Posts - PBC Foundation | HealthUnlocked

PBC Foundation

9,484 members•8,374 posts

All posts for January 2020

Vitamin D part 2

Thanks all for your advice. I have made an appointment with GP to discuss this. Will keep you updated and look forward to any more posts

Thanks all for your advice. I have made an appointment with GP to discuss this. ...

Biddyb

•5 years ago

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Vitamin D

Just had a call from GP my last bloods showed Vitamin D low any tips on which ones to buy. I’m slightly concerned as a couple of years ago my calcium levels...

Just had a call from GP my last bloods showed Vitamin D low any tips on which on...

Biddyb

•5 years ago

39 Replies

Elevated ESR

Hello everyone, just wondering if there's somebody here like me has elevated ESR Level for years but doctors can't still figure out what's causing it. Hope...

Hello everyone, just wondering if there's somebody here like me has elevated ESR...

Mariandy

•5 years ago

1 Reply

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Novofem HRT tablets

Is anyone taking novofem HRT tablets, my consultant said there fine to take but having just read the leaflet I’m a little unsure x

Is anyone taking novofem HRT tablets, my consultant said there fine to take but ...

Mnoye

•5 years ago

1 Reply

Transplant

How long does it take to get a liver transplant and does insurance pay for any of it I’m in Florida

How long does it take to get a liver transplant and does insurance pay for any o...

Cathyjo

•5 years ago

4 Replies

Time to get Ocaliva

Does anyone have experience of how long it takes to get Ocaliva? I saw consultant on 12th December, he said I will be going on Ocaliva and will have a phone...

Does anyone have experience of how long it takes to get Ocaliva? I saw consultan...

Cilgerran

•5 years ago

30 Replies

Newly diagnosed

I was just diagnosed with PBC. I don’t really know anything about the disease except what I’ve read on the internet and what my doctor told me. My doctor...

I was just diagnosed with PBC. I don’t really know anything about the disease ex...

NewToPBC

•5 years ago

4 Replies

Fatigue & aching bones

Urgh... another bout

Alishav2003

•5 years ago

6 Replies

#’s lookin good

Happy #’s are going lower !! 🙂

1155Cat

•5 years ago

4 Replies

Hi guys

Hi guys hope ur all well 😊

BabyK

•5 years ago

3 Replies

What shows Urso is working?

I was diagnosed and started Urso five weeks ago and I'm having a blood test next week to see if it's working. I feel a bit more in control when I'm prepared...

I was diagnosed and started Urso five weeks ago and I'm having a blood test next...

hells456

•5 years ago

13 Replies

Beta blockers

Has anyone been on beta blockers , gained weight but managed to lose it again ?

Perkywerky76

•5 years ago

2 Replies

Nail Polish

So my screen shot didn’t post. Just research Sally Hanson Vegan nail polish. 😊

gwillistexas

•5 years ago

3 Replies

Vegan - Plant Based Nail Polish

Hey guys! I found this today in Walmart. Excited to see something so free of chemicals. Wanted to share😊

Hey guys! I found this today in Walmart. Excited to see something so free of ch...

gwillistexas

•5 years ago

3 Replies

stage 4 PBC

Hello again, I was just wondering if anyone had a guess on how long you can live with pbc once you are in stage 4 without a transplant? I know it is probably...

Hello again, I was just wondering if anyone had a guess on how long you can live...

tealmust

•5 years ago

15 Replies

Hi all

I was diagnosed with PBC, 2 years ago I was wondering if anyone has suffered with painful and swollen ankles. I am a very active person and have been...

I was diagnosed with PBC, 2 years ago I was wondering if anyone has suffered wit...

SewingFan

•5 years ago

6 Replies

Thinning hair

I probably had PBC since about 2009, but, was formally diagnosed in 2016. I started noticing some hair loss around 2014-2015, when I had longer hair. Now, I...

I probably had PBC since about 2009, but, was formally diagnosed in 2016. I star...

iagra

•5 years ago

22 Replies

Sunshine

I have heard from numerous people that you should not be in the sun if you have PBC ... does anyone know if this is true ?? And if it is true ... is it because...

I have heard from numerous people that you should not be in the sun if you have ...

1155Cat

•5 years ago

11 Replies

Fibroscan shows slight fatty liver

I was diagnosed early stage 1 in 2000 and have responded well to Urso, LFT's came back to almost normal in the first year and have stayed there since. I went...

I was diagnosed early stage 1 in 2000 and have responded well to Urso, LFT's cam...

kizzywizzy99

•5 years ago

12 Replies

Alkaline phosphate number ??

Hi just wondering if someone Could help, I was diagnosed 3 years ago but only just about to start URSO. Just received letter from consultant which stated my...

Hi just wondering if someone Could help, I was diagnosed 3 years ago but only ju...

Mnoye

•5 years ago

19 Replies

Other medicine

I have a question I am sure on someone here can answer. One of URSO side effects is hair loss ... can we take Biotin when taking URSO ?? Also ... can we take...

I have a question I am sure on someone here can answer. One of URSO side effects...

1155Cat

•5 years ago

5 Replies

Frustration

Dear ones, excuse my vent, but I’m trusting that you all can “get it”. I had gotten through some crazy stresses in December and was really really “not...

Dear ones, excuse my vent, but I’m trusting that you all can “get it”. I had go...

EileenUSA

•5 years ago

25 Replies

Diagnosed and confused

Hi, I'm 41 and in the south west. I saw my GP for a cholesterol check and two blood tests, an ultrasound and eight days later I had an unofficial diagnosis of...

Hi, I'm 41 and in the south west. I saw my GP for a cholesterol check and two bl...

hells456

•5 years ago

23 Replies

Fibrates/ fenofibrates and bezafibrates yay or nay?

(The link below redirected me but just hit the new link that's there. Should take you to the article about Fibrates. Interesting read. The "2nd link" is a 2013...

(The link below redirected me but just hit the new link that's there. Should tak...

Ktltel

•5 years ago

15 Replies

Seladelpar

Hi all Just to let you all know that the seladelpar trial has been stopped completely, just had a call from my trial nurse who has been brilliant wright the...

Hi all Just to let you all know that the seladelpar trial has been stopped compl...

kimphoebe

•5 years ago

33 Replies

Travel Insurance and PBC

I've been looking annual travel insurance for a couple (aged 65 and 72) and the questions about PBC seem very extreme for my situation. I have been very...

I've been looking annual travel insurance for a couple (aged 65 and 72) and the ...

swinstan

•5 years ago

17 Replies

Posts - PBC Foundation | HealthUnlocked

PBC Foundation

All posts for January 2020

Vitamin D part 2

Vitamin D

Elevated ESR

Novofem HRT tablets

Transplant

Time to get Ocaliva

Newly diagnosed

Fatigue & aching bones

#’s lookin good

Hi guys

What shows Urso is working?

Beta blockers

Nail Polish

Vegan - Plant Based Nail Polish

stage 4 PBC

Hi all

Thinning hair

Sunshine

Fibroscan shows slight fatty liver

Alkaline phosphate number ??

Other medicine

Frustration

Diagnosed and confused

Fibrates/ fenofibrates and bezafibrates yay or nay?

Seladelpar

Travel Insurance and PBC

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