Posts - PBC Foundation | HealthUnlocked

PBC Foundation

9,389 members • 7,995 posts

All posts for August 2023

Headaches

reoccurring headaches ive suffered for a long time with migraines and seem to be going through cluster headaches lasting longer and more frequently is this...

reoccurring headaches ive suffered for a long time with migraines and seem to be...

Eppy

•8 months ago

9 Replies

Osteoporosis treatment

I have recently been diagnosed with PBC and am taking 1000mg ursodeoxycholic acid daily. I just had a routine bone density done and it resulted that I have...

I have recently been diagnosed with PBC and am taking 1000mg ursodeoxycholic aci...

Dora57

•8 months ago

12 Replies

PBC - high Amylase level

Just had my latest blood results. Amylase tested for 1st time so I don’t have anything to compare it with 201 (normal range 0 - 100) Anyone have any......

Just had my latest blood results. Amylase tested for 1st time so I don’t have an...

DebatDG9

•8 months ago

6 Replies

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Thank you

I wanted to take a minute and thank everyone in this community/ forum. It’s such a great support system. It’s so great hearing others knowledge and suggestions...

I wanted to take a minute and thank everyone in this community/ forum. It’s such...

Samanthaann

•8 months ago

2 Replies

Liver Biopsy Negative can it still be PBC?

I had elevated Alkaline Phosphate of 146, ALT (SOGT) of 45 and a positive ANA with a titer of 1:320 so my primary doctor sent me to a gastroenterologist. He...

I had elevated Alkaline Phosphate of 146, ALT (SOGT) of 45 and a positive ANA wi...

Needmercy

•8 months ago

13 Replies

sjogrens

Hi Everyone, Diagnosed last Nov with PBC. 2 weeks ago I started getting a really bad taste in mouth and some dry mouth. The taste is terrible ! How do you...

Hi Everyone, Diagnosed last Nov with PBC. 2 weeks ago I started getting a rea...

Samanthaann

•8 months ago

26 Replies

Interesting anecdote on brain fog

Was seeing my rheumatologist checking to see if I have Sjogren’s overlap and just some general discussion about PBC symtoms. As an aside she mentioned they...

Was seeing my rheumatologist checking to see if I have Sjogren’s overlap and jus...

CeeCee101

•8 months ago

4 Replies

Is this normal?

I hope you are all well ☺️ I've not had an official diagnosis of PBC as my ALP is normal and the drs are looking to do more blood tests before they do a biopsy...

I hope you are all well ☺️ I've not had an official diagnosis of PBC as my ALP i...

Ochredreams

•8 months ago

6 Replies

pbc question

Hi all ! I have very high ANA , anti centromere , high AMA2 . Fibroscan F3 fibrosis. Have normal liver enzymes including ALP ! Many years ago I had severe...

Hi all ! I have very high ANA , anti centromere , high AMA2 . Fibroscan F3 fibro...

Mikaela2

•8 months ago

9 Replies

fibroscan results perplexing

Hi, I’ve recently been diagnosed with pbc. I had a fibroscan a few weeks ago & the results I received were as follows: Cap 250 Kpa 3.7 IQR 15% Can anyone...

Hi, I’ve recently been diagnosed with pbc. I had a fibroscan a few weeks ago & ...

Redded1

•9 months ago

5 Replies

Is it PBC or not?

I have been on the pbc yes/no rollercoaster for a week or two now. Today I got some results but have to wait another 10 days to see the GP to interpret them!...

I have been on the pbc yes/no rollercoaster for a week or two now. Today I got ...

Flid

•9 months ago

11 Replies

PBC and skin hyperpigmentation

maybe someone can help me with this. I have positive ANA 1280. Positive AMA M2 120. Positive Anticentromere 160. These were discovered in 2014 when I started...

maybe someone can help me with this. I have positive ANA 1280. Positive AMA M2 1...

Lorelle09

•9 months ago

14 Replies

Immune system

Had PMR for 3.5 years and on 9.5mg Prednisolone. Had a few flares.I have noticed I have had a few infections and wondered what I could take to improve my...

Had PMR for 3.5 years and on 9.5mg Prednisolone. Had a few flares.I have noticed...

choirsinger1986

•9 months ago

3 Replies

PBC ?

A frightening time for you and as the other posts have shared , many of us were in a similar position to you at diagnosis and completely understand your fears...

A frightening time for you and as the other posts have shared , many of us were ...

Giraffe44

•9 months ago

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Terrified I have PBC

hi, I saw a consultant today as was told my bloods flagged for an autoimmune disease marker which I now know to be AMA positive, I only know this as all the...

hi, I saw a consultant today as was told my bloods flagged for an autoimmune d...

Kelpop1

•9 months ago

30 Replies

Muscle aches/fatigue

Hi all, I'm just wondering if many of you experience muscle aches/muscle fatigue with PBC? If so, what helps (if anything?!) I'm aching all over today,...

Hi all, I'm just wondering if many of you experience muscle aches/muscle fati...

Rachie34

•9 months ago

23 Replies

travel insurance advise

thank you for all the tips ive been incontact with stay sure 🌻

Eppy

•9 months ago

2 Replies

UK Poo Study

not sure this link will work as it comes via my Apple News feed but the story appeared in the BBC science section. I’m a believer that our gut micro biome...

not sure this link will work as it comes via my Apple News feed but the story ap...

CeeCee101

•9 months ago

3 Replies

urso weight gain or weight loss

hi I’ve been taking 1.250mg of urso for 5 weeks approx neither gained or lost weight.it would be wonderful if I got the weight loss 🤣 I’m 13 stone, Anyone...

hi I’ve been taking 1.250mg of urso for 5 weeks approx neither gained or lost we...

Eternity6

•9 months ago

8 Replies

Posts - PBC Foundation | HealthUnlocked

PBC Foundation

All posts for August 2023

Headaches

Osteoporosis treatment

PBC - high Amylase level

Thank you

Liver Biopsy Negative can it still be PBC?

sjogrens

Interesting anecdote on brain fog

Is this normal?

pbc question

fibroscan results perplexing

Is it PBC or not?

PBC and skin hyperpigmentation

Immune system

PBC ?

Terrified I have PBC

Muscle aches/fatigue

travel insurance advise

UK Poo Study

urso weight gain or weight loss

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