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PBC Foundation

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All posts for September 2018

Plattlets and pbc

Hi I have had low plattlets for six yes always around 75 should the Dr have checked for PBC thanks

Hi I have had low plattlets for six yes always around 75 should the Dr have chec...

All1

•6 years ago

11 Replies

ANA

Has anyone ever had a positive ANA?

Irisw

•6 years ago

39 Replies

AMA M2

Ok so all the tests for my liver were normal and I got tested again for AMA and it is positive. Reading about this I see that People with Raynaulds also test...

Ok so all the tests for my liver were normal and I got tested again for AMA and ...

KN1981

•6 years ago

19 Replies

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Hello elevated LFt and ama test postive

Im diagnosed with fatty liver disease and my lft was elevated and my anti mitochondrial test came back elevated. I'm waiting on my doctor for what he orders...

Im diagnosed with fatty liver disease and my lft was elevated and my anti mitoch...

Charwie

•6 years ago

6 Replies

Constant hot flushes causing itch to worsen

Hi all, I’ve been on URSO since Dec 2015 and had intermittent bouts of itching. More noticeable when I’m tired or stressed, but my LFTs have come right down...

Hi all, I’ve been on URSO since Dec 2015 and had intermittent bouts of itching....

Hils67

•6 years ago

13 Replies

Osteoporosis treatment

Hi all, I’ve been told I have bad osteoporosis and was give alendronate and then risedronate both of which caused severe mouth ulcers, I’m due to go back and...

Hi all, I’ve been told I have bad osteoporosis and was give alendronate and then...

sylviaj

•6 years ago

13 Replies

Liver Biopsy

Hi all So I have return back to the Hepatologist And had some more blood tests done. He called me today to say that I need a liver biopsy because the part...

Hi all So I have return back to the Hepatologist And had some more blood test...

Cherry69

•6 years ago

4 Replies

Help shingles pain

I am awake ALL nigh5 with shingles pain what can I take to manage the pain I have gallstone and PB C no one seems to know seen GP 3 times but nothing works...

I am awake ALL nigh5 with shingles pain what can I take to manage the pain I hav...

jaws58

•6 years ago

4 Replies

How is everyone’s bilirubin mine is going up with each blood work from in June it was 1.7 July 1.8 Aug 1.9 and now Sept 2.2

How is everyones bilirubin , my has been going up a point each month June 1.7 , July 1.8 , Aug 1.9 , Sept 2.2

How is everyones bilirubin , my has been going up a point each month June 1.7 , ...

Arlie

•6 years ago

9 Replies

PBC and gastric sleeve bypass

Hi all, I was diagnosed with PBC five years ago. I have struggled with my weight my whole life and now I find it more difficult to enjoy hiking and biking the...

Hi all, I was diagnosed with PBC five years ago. I have struggled with my weigh...

Mobetta2013

•6 years ago

8 Replies

Vibration

Started getting this vibration in my left heel as anybody else experienced this ?

Started getting this vibration in my left heel as anybody else experienced this ...

Steelie

•6 years ago

2 Replies

Just been diagnosed with PBC

I had never heard of PBC 6 weeks ago so was totally stunned when my GP explained what is was. Seen the specialist and had an ultrasound and a bone density...

I had never heard of PBC 6 weeks ago so was totally stunned when my GP explained...

nunbrook

•6 years ago

5 Replies

Has this ever happened to anyone

I’m going to my liver specialist tomorrow . First time in many years i’m somewhat concerned, my bili is up to 2.2 , Albumin low , potassium was low but got...

I’m going to my liver specialist tomorrow . First time in many years i’m somewha...

Arlie

•6 years ago

11 Replies

Alk Phas Rising

I was diagnosed two years ago. I’m on 1000 mg of Urso daily. My alk phas has always run between 130 and 140. My dr was happy with those numbers. All of the...

I was diagnosed two years ago. I’m on 1000 mg of Urso daily. My alk phas has al...

LorraineLouise

•6 years ago

19 Replies

MRE with evidence of fibrosis ptogression

I was diagnosed in 2016 and have been on URSO since then. Thought to have been in very early stages. Labs initially only slightly elevated (Alk phos and ALT)...

I was diagnosed in 2016 and have been on URSO since then. Thought to have been ...

gallatracy

•6 years ago

18 Replies

Pbc joint pain

Does anyone get joint pain from pbc or is it from taking the urso.Also would like to know about any experience of getting reflux after taking urso for 3 years.

Does anyone get joint pain from pbc or is it from taking the urso.Also would lik...

Ballgrl

•6 years ago

20 Replies

Addition

I wish to retract the word 'winning' in the heading of my original post. By no means can I guarantee you winning an appeal and so I shouldn't have used that...

I wish to retract the word 'winning' in the heading of my original post. By no m...

