Posts - PBC Foundation | HealthUnlocked

PBC Foundation

9,389 members • 7,995 posts

All posts for March 2023

Bile Acid Diarrhoea

Hi just wondering if anyone with PBC has BAD and if they take Cholestagel

Gwelos

•1 year ago

4 Replies

Nanoparticle Drug cure for PBC?

Hello everyone! I haven't been here for quite some time...I was curious if you all have read about this discovery? I'm quite interested in it. It sounds...

Hello everyone! I haven't been here for quite some time...I was curious if you a...

shadowme2

•1 year ago

11 Replies

PBC with low white blood count?

Hi - just wondering if anyone also has low white blood count with their PBC? My WBC is 3.6 (in particular low lymphocytes and neutrophils). I am AMA and ANA...

Hi - just wondering if anyone also has low white blood count with their PBC? M...

FarahS

•1 year ago

2 Replies

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liver levels

hi everybody I was just wondering if anyone else has high levels other then the alp? I’ve just had my bloods done my levels r, AST 77, ALP 512, BIL 13, GGT...

hi everybody I was just wondering if anyone else has high levels other then the ...

Lena2011

•1 year ago

7 Replies

Private health with PBC

Hi there - I have a very specific question related to anyone who has PBC, has private health insurance and may have developed a new diagnosis later down the...

Hi there - I have a very specific question related to anyone who has PBC, has pr...

FarahS

•1 year ago

2 Replies

bone infusions

any advice good or bad on having a bone infusion ?

Cathycomehome

•1 year ago

3 Replies

vitamin D K2 & calcium

good morning i have had bone scan and been advised to take above vitamins. Ive got Osteopenia any advice on best make as they all have lots of extra...

good morning i have had bone scan and been advised to take above vitamins. Ive g...

Eppy

•1 year ago

14 Replies

Gastro

Help ! Hi everyone I've been suffering with bloating and its painful and unpleasant I'm tacking mebeverine sometimes it helped but lately it's getting worse is...

Help ! Hi everyone I've been suffering with bloating and its painful and unpleas...

Purdy2017

•1 year ago

16 Replies

worried no medication will help

hi my alp levels r still 529 after being on urso for 1 year. I’m so worried that no medications for work too get my levels normal, has anyone else had trouble...

hi my alp levels r still 529 after being on urso for 1 year. I’m so worried that...

Lena2011

•1 year ago

15 Replies

Vitamin D - daily dose?

when I was first diagnosed with PBC my Vit D levels were low so had a high dose supplement which brought levels up to normal range. Bone density scan was OK....

when I was first diagnosed with PBC my Vit D levels were low so had a high dose ...

DebatDG9

•1 year ago

5 Replies

Natural remedies. Essential oils.

Have any of you used essential oils to help with PBC. I have been researching the use of oils to help detox and dilate the ducts to help with releasing the...

Have any of you used essential oils to help with PBC. I have been researching th...

pbc-zero

•1 year ago

2 Replies

Urso Acid and headaches

hi everyone can I ask if anyone taking Urso has any problem with headaches? Thanks

hi everyone can I ask if anyone taking Urso has any problem with headaches? Tha...

Deemum

•1 year ago

10 Replies

Hepatologist Appts

Good Morning. I’m just curious how many of you see your hep once a year? I’m still stage 2 fibrosis ( by fibroscan & biopsy), but I’m not really okay with...

Good Morning. I’m just curious how many of you see your hep once a year? I’m st...

gwillistexas

•1 year ago

40 Replies

Life Expectancy

Not sure how I feel reading the assessment from my consultant as follows. "I have no overt concerns from a liver disease perspective as she has lived years...

Not sure how I feel reading the assessment from my consultant as follows. "I ha...

Oidra

•1 year ago

4 Replies

water infections

Hi everyone I keep getting water infections 2 weeks ago antibiotics and went hospital this morning to be told another infection so more antibiotics. My problem...

Hi everyone I keep getting water infections 2 weeks ago antibiotics and went hos...

Dese

•1 year ago

7 Replies

ursodeoxycholic acid

hi everyone, Hope your all well. I’ve had pbc for about a year now. I take 500mg of ursodeoxycholic acid twice per day. I suffer from waves of nausea at...

hi everyone, Hope your all well. I’ve had pbc for about a year now. I take 500mg...

Sunliver

•1 year ago

23 Replies

Treating Covid with anti virals

hi I have PBC these past 12 years- I’m 72 years old I’m on day day 3 of a Covid infection with the usual symptoms. I been perscribed anti virals to get...

hi I have PBC these past 12 years- I’m 72 years old I’m on day day 3 of a ...

boneytoys

•1 year ago

14 Replies

Diet slim fast

Hi everyone is it ok do go on slim fast ?

Purdy2017

•1 year ago

4 Replies

Posts - PBC Foundation | HealthUnlocked

PBC Foundation

All posts for March 2023

Bile Acid Diarrhoea

Nanoparticle Drug cure for PBC?

PBC with low white blood count?

liver levels

Private health with PBC

bone infusions

vitamin D K2 & calcium

Gastro

worried no medication will help

Vitamin D - daily dose?

Natural remedies. Essential oils.

Urso Acid and headaches

Hepatologist Appts

Life Expectancy

water infections

ursodeoxycholic acid

Treating Covid with anti virals

Diet slim fast

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