Posts - PBC Foundation | HealthUnlocked

PBC Foundation

9,389 members • 7,995 posts

All posts for October 2023

Can't sleep

I can't sleep due to pain in my stomach and bowels and muscle pain just wandering what people do for sleep

I can't sleep due to pain in my stomach and bowels and muscle pain just wanderin...

Oldbloke1

•6 months ago

8 Replies

Pain management for liver disease

Just wandering what people do for pain management for their liver disease

Oldbloke1

•6 months ago

2 Replies

Rising GGT

Does anyone know why your GGT can go up from 69 to 91 over the space of a couple of days and I haven't drank any alcohol

Does anyone know why your GGT can go up from 69 to 91 over the space of a couple...

Oldbloke1

•6 months ago

4 Replies

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Thrombocytopenia

Hi all, I have just been diagnosed with autoimmune thrombocytopenia, which is very low platelet count and can cause bruising and excessive bleeding....

Hi all, I have just been diagnosed with autoimmune thrombocytopenia, which is ...

nunbrook

•6 months ago

3 Replies

urso non responder

hi , does anyone know the criteria of being a non responder? Does the number have to be elevated by a certain amount for a period of time. What would the...

hi , does anyone know the criteria of being a non responder? Does the number hav...

Samanthaann

•6 months ago

7 Replies

Help confused with diagnosis of pbc

Hi just been told I have pbc refusing to belive and have been kind of trying to ignore it but can't stop worrying meant to start urso 2 weeks ago still not...

Hi just been told I have pbc refusing to belive and have been kind of trying to ...

Misn

•6 months ago

24 Replies

overlap additional AI conditions?

I am still trying to figure out if I have another overlapping condition, had a problem with a terrible rheumatologist on first appointment with him but did get...

I am still trying to figure out if I have another overlapping condition, had a p...

CeeCee101

•6 months ago

22 Replies

all phos

hi, my alk phos started last year at 152. Went on urso and 6 months later it dropped to 118. Today whic is 6 month later alk went back up to 146. Have not...

hi, my alk phos started last year at 152. Went on urso and 6 months later it dro...

Samanthaann

•6 months ago

13 Replies

No fibroscan

Hi It’s been 2 months since I was diagnosed, still no fibroscan, the gastro consultant is supposed to be ringing me with the blood results and fibroscan...

Hi It’s been 2 months since I was diagnosed, still no fibroscan, the gastro co...

Cumbria7

•6 months ago

9 Replies

Canker Sores/Mouth ulcer

Hi everyone, PBC and Mouth Ulcer when runned down? I had a sinus infection for 2 months and had 20 days of antibiotics for it. (This was in July and August-...

Hi everyone, PBC and Mouth Ulcer when runned down? I had a sinus infection for...

Tramezzini

•7 months ago

18 Replies

US Self-care sessions

Hi Everyone, The dates and full details for our self-care sessions in the US are now confirmed, please visit the events page of our website for more...

Hi Everyone, The dates and full details for our self-care sessions in the US ar...

PBCCheryll

Administrator•7 months ago

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Super Confused

In January 2011 I was told I was AMA+ and I had PBC. In December 2011 I had a lap band removed and while they we in there I requested a liver biopsy. The...

In January 2011 I was told I was AMA+ and I had PBC. In December 2011 I had a l...

kosy2

•7 months ago

8 Replies

Blood shot eyes

My eyes are dry and feel like they've got grit in them and are blood shot anyone with the same problem

My eyes are dry and feel like they've got grit in them and are blood shot anyone...

Barneymiller

•7 months ago

11 Replies

Primary biliary cholangitis

I'm experiencing all the symptoms of pbc I've had CT scans, ultrasounds, liver function tests colonoscopy, gastroscopy gastritis diagnosed but I've never been...

I'm experiencing all the symptoms of pbc I've had CT scans, ultrasounds, liver f...

Barneymiller

•7 months ago

23 Replies

Joint pain

Hi everyone I've been suffering with really bad joint pain I fill stiff and she all over is this normall with pbc if so wot pain killers can I take kind...

Hi everyone I've been suffering with really bad joint pain I fill stiff and she ...

Purdy2017

•7 months ago

9 Replies

back pain with urso

my insurance would no longer pay for capsules so I had to change to tablets. A few weeks after. Taking I’m having lower back pain. Has anyone else experienced...

my insurance would no longer pay for capsules so I had to change to tablets. A ...

Samanthaann

•7 months ago

4 Replies

pain relief for rotator cuff injury

I am seeking honest answers regarding treatment for severe pain. My PBC is “evolving “. My liver biopsy was inconclusive but I was started on urso due to...

I am seeking honest answers regarding treatment for severe pain. My PBC is “ev...

Donti

•7 months ago

19 Replies

Dry mouth

Hi just wandering what pbc sufferer's use for dry mouth

Barneymiller

•7 months ago

11 Replies

Posts - PBC Foundation | HealthUnlocked

PBC Foundation

All posts for October 2023

Can't sleep

Pain management for liver disease

Rising GGT

Thrombocytopenia

urso non responder

Help confused with diagnosis of pbc

overlap additional AI conditions?

all phos

No fibroscan

Canker Sores/Mouth ulcer

US Self-care sessions

Super Confused

Blood shot eyes

Primary biliary cholangitis

Joint pain

back pain with urso

pain relief for rotator cuff injury

Dry mouth

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