Bamba6799

•6 years ago

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Memory

Hi all For the last few months I have started suffering with some memory lost its not too bad only the odd thing or two like thinking did I already say that or...

Hi all For the last few months I have started suffering with some memory lost it...

tinajohnston

•6 years ago

10 Replies

Can autoimmune diseases cause a false positive for PBC?

I started going to a hematologist because my white bloods cells were elevated. He ran all sorts of lab work and finally got a hit on the CRP test. He also did...

I started going to a hematologist because my white bloods cells were elevated. H...

freckles1962

•6 years ago

8 Replies

Revised

I posted something on this site yesterday but forgot a few things so this is the revised (and hopefully more concise and coherent) version. I also want to post...

I posted something on this site yesterday but forgot a few things so this is the...

Bamba6799

•6 years ago

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As much help and advice on winning an ESA Appeal as I can give.

I have only just found this site but really want to give as much advice and help as I can. I won my appeal against ESA last month. I prepared my own case but...

I have only just found this site but really want to give as much advice and help...

Bamba6799

•6 years ago

6 Replies

Medical problems and ESA tribunal

Hi I'm new to this site , but was wondering if anyone knew about the point scoring system used for ESA , I am waiting for my tribunal and have multiple health...

Hi I'm new to this site , but was wondering if anyone knew about the point scori...

Bradley22

•6 years ago

6 Replies

Question for Ocaliva patients - 5 mg or 10?

Hi! A question for my fellow Ocaliva people .... is it true that everybody starts at 5 mg and then is moved up to 10 mg? I’ve been on 5 mg for almost a year....

Hi! A question for my fellow Ocaliva people .... is it true that everybody start...

Ottley3

•6 years ago

19 Replies

Mid diagnosis perhaps?

Ok so I took some blood tesss last week and the results came back normal. I am going to take all the tests again at a private clinic so I can compare what nhs...

Ok so I took some blood tesss last week and the results came back normal. I am g...

KN1981

•6 years ago

17 Replies

Fibroscan

Hi, I have a diagnosis of PBC since 2008 and I am on urso 750 daily. I have a yearly US and I am wondering what is the purpose of a fibroscan. I know it will...

Hi, I have a diagnosis of PBC since 2008 and I am on urso 750 daily. I have a ye...

Gwelos

•6 years ago

24 Replies

Test results

Saw the hepatologist today and my test results were posted on the portal. Everything looks pretty good except direct bilirubin went from .2 to .3. I know this...

Saw the hepatologist today and my test results were posted on the portal. Everyt...

Ellyne

•6 years ago

17 Replies

Should I get liver biopsy? Advise and guidance needed.

Hi! Sorry if post is too long. I am new to the group and grateful to have found it. I received a call from my GI doc yesterday saying I might have PBC and...

Hi! Sorry if post is too long. I am new to the group and grateful to have found...

Blueandyellow

•6 years ago

10 Replies

Fibroscan results

I had my first Fibroscan on September 2017, it was 5,8 F0-F1. September 2018, the result is 6,2. Eventhough the result is still in F0-F1 there is an increase...

I had my first Fibroscan on September 2017, it was 5,8 F0-F1. September 2018, th...

ritarobainapbc

•6 years ago

19 Replies

Has anyone had pale colored stools as a side effect of ursodoil?

I take ursodiol 500ml 2 x daily. If I stop taking medication a couple days stools turn to normal color.

I take ursodiol 500ml 2 x daily. If I stop taking medication a couple days stoo...

1811tc

•6 years ago

11 Replies

AMA Positive

I went to the hospital for something which was not an issue but due to the blood tests i had my liver enzymes were high. I tested positive for AMA I went for...

I went to the hospital for something which was not an issue but due to the blood...

KN1981

•6 years ago

8 Replies

Posts - PBC Foundation | HealthUnlocked

PBC Foundation

All posts for September 2018

Plattlets and pbc

ANA

AMA M2

Hello elevated LFt and ama test postive

Constant hot flushes causing itch to worsen

Osteoporosis treatment

Liver Biopsy

Help shingles pain

How is everyone’s bilirubin mine is going up with each blood work from in June it was 1.7 July 1.8 Aug 1.9 and now Sept 2.2

PBC and gastric sleeve bypass

Vibration

Just been diagnosed with PBC

Has this ever happened to anyone

Alk Phas Rising

MRE with evidence of fibrosis ptogression

Pbc joint pain

Addition

Memory

Can autoimmune diseases cause a false positive for PBC?

Revised

As much help and advice on winning an ESA Appeal as I can give.

Medical problems and ESA tribunal

Question for Ocaliva patients - 5 mg or 10?

Mid diagnosis perhaps?

Fibroscan

Test results

Should I get liver biopsy? Advise and guidance needed.

Fibroscan results

Has anyone had pale colored stools as a side effect of ursodoil?

AMA Positive

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