Posts - PBC Foundation | HealthUnlocked

PBC Foundation

9,389 members • 7,995 posts

All posts for August 2015

life expectancy

i am 56 found out i had 3rd stage pbc, approx, 5 yrs ago, ihave been woking 7 days a week four at least that long. i have recently noticed a slight change i n...

i am 56 found out i had 3rd stage pbc, approx, 5 yrs ago, ihave been woking 7 da...

marydexter

•9 years ago

4 Replies

Pbc suspected but no urso if normal liver biochemistry

During my consultation with a rheumatologist for my knee and finger arthritis my blood tests revealed antibodies against ANA 1:1240 with MND positivity in...

During my consultation with a rheumatologist for my knee and finger arthritis my...

Mmehta

•9 years ago

37 Replies

Stopping urso

Hi there. I've been taking urso for 9 years but have gradually become intolerant and have stopped taking it two weeks ago. Feeling a lot better now. I was...

Hi there. I've been taking urso for 9 years but have gradually become intolerant...

burbjay

•9 years ago

6 Replies

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Pbc

Hi I was diagnosed last yr with pbc due too itching yellow eyes unable sleep at night strange blemishes on skin in which was told was definitely a sign and...

Hi I was diagnosed last yr with pbc due too itching yellow eyes unable sleep at ...

katkatkat

•9 years ago

7 Replies

Alt and alp raised post transplant? Bile problems?

Hey everyone, I have never posted on here before but I am planning to write about my mum soon. My mum suffered from liver cirrhosis as a result of her diabetes...

Hey everyone, I have never posted on here before but I am planning to write abou...

Hopingformumxx

•9 years ago

7 Replies

Finally Seen Specialist

I went to see the specialist for results of my endoscopy. She said everything looked good but my levels are high and that goes with pbc. She wants to do a...

I went to see the specialist for results of my endoscopy. She said everything lo...

Lisa15

•9 years ago

8 Replies

Liver transplant list

I have just spent the best part of the last 5 months in and out of hospital which has now resulted in me being placed on the liver transplant list. Is anyone...

I have just spent the best part of the last 5 months in and out of hospital whic...

Jac-ster

•9 years ago

2 Replies

Blood tests

I was diagnosed with PBC in May this year after a spell in hospital with Jaundice and Hepatitus .Just been to see a doctor at my surgery ( not my own doctor )...

I was diagnosed with PBC in May this year after a spell in hospital with Jaundic...

Anneeileen1

•9 years ago

6 Replies

Relaxed doctor

Hi, everyone. Looking for some guidance. I have been seeing the specialist for about 3 years due to water retention, fatigue, high liver enzymes. He put me on...

Hi, everyone. Looking for some guidance. I have been seeing the specialist for a...

mek4wlk

•9 years ago

7 Replies

Low blood pressure

Hi I am currently weaning off the prednisolone but today before I went for my health walk, I had my blood pressure taken by NHS health and well being team. My...

Hi I am currently weaning off the prednisolone but today before I went for my he...

Alley27

•9 years ago

6 Replies

Itchy problem

Hi everyone, It's been such a long time since I was last on here. My biggest problem, like so many of you, is the awful itchy skin! I have tried pretty much...

Hi everyone, It's been such a long time since I was last on here. My biggest pr...

madmags

•9 years ago

25 Replies

Tired with Nausea

Hi I have AIH/PBC overlap and we are trying to lower and finally remove steroids from my treatment because I have developed osteopenia. I am down to 1 mg per...

Hi I have AIH/PBC overlap and we are trying to lower and finally remove steroids...

Alley27

•9 years ago

2 Replies

AMA TEST

I was diagnosed in 2007 from blood work, no biopsy. I had a Mitochondrial (M2) Antibody score of 42.3. The lab has a reference interval of >24.9 for positive....

I was diagnosed in 2007 from blood work, no biopsy. I had a Mitochondrial (M2) A...

ranick618

•9 years ago

13 Replies

Does PBC respond to steroids?

Any help please? I was originally diagnosed with PBC and following a biopsy also diagnosed with AIH/PBC overlap. I was already on Urso and pred and Aza were...

Any help please? I was originally diagnosed with PBC and following a biopsy also...

Godfrey1

•9 years ago

8 Replies

Raised Alkaline phosphate and cholesterol levels.

I received blood test results today that show a sharp rise in Alkaline phosphate levels and my cholesterol has also raised from normal to 6.5. I have never had...

I received blood test results today that show a sharp rise in Alkaline phosphate...

Shiloh119

•9 years ago

2 Replies

Sad day

This morning I learnt of the passing of a friend. A few weeks ago I wrote on here about a young lady who was waiting for a 4th liver transplant.. I have met...

This morning I learnt of the passing of a friend. A few weeks ago I wrote on her...

