Posts - PBC Foundation | HealthUnlocked

PBC Foundation

9,484 members•8,374 posts

All posts for July 2017

Pbc and cholesterol bumps

Hello I new to this blog. I was diagnosed with PCB and overlapping AMA. Beside the Pcb I also have large cholesterol bumps all over my body for two years. Does...

Hello I new to this blog. I was diagnosed with PCB and overlapping AMA. Beside t...

Prettyeyes79

•7 years ago

18 Replies

Cambridge team developing bile duct transplant op

http://www.sanger.ac.uk/news/view/artificial-bile-ducts-successfully-grown-lab-and-transplanted-mice-could-help-treat-liver

http://www.sanger.ac.uk/news/view/artificial-bile-ducts-successfully-grown-lab-a...

drewh

•7 years ago

9 Replies

Confused with PBC and doctors

Hello, I was diagnoses with PBC in 2015 and put on URSO. The URSO seemed to make me very bloated, 3 months pregnant bloated. My GI has taken me off of URSO and...

Hello, I was diagnoses with PBC in 2015 and put on URSO. The URSO seemed to make...

mek4wlk

•7 years ago

6 Replies

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Ama2

Can ama2 be elevated in syphillis

Blackjack1327

•7 years ago

1 Reply

Urso

I am newly diagnosed and my doctor told me the medication that they use to prescribe has been taken off the market here in the U.S. Does anyone know if the...

I am newly diagnosed and my doctor told me the medication that they use to presc...

Mary2017

•7 years ago

14 Replies

Newly diagnosed PBC. A new free online guide for personalised conversation and questions for specialists

This is I believe for newly diagnosed patients in time for their next appointment with a specialist, it's basic but handy if you were not told much at...

This is I believe for newly diagnosed patients in time for their next appointmen...

Jo_Br

•7 years ago

8 Replies

Oh sh*t! 47, positive pregnancy test and pbc...now what???

I am 47 and my cycles have been a little irregular...not much. I had a heavy period last month and now I'm late this month. I took a test...its faint, but...

I am 47 and my cycles have been a little irregular...not much. I had a heavy per...

marty102

•7 years ago

12 Replies

Whole body getting hot

Does any pbcer has an issue with getting their bodies hot like a fever but no fever?

Does any pbcer has an issue with getting their bodies hot like a fever but no fe...

Sachin1234

•7 years ago

104 Replies

Itching (I know it is redundant)

Hi all, I hate to write in about itching as it is such a common problem, one would think I had all the answers by now. A recent antibiotic treatment of Cipro...

Hi all, I hate to write in about itching as it is such a common problem, one wou...

Q8Cooper

•7 years ago

33 Replies

Trouble losing weight

Hello Everyone, This is my first post although I joined a while ago. I live in a small town, and it is so nice and encouraging to know I'm not alone in this,...

Hello Everyone, This is my first post although I joined a while ago. I live in a...

Aspengirl

•7 years ago

4 Replies

Pbc/Aih

To all. Havent posted for a while. Hope everyone is well. For the last few weeks ive suffered with breathing problems. Ive always had a little asthma but not...

To all. Havent posted for a while. Hope everyone is well. For the last few weeks...

janine541

•7 years ago

5 Replies

Liver hemangioma

Hi had anybody heard of liver hemangioma after i had ultrasound i found out that i might have liver hemangioma i like to ask is this life threatening im...

Hi had anybody heard of liver hemangioma after i had ultrasound i found out that...

Hkgirl

•7 years ago

24 Replies

Call to arms...

https://www.surveymonkey.co.uk/r/KJZRNM6 Asking you to take part in this survey (if you haven't already done so). This is the last survey this year, but we...

https://www.surveymonkey.co.uk/r/KJZRNM6 Asking you to take part in this survey...

PBCRobert

Partner•7 years ago

19 Replies

PBC alternative treatments, such as Livatone

Just wondering if any of you are taking Livatone or similar non-precription medicine for your PBC...and how it is working. I have just been diagnosed and dr...

Just wondering if any of you are taking Livatone or similar non-precription medi...

melbafromelba

•7 years ago

25 Replies

TIPS Procedure

Back on May 19th, I had what I thought would be a simple outpatient surgery for an umbilical hernia. Well, 2 hospital stays later, I am now faced with having a...

Back on May 19th, I had what I thought would be a simple outpatient surgery for ...

lovetocreate

•7 years ago

2 Replies

Low platelets

Low platelets? Anyone what does it mean and what happens now?

flora

•7 years ago

8 Replies

More blood tests and sudden death of friend...

