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PBC Foundation

9,386 members • 7,990 posts

All posts for March 2012

hi i am new to this site, and wonder if anyone has ever experienced bringing up bright orange bile?

silvi

•12 years ago

4 Replies

PBC and Gum Disease

Ive just come back from the dentist and been told that the gum disease I have been fighting for 10 years is out of control and he going to consult a specialist...

Ive just come back from the dentist and been told that the gum disease I have be...

Val02

•12 years ago

9 Replies

Help and advice needed regarding my ESA tribunal

last October I failed my ESA medical, I unfortunately never prepared myself for it and recieved 0 points, I put in my appeal and have just recieved my tribunal...

last October I failed my ESA medical, I unfortunately never prepared myself for ...

Cherry17

•12 years ago

8 Replies

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PBC and Diabetes.

Anybody out there having the two? Or at least an imbalance in blood sugar levels?

Anybody out there having the two? Or at least an imbalance in blood sugar levels...

Cristina_Romania

•12 years ago

7 Replies

hi all is anyone on here living in australia with pbc, i was diagnosed 12 yrs ago had liver failure last sep 2011

plizzard

•12 years ago

6 Replies

ANXIETY anyone?

Anyone having unexplained extreem anxiety? I mean no family or work issues. You are just anxious and can not pinpoint it. Just wondering if it is part of PBC...

Anyone having unexplained extreem anxiety? I mean no family or work issues. You...

kosy2

•12 years ago

23 Replies

Just feeling sorry for myself !!

Just got in from work 8-3.45 feel so tired and weepy. I have desk job but have to manage several diffrent applications and call customers . Just feel like its...

Just got in from work 8-3.45 feel so tired and weepy. I have desk job but have ...

cowren

•12 years ago

9 Replies

Has anyone been able to claim attendance allowance

Jgreen46

•12 years ago

12 Replies

hI

I have had pbc since 1998. I am medically retired. I am a first timer here. I always managed to stay cheerful, but find it quite difficult since my husband...

I have had pbc since 1998. I am medically retired. I am a first timer here. I al...

paulineemily

•12 years ago

11 Replies

HI, can anybody help a confused new sufferer please?

Does anyone out there have "cross-over syndrome? The results of my liver biopsy stated autoimmune hepatitis with some features of PBC and sclerosing...

Does anyone out there have "cross-over syndrome? The results of my liver biopsy ...

SamT

•12 years ago

13 Replies

head shave

lets all get behind robert and donate to his head shave as a big thank you for all the pbc foundation do to support us all good on you robert!!

lets all get behind robert and donate to his head shave as a big thank you for a...

spoul

•12 years ago

6 Replies

American needs traslation

What is the differance between a GP and a consultant?

kosy2

•12 years ago

2 Replies

Liver Biopsy?

How many have had liver biopsy and what kind and what stage? I had a laporscopic biopsy with 3 samples taken. Two showed stage 2, one showed stage 3.

How many have had liver biopsy and what kind and what stage? I had a laporscopi...

kosy2

•12 years ago

19 Replies

"Even if I have PBC, I very much enjoy life because....."

Ihave talked recently to a couple of quite depressed, scared, sad PBC people, but also to a few very active and positive ones. I try to take positive mental...

Ihave talked recently to a couple of quite depressed, scared, sad PBC people, bu...

Cristina_Romania

•12 years ago

7 Replies

Bile

I have a very dry mouth but for quite a while now (months) I get like a thick bile in the back of my throat which starts me coughing, choking, then can nearly...

I have a very dry mouth but for quite a while now (months) I get like a thick bi...

zipitydoo

•12 years ago

10 Replies

How many of you have a positive AMA?

I had quite a few tests in Denmark and my AMA came back negative. I've never had a test for it in UK. The other tests I had was Anti Smooth Muscle and ANA...

I had quite a few tests in Denmark and my AMA came back negative. I've never had...

TracyLou

•12 years ago

14 Replies

Do you use hair colourants?

I have found an interesting article on hair colourants and wondered how many of you out there use it at intervals? I am 47 and never permed/dyed my hair until...

I have found an interesting article on hair colourants and wondered how many of ...

Hidden

•12 years ago

9 Replies

Does anyone with PBC take vitamin supplements?

mojo62

•12 years ago

19 Replies

Has anyone had to apply for medical retirement? If so was it agreed or turned down? Any advice please.