Brummi

•9 years ago

21 Replies

Allergic reaction to all medication

Diagnosed with pbc 9 years ago and have been on urso since then. Gradually over the years I've become intolerant to different medication ie statins,...

Diagnosed with pbc 9 years ago and have been on urso since then. Gradually over ...

member1

•9 years ago

6 Replies

Swollen ankles

Hi I have has PBC for almost 12 years and in the last few months I have been suffering from swollen ankles I work in an office Monday to Friday and find that...

Hi I have has PBC for almost 12 years and in the last few months I have been su...

nonnies

•9 years ago

6 Replies

Waiting for diagnosis

Hi I am new to the site and wondered if anyone has had a similar experience or can offer advice about PBC. In August last year I was tested for coeliac as I...

Hi I am new to the site and wondered if anyone has had a similar experience or c...

Happy43

•9 years ago

19 Replies

Pbc

Thank you for the mesg, husband gets check ups at hospital and doctors every 2 weeks. He has250g x 3 he takes and 2 powders. He was itchy , yellow eyes and...

Thank you for the mesg, husband gets check ups at hospital and doctors every 2 w...

2783

•9 years ago

1 Reply

Sandra

Do you need to tell you mortgage if you get pbc

2783

•9 years ago

2 Replies

Sandra

Hi, my husband has been diagnosed with primary bilary cirrhosis in March, doctors have been great but we seam to be left to get on with it best we can.

Hi, my husband has been diagnosed with primary bilary cirrhosis in March, doctor...

2783

•9 years ago

4 Replies

Sensitive to beta blockers?

Does anyone else have a problem with these or am I unusually sensitive to them? In march of last year I was active,going to the Gym 3x weekly and a dance...

Does anyone else have a problem with these or am I unusually sensitive to them? ...

crundalite

•9 years ago

2 Replies

bile - bears

I deleted something on here by mistake but before I did so I read that our urso was made from the bile of bears in horrid conditions in china surely not please...

I deleted something on here by mistake but before I did so I read that our urso ...

Shirleygreen

•9 years ago

6 Replies

Hello I'm new...

I'm new to this... im live in the US in CA. was diagnosed last year with PBC... joined to hear about how to handle over the counter pain medication for...

I'm new to this... im live in the US in CA. was diagnosed last year with PBC... ...

tracemcd29

•9 years ago

4 Replies

PBC and dietary advise

Hi! After being dignosed with PBC (and possible AIH overlap) I've gradually learned to accept the fact that I have PBC and it's not the end of the world......

Hi! After being dignosed with PBC (and possible AIH overlap) I've gradually lear...

Terhen

•9 years ago

11 Replies

insidious

Why insidious? Well. I have AIH/PBC overlap with Hashimotos disease (untreated) and 6 weeks ago I had a DEXA bone scan. I have the results back and I am not...

Why insidious? Well. I have AIH/PBC overlap with Hashimotos disease (untreated) ...

Alley27

•9 years ago

13 Replies

Dizzy spells with PBC

Hi, I'm 41 and was diagnosed last week with PBC, waiting to hear if I also have overlapping AIH. Biopsy is scheduled for Aug 17th. My symptoms so far are...

Hi, I'm 41 and was diagnosed last week with PBC, waiting to hear if I also have...

happyclam

•9 years ago

6 Replies

Just diagnosed with PBC

Hello, Thankful I've found your forum. I went to GP for gastro issues and found to test positive for AMA. Was prescribed Urso 300 mg x 3 a day. Just curious as...

Hello, Thankful I've found your forum. I went to GP for gastro issues and found ...

kauthement

•9 years ago

20 Replies

newly diagnosed

Hi I'm 41 and have just been diagnosed with pbc and it's all I think about 24/7 which isn't really a good thing as I have two small children and juggle work...

Hi I'm 41 and have just been diagnosed with pbc and it's all I think about 24/7 ...

Tg10

•9 years ago

44 Replies

Posts - PBC Foundation | HealthUnlocked

PBC Foundation

All posts for August 2015

life expectancy

Pbc suspected but no urso if normal liver biochemistry

Stopping urso

Pbc

Alt and alp raised post transplant? Bile problems?

Finally Seen Specialist

Liver transplant list

Blood tests

Relaxed doctor

Low blood pressure

Itchy problem

Tired with Nausea

AMA TEST

Does PBC respond to steroids?

Raised Alkaline phosphate and cholesterol levels.

Sad day

Allergic reaction to all medication

Swollen ankles

Waiting for diagnosis

Pbc

Sandra

Sandra

Sensitive to beta blockers?

bile - bears

Hello I'm new...

PBC and dietary advise

insidious

Dizzy spells with PBC

Just diagnosed with PBC

newly diagnosed

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