Posts - PBC Foundation | HealthUnlocked

PBC Foundation

9,484 members•8,374 posts

All posts for June 2019

Alpha fetoproteine.

Morning everybody! Is someone with PBC has slightly elevated alpha Fetoproteine? Have red that in normal with pbc.

Morning everybody! Is someone with PBC has slightly elevated alpha Fetoproteine?...

Belgium22

•5 years ago

7 Replies

Blood test results.

Is ALP the same thing as ALK i.e. Serum Alkaline Phosphatase.? Also, my Serum Gamma GT is 156 and apparently the norm is 0-40. Does that seem very high...

Is ALP the same thing as ALK i.e. Serum Alkaline Phosphatase.? Also, my Serum...

7443jec

•5 years ago

10 Replies

Feeling angry today ha

Hi , I'd like someone to tell me if it's me reading into a problem I've had with universal credit from the 1st time I handed them a fit note . As I was getting...

Hi , I'd like someone to tell me if it's me reading into a problem I've had with...

SmallFreeBee

•5 years ago

4 Replies

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Urso.PBC

Goodmorning!how long it takes before your blood work improves, after starting Urso?

Goodmorning!how long it takes before your blood work improves, after starting Ur...

Belgium22

•5 years ago

17 Replies

Account access

@Slaines1952 Trish are you back on? Xx

P13jne

•5 years ago

4 Replies

Sore eyes

I am hoping that anyone will help regarding my eyes. For the last 7 weeks I have had dry sore eyes (even my eyeballs hurt) I have been to my gp twice and also...

I am hoping that anyone will help regarding my eyes. For the last 7 weeks I have...

Jayne1863

•5 years ago

10 Replies

Newly Diagnosed and Scared

I am a 38 year old wife and mother of 3 that has been recently diagnosed with PBC after abnormal LFT's over the course of 1.5 years. In Nov.2017 ALP 218/ALT...

I am a 38 year old wife and mother of 3 that has been recently diagnosed with PB...

Katienharley

•5 years ago

44 Replies

Biopsy results, should I worry ?

Can you feel varices at all ? is there any way for me to tell other than waiting for them to bleed ? any symptom they are there ? Biopsy #1 five years ago...

Can you feel varices at all ? is there any way for me to tell other than waiting...

Pheebe

•5 years ago

3 Replies

Buddy in the hull area ?

I’m indeed of a pbc buddy please near hull ... anyone ?

Mrsfancypants

•5 years ago

10 Replies

Alk phos went up.

Hello everyone, I was diagnosed almost.a year ago after I gave birth to my daughter. My alk phos was around 348. I started urso last July. I have no scarring....

Hello everyone, I was diagnosed almost.a year ago after I gave birth to my daug...

Th1712

•5 years ago

20 Replies

Why women get more AI diseases

Hi, Interesting article regarding theories - why women get the majority of autoimmune diseases....

Hi, Interesting article regarding theories - why women get the majority of autoi...

EileenUSA

•5 years ago

3 Replies

Angry and stressed

Hi has anyone ever had a flare from anger and stress...I ask because even though I thought something was coming on because I have worked back to back shifts on...

Hi has anyone ever had a flare from anger and stress...I ask because even though...

Alley27

•5 years ago

16 Replies

Varices

I have recently been diagnosed with PBC and have found this website to be very informative. I have read a lot of posts from people talking about varices but am...

I have recently been diagnosed with PBC and have found this website to be very i...

Spanishnan

•5 years ago

7 Replies

Latest Labs since off OCA

Hi PBC family, I'm not posting on here as much as I used to be. I check in and read posts twice a week. ❤ So, my hep put me on OCA. I was on it for 2 months....

Hi PBC family, I'm not posting on here as much as I used to be. I check in and ...

Ktltel

•5 years ago

16 Replies

Catch up

Hi everyone, I’ve not been on here for a few days. Hope everyone is feeling good, the weather in Scotland the last 2 days has been wonderful which makes me...

Hi everyone, I’ve not been on here for a few days. Hope everyone is feeling good...

P13jne

•5 years ago

17 Replies

Bob the builder

Hi I'm hoping someone has a helping answer to my Q . I'm due to go to my tribunal appeal hearing any time soon . After I was given the dredded 0 points at my...

Hi I'm hoping someone has a helping answer to my Q . I'm due to go to my tribuna...