Hidden

•12 years ago

19 Replies

What is a fibroscan?

i have just been diagnosed with pbc. I am due to have a fibroscan and ultrasound in a couple of weeks. No idea what a fibroscan is. Also can anyone give me an...

i have just been diagnosed with pbc. I am due to have a fibroscan and ultrasound...

mojo62

•12 years ago

7 Replies

Repeat blood test?!

Had routine bloods done last week (GP suggests every 2 months) and have just received a letter from surgery asking me to have them repeated within a week of...

Had routine bloods done last week (GP suggests every 2 months) and have just rec...

jrobertson1

•12 years ago

4 Replies

Dizziness after travel

Does anyone else experience severs dizziness following travel by boat, train or plane? I am fine while actually travelling and never experience nausea even in...

Does anyone else experience severs dizziness following travel by boat, train or ...

JerseyChris

•12 years ago

7 Replies

Bile.

Been reading on here about the liver and bile as in when it is made recently. Thought it would be of interest to read this extract from netdoctor.co.uk...

Been reading on here about the liver and bile as in when it is made recently. T...

Hidden

•12 years ago

7 Replies

Anyone out there using milk thistle?

Have read on here about turmeric before but is anyone using milk thistle and if so, have they got what they think any more positive results.

Have read on here about turmeric before but is anyone using milk thistle and if ...

Hidden

•12 years ago

5 Replies

What is the brand name of your URSO if you had the itch upon starting and how is your prescription for it written.

I can't help wondering what others are on for PBC medication-wise with regards to the URSO. I have the URDOX brand and my GP gives me a prescription with just...

I can't help wondering what others are on for PBC medication-wise with regards t...

Hidden

•12 years ago

9 Replies

22 years old & Just diagnosed i have so many questions

so im 22 years old and come to find out i have pbc, im scared to death iv read life expectancy is only 10 years with this disease can anyone fill me in?

so im 22 years old and come to find out i have pbc, im scared to death iv read l...

shannono22

•12 years ago

31 Replies

i was diagnosed with pbc in december of last year im not sure as to what names are given to these blood levels only that 3 positive blood

test came back which resulted in the antibody test being done and coming back positive today ( 14th march ) i went for a firbro scan and was told i had no...

test came back which resulted in the antibody test being done and coming back p...

debg

•12 years ago

5 Replies

Hair loss - thinning hair

I've got positive amas at 320 titre and have beene xperiencing very strange symptoms for over a year now including transient stinging pain - bruising and...

I've got positive amas at 320 titre and have beene xperiencing very strange symp...

Hidden

•12 years ago

31 Replies

severe menopausal problems

hi everyone, i was age 52 and suffering severe symptoms, mainly horrendous night sweats, tried combined hrt, after reluctance from gp and consultant didn't...

hi everyone, i was age 52 and suffering severe symptoms, mainly horrendous night...

spoul

•12 years ago

9 Replies

Plaquenil

I have heard quite a few references to this drug from people that have PBC and other auto immune issues. I have also read that its not really liver friendly....

I have heard quite a few references to this drug from people that have PBC and o...

zipitydoo

•12 years ago

6 Replies

Posts - PBC Foundation | HealthUnlocked

PBC Foundation

All posts for March 2012

hi i am new to this site, and wonder if anyone has ever experienced bringing up bright orange bile?

PBC and Gum Disease

Help and advice needed regarding my ESA tribunal

PBC and Diabetes.

hi all is anyone on here living in australia with pbc, i was diagnosed 12 yrs ago had liver failure last sep 2011

ANXIETY anyone?

Just feeling sorry for myself !!

Has anyone been able to claim attendance allowance

hI

HI, can anybody help a confused new sufferer please?

head shave

American needs traslation

Liver Biopsy?

"Even if I have PBC, I very much enjoy life because....."

Bile

How many of you have a positive AMA?

Do you use hair colourants?

Does anyone with PBC take vitamin supplements?

Has anyone had to apply for medical retirement? If so was it agreed or turned down? Any advice please.

What is a fibroscan?

Repeat blood test?!

Dizziness after travel

Bile.

Anyone out there using milk thistle?

What is the brand name of your URSO if you had the itch upon starting and how is your prescription for it written.

22 years old & Just diagnosed i have so many questions

i was diagnosed with pbc in december of last year im not sure as to what names are given to these blood levels only that 3 positive blood

Hair loss - thinning hair

severe menopausal problems

Plaquenil

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