levels are rising and I've ma...

woodlandT

•5 years ago

2 Replies

PBC exists....

STAY CALM AND CARRY ON~~~~

gailann59

•5 years ago

5 Replies

Got to keep fighting if you want to get there ?

This is me 5 yrs ago, if there is a way to post another pic I will show you how I look now ....

This is me 5 yrs ago, if there is a way to post another pic I will show you how ...

Healthybitch

•5 years ago

2 Replies

Muscle pain

I usually write here about being asymptomatic for pbc but in the past four five days I have been hit by a bus it seems It started with stiff neck and now...

I usually write here about being asymptomatic for pbc but in the past four five...

boneytoys

•5 years ago

23 Replies

PBC and rheumatoid arthritis

Hi all, hope u are well . Today I got my second fibroscan with a CAP score of 212 and scan 28.1. This has went down from 39.5 a few months ago. Ultrasound,...

Hi all, hope u are well . Today I got my second fibroscan with a CAP score of 21...

Cody23

•5 years ago

2 Replies

PBc Day 2019

PBC Day is almost upon us. As ever it is the second Sunday in Sept. this year being Sun 8th September. The campaign for this year is “Know Your Numbers”....

PBC Day is almost upon us. As ever it is the second Sunday in Sept. this year ...

PBCRobert

Partner•5 years ago

7 Replies

Plasma exchange

Hi has anyone had plasma exchange for itchy skin (PBC) Thanks Roz X

Rozm2004

•5 years ago

2 Replies

Can you overdose on urso ?

Just a quickie , I can’t remember if I took my urso this morning. Should I 1) re take now ? 2) start again tomorrow ? Thanks in advance xxx

Just a quickie , I can’t remember if I took my urso this morning. Should I 1)...

Mrsfancypants

•5 years ago

5 Replies

New Name, same girl

Hi everyone...hope this finds you well. I had a cyberspace mystery over the last 2 days which caused me to close my previous accounts and email. What a royal...

Hi everyone...hope this finds you well. I had a cyberspace mystery over the last...

mrspeffer2

•5 years ago

2 Replies

H pylori infection: possible trigger for pbc?

H pylori infection: possible trigger for pbc? Hello to you all. I am reading this days about the possible triggers for Ama activation which in time enables...

H pylori infection: possible trigger for pbc? Hello to you all. I am reading thi...

Andrei

•5 years ago

23 Replies

Is it possible for APL to fall 118 points in just one month?

I am 65 and have had PBC for 13 years. My levels dropped from over 800 in 2013 to 200, where they have remained for the past 4 years, even though being on...

I am 65 and have had PBC for 13 years. My levels dropped from over 800 in 2013 t...

Gioielli

•5 years ago

13 Replies

Taking paracetamol and URSO

Hi there, I have been reading lots of info and posts about whether it's ok to take paracetamol. I was dx with PBC in Feb 2019 and since then haven't really had...

Hi there, I have been reading lots of info and posts about whether it's ok to ta...

Yellow_fish

•5 years ago

8 Replies

PBC and oral estrogen (estrace or premarin)

What is known about the effects of oral estrogen on the liver? Does oral HRT (hormone replacement therapy) cause liver inflammation that may lead to PBC? Thank...

What is known about the effects of oral estrogen on the liver? Does oral HRT (ho...

iagra

•5 years ago

1 Reply

Fibroscan

I had my fibroscan this afternoon. The first technician no doubt, hit me with the probe at least 40 times or more. Said machine was not wanting to read right....

I had my fibroscan this afternoon. The first technician no doubt, hit me with th...

gwillistexas

•5 years ago

78 Replies

AMA

My AMA score was 1 over 640, do any of you know your score.? Thanks.

7443jec

•5 years ago

6 Replies

Trial drug

Hi all I am thinking of signing up for a drug trial for seladapar .......has anyone been on this trial?.....cannot tolerate urso......Any feedback appreciated...

Hi all I am thinking of signing up for a drug trial for seladapar .......has any...

Vivaldii

•5 years ago

4 Replies

Weight gain

Thank you all for your replies. Sounds like a lot of us on urso suffer with a bloated stomach. I look like I'm pregnant by the end of the day and my clothes...

Thank you all for your replies. Sounds like a lot of us on urso suffer with a bl...

Spanishnan

•5 years ago

6 Replies

Urso & weight gain

Morning everyone, not been on here for a while as I have been enjoying my new life in the sun. Awaiting results of my first blood tests in spain. Will keep you...

Morning everyone, not been on here for a while as I have been enjoying my new li...

Spanishnan

•5 years ago

6 Replies

Extremely dry feet !!!!

Hi First time poster ! Got diagnosed April 2019. 48 year old female if that’s relevant Have been feeling quite well , but lately over the last few months...

Hi First time poster ! Got diagnosed April 2019. 48 year old female if that’s r...

Kingy68

•5 years ago

17 Replies

Please help ! My fibroscan result 12.6 kPa: What's could be the issue? How to reverse it ?

Fibroscan result: 12.6 kPa , UAP:183 dB/m. All other liver function tests are normal. Age 26 , male , have been a heavy drinker since 2 years .. Sober since...

Fibroscan result: 12.6 kPa , UAP:183 dB/m. All other liver function tests are no...

Hidden

•5 years ago

2 Replies

Unexplained itching causing bruising when scratched?!

Itchy skin and when scratched causes bruising any explanation? This is only one of the bruises that have appeared..

Itchy skin and when scratched causes bruising any explanation? This is only one ...

Rainbow3210

•5 years ago

9 Replies

Botox

Does anyone know whether it’s safe to continue with Botox now I have been diagnosed with PBC. ? xx

Does anyone know whether it’s safe to continue with Botox now I have been diagno...

7443jec

•5 years ago

25 Replies

Posts - PBC Foundation | HealthUnlocked

PBC Foundation

All posts for August 2019

Transplant

Pbc

Report from Hep on fibroscan

Headache

Noise In Ears

My story so far

Pbc

The Spoon Theory

PBC and insulin

PBC exists....

Got to keep fighting if you want to get there ?

Muscle pain

PBC and rheumatoid arthritis

PBc Day 2019

Plasma exchange

Can you overdose on urso ?

New Name, same girl

H pylori infection: possible trigger for pbc?

Is it possible for APL to fall 118 points in just one month?

Taking paracetamol and URSO

PBC and oral estrogen (estrace or premarin)

Fibroscan

AMA

Trial drug

Weight gain

Urso & weight gain

Extremely dry feet !!!!

Please help ! My fibroscan result 12.6 kPa: What's could be the issue? How to reverse it ?

Unexplained itching causing bruising when scratched?!

Botox

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