Posts - PBC Foundation | HealthUnlocked

PBC Foundation

9,384 members • 7,988 posts

All posts for July 2020

Does taking Urso cause some liver pain?

Liver specialist says I have PBC or Autoimmune Hepatitis. I am now on 1,000 mg of Ursodiol. My liver enzymes are very high but my liver had not been hurting...

Liver specialist says I have PBC or Autoimmune Hepatitis. I am now on 1,000 mg o...

Basil707

•4 years ago

21 Replies

Consultant telephone appointment

Hi I had a telephone appointment over the phone today as of covid 19 not doing face to face appointments. I found it hard to take everything in as quite hard...

Hi I had a telephone appointment over the phone today as of covid 19 not doing f...

Shezza123

•4 years ago

10 Replies

Alk Phos ticking up after being normal...

Hi friends - I've been gone for a couple of years, actually. I was diagnosed with PBC in 2016, with Alk Phos then at 388. Upon taking URSO my numbers dropped...

Hi friends - I've been gone for a couple of years, actually. I was diagnosed wit...

JennyCville

•4 years ago

8 Replies

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How to live with gull bladder sludge

I’ve been diagnosed with gull bladder sludge, I’m in my 20’s & completely healthy no previous health issues. Currently on morphine, paracetamol and...

I’ve been diagnosed with gull bladder sludge, I’m in my 20’s & completely heal...

Jccccc

•4 years ago

3 Replies

Sudden skin blotches.

Do any of you wake up with red marks, see photo below, which usually fade after a while. This one is t fading yet!!!

Do any of you wake up with red marks, see photo below, which usually fade after...

7443jec

•4 years ago

8 Replies

How to live with gull bladder sludge/ should I be concerned? Been sent away from hospital even though I’m still in pain

I have been diagnosed with bilary sludge in my gullbladder. I’ve had constant sharp pains/discomfort under my right lung which at times spread onto my chest....

I have been diagnosed with bilary sludge in my gullbladder. I’ve had constant sh...

Jccccc

•4 years ago

5 Replies

Advice please .

Hi could I please ask everyone who is taking Azathioprine their experiences on this drug. Their starting doses both on steroids and off steroids, the best...

Hi could I please ask everyone who is taking Azathioprine their experiences on ...

Alley27

•4 years ago

6 Replies

Update

Good morning, this is definitely another flare. Consultant wants me to start Azathioprine when I go collect it today. I was going to go on public transport...

Good morning, this is definitely another flare. Consultant wants me to start Az...

Alley27

•4 years ago

9 Replies

FENOFIBRATE

I was hoping that this post would be the one where I get to celebrate how well the Fenofibrate was working out for me. Took it for about 7 weeks. Was quite...

I was hoping that this post would be the one where I get to celebrate how well ...

Susn

•4 years ago

14 Replies

PBC and ascites

My mother has PBC and liver cirrhosis. 2 months ago she got ascites which was drained (6liters). She got diuretics ( spironilactone and furosemid). She stopped...

My mother has PBC and liver cirrhosis. 2 months ago she got ascites which was dr...

kiki1980

•4 years ago

8 Replies

Good afternoon

At least I think it is...I feel like I been run over by a bus today. I have been vomiting bile for the last 24 hours. Had a fever and aches and pains. I...

At least I think it is...I feel like I been run over by a bus today. I have bee...

Alley27

•4 years ago

7 Replies

Itching

Itching is worse than ever driving me insane and I feel like all I do is moan about it and I know I could have worse things happening to me but I can’t help...

Itching is worse than ever driving me insane and I feel like all I do is moan ab...

Shezza123

•4 years ago

32 Replies

Anemic

Hi Any advice would be really appreciated . I had my bloods done last week and liver has come back slightly elevated. Also showed up that I was anemic and...

Hi Any advice would be really appreciated . I had my bloods done last week and ...

Kingy68

•4 years ago

5 Replies

H r t

Has anyone been on h r t ? Is it very damaging ?

Mrsfancypants

•4 years ago

3 Replies

Tired

Hi all Fealing tired yawning all the time I've been signed of on sick thinking of giving my job up wot help and support would I get can anyone give me some...

Hi all Fealing tired yawning all the time I've been signed of on sick thinking...

Purdy2017

•4 years ago

20 Replies

PBC

Hi any advice please? I have asymptomatic PBC and all has been well until recently. Lately (the last 6 months) I have developed a mild niggly pain on my left...

Hi any advice please? I have asymptomatic PBC and all has been well until recen...

Palebluesky

•4 years ago

20 Replies

Shielding

Just was interested how many of you had a shielding letter, didn’t get the first letter but this week had one from the hospital saying to keep shielding till...

Just was interested how many of you had a shielding letter, didn’t get the first...

kimphoebe

•4 years ago

46 Replies

New diagnosis

I was wondering if anyone has heard of blepharitis? I was surprised when I was diagnosed with it. I have never had flaky eye lashes or signs of it. It’s...

I was wondering if anyone has heard of blepharitis? I was surprised when I was d...

Jennyhadenough

•4 years ago

22 Replies

Posts - PBC Foundation | HealthUnlocked

PBC Foundation

All posts for July 2020

Does taking Urso cause some liver pain?

Consultant telephone appointment

Alk Phos ticking up after being normal...

How to live with gull bladder sludge

Sudden skin blotches.

How to live with gull bladder sludge/ should I be concerned? Been sent away from hospital even though I’m still in pain

Advice please .

Update

FENOFIBRATE

PBC and ascites

Good afternoon

Itching

Anemic

H r t

Tired

PBC

Shielding

New diagnosis

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