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PBC Foundation

9,391 members • 8,002 posts

All posts for December 2017

My blood work

I was told to go to an urgent care to have blood work done because no doctor was available to do order the blood tests at my GI Dr's office. When I got the...

I was told to go to an urgent care to have blood work done because no doctor was...

Yankeerose3

•6 years ago

2 Replies

Azathioprine side effects

Hi Not posted for a while but find encouragement from everyone’s posts. Having had PBC for 4 years and recently been diagnosed with PBC/AIH I was wondering if...

Hi Not posted for a while but find encouragement from everyone’s posts. Having h...

Jayne1863

•6 years ago

6 Replies

AMA negative

Hello, finally switched doctors to a hepatologist, he did blood work AMA is negative Alk phos is 391 other liver lvls slightly elevated , had a fibroscan done...

Hello, finally switched doctors to a hepatologist, he did blood work AMA is nega...

mamma261

•6 years ago

19 Replies

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AMA test vs AMA M2

I am confused after reading a lot of information about the AMA test. My result was equivocal 24.3 on an AMA M2 test (positive greater than 24.9) Is this test...

I am confused after reading a lot of information about the AMA test. My result w...

Dwaffle16

•6 years ago

19 Replies

Equivocal AMA

I have chronic severe daily nausea with many other chronic issues such as burning urination. I am in so much pain on a regular basis that I am unable to...

I have chronic severe daily nausea with many other chronic issues such as burnin...

Dwaffle16

•6 years ago

24 Replies

Advice for someone just diagnosed with PBC- stage 3

Hello, I'm actually writing for my sister who was just diagnosed last month with PBC. She is 42 and in stage 3. I am wondering if anyone has any advice for...

Hello, I'm actually writing for my sister who was just diagnosed last month with...

jennymcdonough

•6 years ago

16 Replies

What is the cause of the itching?

I know that liver disease causes itching - but what causes it? Is it inflammation? toxins? I'm on Olestyr / Cholestyramine and it works great to take away...

I know that liver disease causes itching - but what causes it? Is it inflammati...

TheresaPeters

•6 years ago

4 Replies

Toe ackes

I have ackey bones and muscles. I have noticed my middle toe hurts so bad, i feel like i bumped it on something. Anyone ever had that happen?

I have ackey bones and muscles. I have noticed my middle toe hurts so bad, i fee...

KevinHall10_

•6 years ago

4 Replies

Positive AMA

Hi, I went to a rheumatologist because my primary sent me for pain in my hands. He had ordered labs, but through the patient portal, I saw nothing mentioning...

Hi, I went to a rheumatologist because my primary sent me for pain in my hands. ...

Gatorlin

•6 years ago

64 Replies

First post = Hello

Hello i'm 51 in Maidstone kent diagnosed 2 years ago from blood tests and scans and put on meds i am also anaemic i'm tired and having to reduce my work hours...

Hello i'm 51 in Maidstone kent diagnosed 2 years ago from blood tests and scans ...

julieausten

•6 years ago

3 Replies

PBC - Auto Immune Hep Overlap? Anyone else?

Does anyone else have these two auto immune liver diseases? I'm having trouble finding information about the two together.

Does anyone else have these two auto immune liver diseases? I'm having trouble ...

TheresaPeters

•6 years ago

9 Replies

6-week update on ocaliva

Update on me. For reference I was diagnosed with PBC in March 2017, with the levels in the parentheses below. Went on urso which was helping but then plateaued...

Update on me. For reference I was diagnosed with PBC in March 2017, with the lev...

Ottley3

•6 years ago

20 Replies

Dry skin & Urso

I hope everyone had a wonderful Christmas! I have a question about dry skin after starting Urso. I itch of course, but my skin is dryer than it’s ever been. I...

I hope everyone had a wonderful Christmas! I have a question about dry skin afte...

Stephanellie

•6 years ago

16 Replies

Getting a cold

I rarely get a cold but I feel a good one coming on. Temp here in Michigan is hovering around 5. I used to drink the tried and true Alkeseltzer Cold stuff but...

I rarely get a cold but I feel a good one coming on. Temp here in Michigan is ho...

shadowme2

•6 years ago

9 Replies

Runny nose and watery eyes

Hi everyone hope everyone is well need some advice want to get rid of runny nose and watery eyes

Hi everyone hope everyone is well need some advice want to get rid of runny nose...

Jose1974

•6 years ago

5 Replies

Raw Fish?

Has anyone else been told not to eat raw fish? My boyfriend was just told that raw fish could greatly harm him, but I have not read or heard that anywhere else...

Has anyone else been told not to eat raw fish? My boyfriend was just told that r...

