Posts - PBC Foundation | HealthUnlocked

PBC Foundation

9,389 members • 7,993 posts

All posts for January 2014

I have the strangest question. Stage 2 PBC Aug 2012 Does anyone have problems with their nails. Polish will not stay on.

Ohio82

•10 years ago

19 Replies

Anti inflammatories

Hi has anybody had any issues about taking ibuprofen etc, it s just I have bad toothache at the moment and the doctor s say I m not allowed to take them as I...

Hi has anybody had any issues about taking ibuprofen etc, it s just I have bad t...

Loopyblue

•10 years ago

33 Replies

Hi everyone , does anyone else have low folic levels and is it caused by pbc ?

kittysue

•10 years ago

1 Reply

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Does anyone know if its safe for us to take raspberry ketone as it gets rid of bad toxins many thanks .

Fernleard

•10 years ago

8 Replies

I have a lot of symphony's relating to PBC, itching, joint pain, abdominal pain, vomiting, dry eyes and mouth, fatty and hardening liver.

I asked my rheumatologist for the ANA test (I also have psoriatic arthritis). The test results are border line, any one know what this means? My sister has...

I asked my rheumatologist for the ANA test (I also have psoriatic arthritis). Th...

Moggymad44

•10 years ago

2 Replies

After 5 year of trying to lower the liver's enzymes I got it now with my vegan diet liver function is normal now. Is my liver still fat?

Is the Sirrocis in my liver still there? Cholesterol still is high 234 try glycerin 166 and I do not want to take any Lipitor or any other chemical due to my...

Is the Sirrocis in my liver still there? Cholesterol still is high 234 try glyc...

Dollyhenriquez17

•10 years ago

15 Replies

PBC....Now another shock

Just been back to the specialist and been told I also have Antitrypsin Deficiency, which is a hereditary default that's causing my PBC... Has anyone else been...

Just been back to the specialist and been told I also have Antitrypsin Deficienc...

Palula

•10 years ago

14 Replies

I was diagnosed 5 yrs ago with PBC. I get low abdomen pain that is painful. It seems I get this after eating?

Does anyone relate to this. I can't seem to eliminate by bile right. Please let me know if this is bloat.

Does anyone relate to this. I can't seem to eliminate by bile right. Please let ...

Lexi_Img

•10 years ago

7 Replies

Do any of you PBCers have a child with an autoimmune disease?

terri2109

•10 years ago

12 Replies

Newly diagnosed. How does PBC impact existing health problems?

Hi I was diagnosed with PBC four months ago after having a series of confused / dizzy spells leading to scans, blood tests. So I did all the practical stuff,...

Hi I was diagnosed with PBC four months ago after having a series of confused /...

CheshireEm

•10 years ago

5 Replies

Hi everyone wanted to share something with u all that might help.

Iv been suffering from the gruesome itch for a few months now x when I first got it I read on here how other people were cutting certain foods from their diet...

Iv been suffering from the gruesome itch for a few months now x when I first got...

Dmb1

•10 years ago

15 Replies

The PBCers Organization website has been updated! Take a look . . .

I'm excited, as this colorful and informative website will help better serve those of us with PBC and others who want to learn more! http://pbcers.org/

I'm excited, as this colorful and informative website will help better serve tho...

JennerLayne

•10 years ago

1 Reply

What questions should I be asking my consultant?

So I've been diagnosed with PBC, have started Urso and am going back to see my consultant on Tuesday where he will have the results of blood tests (pre-urso),...

So I've been diagnosed with PBC, have started Urso and am going back to see my c...

Suziebeau

•10 years ago

11 Replies

What is ALP?

I just got my blood test results out to see what my levels are but can't see ALP listed as one of the tests! Is it sometimes called by different initials/name?

I just got my blood test results out to see what my levels are but can't see ALP...

Wingding

•10 years ago

4 Replies

ALP

Any one still got high ALP although taking Urso other blood tests ok just wondered if it can be still high due to something else causing it and not PBC my last...

Any one still got high ALP although taking Urso other blood tests ok just wonder...

cavi

•10 years ago

17 Replies

Not diagnosed, fits like a glove?

Just before I was 40, as my life was just about to begin, back in 2007 I took poorly with gall stones, and I had my gall bladder removed in 2008. the gall...

Just before I was 40, as my life was just about to begin, back in 2007 I took po...

kondor

•10 years ago

2 Replies

Hi have been here a few times but was wondering if any of you live in Cumbria , , would be great to speak to others about pbc x

kittysue

•10 years ago

5 Replies

How should I follow up raised AMA levels?

I recently had a blood test that showed raised AMA levels and my consultant gastroenterologist feels that this shows I have PBC. However, as my liver function...

I recently had a blood test that showed raised AMA levels and my consultant gast...

Purple_Lady

•10 years ago

33 Replies

I am new to this website, so a little about me.

I have had pbc approx 3 years now, only picked up from new GP, as my usual GP retired, the new one wondered why my liver levels were high and done tests, i...

I have had pbc approx 3 years now, only picked up from new GP, as my usual GP re...