Saw my liver specialist today. Mentioned my memory and concentration are really bad. She did a test to see how much ammonia is in my blood, having too much can...

Saw my liver specialist today. Mentioned my memory and concentration are really ...

krazy-girl

•7 years ago

13 Replies

Shut down

Hi all. I have been trying to work but call out more times than not. I just got word that I was terminated. Still waiting on approval for social security...

Hi all. I have been trying to work but call out more times than not. I just got...

Y-now

•7 years ago

4 Replies

Update: Labs

Numbers are moving like they should. Im pleased with this. The Ocaliva & Urso seem to be working well together. Praying they continue to move the numbers....

Numbers are moving like they should. Im pleased with this. The Ocaliva & Urso se...

Shulsey

•7 years ago

17 Replies

Seignalet’s diet

Hi, does anyone have experience of following Prof Jean Seignalet’s diet protocol for autoimmune disease? There are claims of recovery on his French website,...

Hi, does anyone have experience of following Prof Jean Seignalet’s diet protocol...

drewh

•7 years ago

11 Replies

Biopsy

Getting ready to leave for liver biopsy. Not having transjugular due to allergies to iodine.. I am a little nervous 😕

Getting ready to leave for liver biopsy. Not having transjugular due to allergie...

Alishav2003

•7 years ago

5 Replies

Here I am, once again

Praying for better enzyme This prednisone is destroying me

Hidden

•7 years ago

6 Replies

Green stools

Should I be worried ?

Melwoods

•7 years ago

10 Replies

Labs

Sitting & waiting to have the blood sucked out of me yet again. Have to be checked every two weeks for six weeks then once a month. As long as my numbers are...

Sitting & waiting to have the blood sucked out of me yet again. Have to be check...

Shulsey

•7 years ago

13 Replies

Geheugen verlies

Ik schrijf het even in het Nederlands. Hoop dat het vertaalt wordt. ik maak mij zorgen om mijn geheugen verlies vooral het kort termijn geheugen. Herkend...

Ik schrijf het even in het Nederlands. Hoop dat het vertaalt wordt. ik maak mij ...

marianne349

•7 years ago

10 Replies

Anxiety

Hello, I've discovered I had PBC in March of 2015. I was fine until October of that year when I was celebrating my moms birthday at a port by the ocean and I...

Hello, I've discovered I had PBC in March of 2015. I was fine until October of ...

dolphinlover2020

•7 years ago

15 Replies

Feeling exhausted

Hi all. Just looking for some advice. Waiting on an appt with rheumatologist in Oct due to high Antimitochondrial antibodies and raised M2. I get so tired some...

Hi all. Just looking for some advice. Waiting on an appt with rheumatologist in ...

Flower-powr

•7 years ago

12 Replies

Stress!!

At the moment I am going through quite a lot of stress. I wake up.in the night feeling as tho I cannot swallow. Is this panic attacks or PBC. Does anybody else...

At the moment I am going through quite a lot of stress. I wake up.in the night f...

Sandie1

•7 years ago

4 Replies

Not such a great weekend

I feel like Im in the movie Invasion of the Body Snatchers!!! It's like someone else is speaking for me these past couple of days. Everything going on inside...

I feel like Im in the movie Invasion of the Body Snatchers!!! It's like someone ...

Shulsey

•7 years ago

28 Replies

Swallowing problems

I have been on urso ten months Had one episode of problem swallowing for 2 weeks Within past week is returning and swallowing painful Has anyone experienced...

I have been on urso ten months Had one episode of problem swallowing for 2 weeks...

Ljonesfnp

•7 years ago

2 Replies

Posts - PBC Foundation | HealthUnlocked

PBC Foundation

All posts for July 2017

Pbc and cholesterol bumps

Cambridge team developing bile duct transplant op

Confused with PBC and doctors

Ama2

Urso

Newly diagnosed PBC. A new free online guide for personalised conversation and questions for specialists

Oh sh*t! 47, positive pregnancy test and pbc...now what???

Whole body getting hot

Itching (I know it is redundant)

Trouble losing weight

Pbc/Aih

Liver hemangioma

Call to arms...

PBC alternative treatments, such as Livatone

TIPS Procedure

Low platelets

More blood tests and sudden death of friend...

Shut down

Update: Labs

Seignalet’s diet

Biopsy

Here I am, once again

Green stools

Labs

Geheugen verlies

Anxiety

Feeling exhausted

Stress!!

Not such a great weekend

Swallowing problems

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