Hello13

•6 years ago

14 Replies

Red eyes

Does anyone have trouble with their eyes. My right eye in particular gets red and watery, I find colds and ailments take too long to go away especially in...

Does anyone have trouble with their eyes. My right eye in particular gets red an...

Fergusonm2

•6 years ago

16 Replies

Recently Diagnosed but confused...

Hi all, I was recently diagnosed (blindsided) with PBC after routine blood work. I went in for a biopsy last week to find out what stage and the ultrasound...

Hi all, I was recently diagnosed (blindsided) with PBC after routine blood wor...

Rebekahw74

•6 years ago

6 Replies

Blood tests

My rheumatologist called today and he did a lot of tests on me and my liver enzymes went Sky High my alkaline phosphatase went from 360 to 500 alt 85 to 140...

My rheumatologist called today and he did a lot of tests on me and my liver enzy...

mjk98

•6 years ago

11 Replies

THOSE IN STAGE 3 PBC ANYONE EXPERIENCING A BIT MORE NAUSEA AT VARIOUS TIMES NOT ASSOCIATED WITH EATING AND/OR DRINKING LIQUIDS?

I was dx'd Stage 1 in 2001 via biopsy; Stage 2 in 2011 via biopsy; Stage 3 in Sept. 2017 via Elastography. Am experiencing a slightly, only slightly, nausea...

I was dx'd Stage 1 in 2001 via biopsy; Stage 2 in 2011 via biopsy; Stage 3 in Se...

kehello

•6 years ago

3 Replies

Test kit

Hi, is it possible to buy a self test kit for PBC? I was diagnosed in August and don’t go back to see the specialist until February and would like to know how...

Hi, is it possible to buy a self test kit for PBC? I was diagnosed in August and...

Gillian61

•6 years ago

10 Replies

mitochondrial antibody

What does it mean when the mitochondrial antibody result is 66.1?

Yankeerose3

•6 years ago

14 Replies

PBC

Merry Christmas from Ireland

Ballymahon2

•6 years ago

7 Replies

PBC?

Christmas Morning. Wishing everyone a joyous Christmas filled with peace of mind, body and soul. Sprinkled with liberal amounts of love, laughter and cheer. I...

Christmas Morning. Wishing everyone a joyous Christmas filled with peace of mind...

Tuffymason

•6 years ago

4 Replies

Merry Christmas

Wishing you all and your families a very happy and healthy Christmas from bonnie Scotland.

Wishing you all and your families a very happy and healthy Christmas from bonnie...

June9961

•6 years ago

2 Replies

Merry Christmas

Merry Christmas everyone hope you all enjoy love and hugs to you all. Also update I start clinical trials in Birmingham next month to hopefully stop the...

Merry Christmas everyone hope you all enjoy love and hugs to you all. Also upd...

Lilbear89

•6 years ago

1 Reply

Merry Christmas

I hope you all have a wonderful Christmas! Love from North Carolina. Karen

Ellewoods33

•6 years ago

1 Reply

Newbie Here

New user here. Can someone help me with abbreviations you all use? Urso, AMA, etc? Thinking about all this on top of the Fibro/CFS/ME is frightening after...

New user here. Can someone help me with abbreviations you all use? Urso, AMA, ...

CMThomas99

•6 years ago

4 Replies

MERRY CHRISTMAS

Hope everyone has a happy, healthy Christmas 🎄🤶🏻

gwillistexas

•6 years ago

16 Replies

Dahlia54

Hi Everyone I was diagnosed with PBC in March of this year. Since then my white blood cell count has been going down and now is below normal. I'm seeing a...

Hi Everyone I was diagnosed with PBC in March of this year. Since then my white...

dahlia54

•6 years ago

2 Replies

Posts - PBC Foundation | HealthUnlocked

PBC Foundation

All posts for December 2017

My blood work

Azathioprine side effects

AMA negative

AMA test vs AMA M2

Equivocal AMA

Advice for someone just diagnosed with PBC- stage 3

What is the cause of the itching?

Toe ackes

Positive AMA

First post = Hello

PBC - Auto Immune Hep Overlap? Anyone else?

6-week update on ocaliva

Dry skin & Urso

Getting a cold

Runny nose and watery eyes

Raw Fish?

Red eyes

Recently Diagnosed but confused...

Blood tests

THOSE IN STAGE 3 PBC ANYONE EXPERIENCING A BIT MORE NAUSEA AT VARIOUS TIMES NOT ASSOCIATED WITH EATING AND/OR DRINKING LIQUIDS?

Test kit

mitochondrial antibody

PBC

PBC?

Merry Christmas

Merry Christmas

Merry Christmas

Newbie Here

MERRY CHRISTMAS

Dahlia54

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