SmallFreeBee

•5 years ago

4 Replies

Bladder tumour

Just wondering if anyone else has had a bladder tumour removed? Waiting for pathology but is cancerous to some extent. My system is all over the place and I am...

Just wondering if anyone else has had a bladder tumour removed? Waiting for path...

jrobertson1

•5 years ago

1 Reply

Urso side effects.

I’ve been on Urso for two months now. For the last couple of weeks my eyes have been very sore and I have sinus headache. This isn’t really anything new as I...

I’ve been on Urso for two months now. For the last couple of weeks my eyes have...

7443jec

•5 years ago

12 Replies

Newly diagnosed.

Just recently been diagnosed with PBC although showing no physical symptoms apart from fatigue. LFTS were highly elevated with an ALP of 842. Fibroscan...

Just recently been diagnosed with PBC although showing no physical symptoms apar...

Cody23

•5 years ago

3 Replies

Urso nonresponder

What drugs are people on if they aren’t an Urso responder and are they helping at all?

What drugs are people on if they aren’t an Urso responder and are they helping a...

Wocket

•5 years ago

11 Replies

Positive antibody results, please help

Hello all. I am new to this community, I have posted on Thyroid UK and have had lots of helpful advice. I saw my GP in December with some issues which I...

Hello all. I am new to this community, I have posted on Thyroid UK and have had ...

karlek

•5 years ago

4 Replies

PBC in the United States

Hello, Does anyone happen to know how many people have PBC in the United States at the present time? Thanks!

Hello, Does anyone happen to know how many people have PBC in the United States ...

tealmust

•5 years ago

23 Replies

Hair colouring

Thank you all for the replies highlights it is and a decent cut not necessarily in that order.

Thank you all for the replies highlights it is and a decent cut not necessarily ...

Biddyb

•5 years ago

10 Replies

PBC & Sarciodosis

I have had PBC for 9 years. Over the last year i have developed red / purple skin rashes. I have had a biopsy and been diagnosed with sarciodosis type...

I have had PBC for 9 years. Over the last year i have developed red / purple ski...

TracG

•5 years ago

10 Replies

Hair colour?

Anyone recommend a safe hair colour to use,(uk) just read that it can be a bit of a no no to use a colour but my grey hair is driving me mad, looks...

Anyone recommend a safe hair colour to use,(uk) just read that it can be a bit ...

Biddyb

•5 years ago

18 Replies

Everest base camp with pbc

Hi everyone, Im in the very early stages of pbc and take urso. I am fortunate that i do not suffer ill health and i am super fit, as long as i have a very low...

Hi everyone, Im in the very early stages of pbc and take urso. I am fortunate th...

pottery1

•5 years ago

8 Replies

Anyone out there with Neuralgia, just been diagnosed and struggling to cope.

I've just been diagnosed with neuralgia, also just getting over torn retina now got dry eyes, having a pretty hard time coping with all this as well as PBC...

I've just been diagnosed with neuralgia, also just getting over torn retina now ...

Jaycee

•5 years ago

5 Replies

Endoscopy

Hi, I am very recently diagnosed, am having an endoscopy to get a baseline for possible varices. Does any one know what happens if they DO find varices? A...

Hi, I am very recently diagnosed, am having an endoscopy to get a baseline for p...

7443jec

•5 years ago

9 Replies

PBC

I was diagnosed with PBC a year ago. I often have a red rash that looks more like red dots on my face, especially my nose and cheeks. Does anyone else have...

I was diagnosed with PBC a year ago. I often have a red rash that looks more lik...

Sherpric

•5 years ago

9 Replies

Food

Hi guys Are there foods I should avoid?

susanashworth

•5 years ago

6 Replies

Posts - PBC Foundation | HealthUnlocked

PBC Foundation

All posts for June 2019

Alpha fetoproteine.

Blood test results.

Feeling angry today ha

Urso.PBC

Account access

Sore eyes

Newly Diagnosed and Scared

Biopsy results, should I worry ?

Buddy in the hull area ?

Alk phos went up.

Why women get more AI diseases

Angry and stressed

Varices

Latest Labs since off OCA

Catch up

Bob the builder

Bladder tumour

Urso side effects.

Newly diagnosed.

Urso nonresponder

Positive antibody results, please help

PBC in the United States

Hair colouring

PBC & Sarciodosis

Hair colour?

Everest base camp with pbc

Anyone out there with Neuralgia, just been diagnosed and struggling to cope.

Endoscopy

PBC

Food

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