Dibbs64

•10 years ago

5 Replies

Hi, the past two days I'm getting a feeling in my upper right thigh, which feels like a hot flush sensation, no pain..any ideas?

I was diagnosed with pbc 3 years ago

Dibbs64

•10 years ago

3 Replies

Hi all - I need to find some kind of work from home - anyone got any ideas?

I need something I can do on bad days when I am badly fatigued - is there anything I can do on the phone or computer ? I just want 2-3 hours a day really -...

I need something I can do on bad days when I am badly fatigued - is there anythi...

Perkywerky76

•10 years ago

13 Replies

Diagnosed last feb and started on urso in June.i couldn't tolerate it properly had to go back to one capsule then after weeks tried two

Could never get a third one in.colette at pbc foundation said some urso was better than none.in December had a week off it and feltAMAZING.told my specialist...

Could never get a third one in.colette at pbc foundation said some urso was bett...

cazz22

•10 years ago

9 Replies

Does suddenly having itchy hands and feet mean my pbc is getting worse?

I had pbc diagnosed 8 years ago after my last pregnancy. I fortunately have not had any of the dreaded symptoms associated with pbc but have just recently...

I had pbc diagnosed 8 years ago after my last pregnancy. I fortunately have not ...

Gilz1702

•10 years ago

4 Replies

White Platelets

Has any one had a blood test and some large white Platelets have been found in their White Platelet Count my come back low and this is what is said so wondered...

Has any one had a blood test and some large white Platelets have been found in t...

cavi

•10 years ago

6 Replies

Can anyone recommend travel insurance , as the two I've tried are so expensive (because of the pbc)

Kieraferret

•10 years ago

6 Replies

I have just been on the NHS choices website to look at the PBC information.

This is a quote from the section on treatment. 'There is no cure for PBC, but there are medicines that help relieve the symptoms and slow the progression of...

This is a quote from the section on treatment. 'There is no cure for PBC, but th...

SC49

•10 years ago

22 Replies

Quality of life

I have been diagnosed with pbc a month now (no symptoms, lfts still normal at this point - diagnosed by AMA and biopsy, stage 0/1) I am 42 now and am finding...

I have been diagnosed with pbc a month now (no symptoms, lfts still normal at th...

Kitsilano

•10 years ago

36 Replies

PBCers Organization / Upcoming Conference in July 2014

Hi everyone! Just wanted to share a Facebook post about the upcoming PBC Conference in Las Vegas, NV this summer. Plans are underway and I am so excited to...

Hi everyone! Just wanted to share a Facebook post about the upcoming PBC Confer...

JennerLayne

•10 years ago

4 Replies

Sun therapy

I recently had my first holiday abroad, I went to gran canaria for Christmas with my partner, and I must say I felt hardly any fatigue, muscle pain was a lot...

I recently had my first holiday abroad, I went to gran canaria for Christmas wit...

Sonia40

•10 years ago

7 Replies

Omg weight gain

Hi all and happy new year, I started urso 2 months ago and I must say although not changed clothing size i have gained a stone in weight, more so around my...

Hi all and happy new year, I started urso 2 months ago and I must say although n...

Sonia40

•10 years ago

6 Replies

Posts - PBC Foundation | HealthUnlocked

PBC Foundation

All posts for January 2014

I have the strangest question. Stage 2 PBC Aug 2012 Does anyone have problems with their nails. Polish will not stay on.

Anti inflammatories

Hi everyone , does anyone else have low folic levels and is it caused by pbc ?

Does anyone know if its safe for us to take raspberry ketone as it gets rid of bad toxins many thanks .

I have a lot of symphony's relating to PBC, itching, joint pain, abdominal pain, vomiting, dry eyes and mouth, fatty and hardening liver.

After 5 year of trying to lower the liver's enzymes I got it now with my vegan diet liver function is normal now. Is my liver still fat?

PBC....Now another shock

I was diagnosed 5 yrs ago with PBC. I get low abdomen pain that is painful. It seems I get this after eating?

Do any of you PBCers have a child with an autoimmune disease?

Newly diagnosed. How does PBC impact existing health problems?

Hi everyone wanted to share something with u all that might help.

The PBCers Organization website has been updated! Take a look . . .

What questions should I be asking my consultant?

What is ALP?

ALP

Not diagnosed, fits like a glove?

Hi have been here a few times but was wondering if any of you live in Cumbria , , would be great to speak to others about pbc x

How should I follow up raised AMA levels?

I am new to this website, so a little about me.

Hi, the past two days I'm getting a feeling in my upper right thigh, which feels like a hot flush sensation, no pain..any ideas?

Hi all - I need to find some kind of work from home - anyone got any ideas?

Diagnosed last feb and started on urso in June.i couldn't tolerate it properly had to go back to one capsule then after weeks tried two

Does suddenly having itchy hands and feet mean my pbc is getting worse?

White Platelets

Can anyone recommend travel insurance , as the two I've tried are so expensive (because of the pbc)

I have just been on the NHS choices website to look at the PBC information.

Quality of life

PBCers Organization / Upcoming Conference in July 2014

Sun therapy

Omg weight gain

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