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PBC Foundation

9,389 members • 7,993 posts

All posts for May 2013

ok HELP!!

sorry you wonderful people its me again.i started urso last saturday250 mg ursofolk 3 times daily.first dose fine second dose start to bloat to uncomfortable...

sorry you wonderful people its me again.i started urso last saturday250 mg ursof...

cazz22

•11 years ago

10 Replies

Newly diagnosed with PBC

Good morning everyone :) I have been following your blog posts already for the past few weeks and found your advice on this site very useful and...

Good morning everyone :) I have been following your blog posts already for t...

littledragon23

•11 years ago

8 Replies

Do many people with PBC have pain in the area of the liver?

I have had an ache/pain in my upper right abdomen for months. I was having it checked out by my GP - but after normal ultrasound she said not to worry unless...

I have had an ache/pain in my upper right abdomen for months. I was having it ch...

Puddles

•11 years ago

16 Replies

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How do I put weight on!!!

Morning all. Quick question. I am on URSO 900mg a day and loosing weight . I can eat loads during the day (good or naughty food) and still loose. Can anybody...

Morning all. Quick question. I am on URSO 900mg a day and loosing weight . I ca...

gracesofia

•11 years ago

15 Replies

PBC & THYROID ISSUES

I was diagnosed with under active thyroid and then later PBC. I have noticed that a number of people have both these auto immune issues. My question is if T4...

I was diagnosed with under active thyroid and then later PBC. I have noticed th...

Silvers

•11 years ago

14 Replies

Having trouble getting travel insurance for wife whose got pbc plus on the verge of been enemic

bonnie129

•11 years ago

9 Replies

What next!!!!

Been to the. Doctors this morning and been diagnosed with an ovarian cyst. . . . Great!!! Its a wonder I felt so poorly last weekend thought it was pbc...

Been to the. Doctors this morning and been diagnosed with an ovarian cyst. . . ...

gracesofia

•11 years ago

2 Replies

feel down today

bad day emotionally.everything seems to be going pear shaped in my life at mo.usually have good health to pull back on but not any more.is there any/ much...

bad day emotionally.everything seems to be going pear shaped in my life at mo.us...

cazz22

•11 years ago

4 Replies

Increase in Energy?

I am just wondering if anyone has noticed an increase in energy when taking milk thistle? i.e: not needing so much sleep and getting tired so fast?

I am just wondering if anyone has noticed an increase in energy when taking milk...

SJG22

•11 years ago

8 Replies

Hi Everyone!

Nothing much to update from me. Just had a second blood test and waiting for results. My Doctor is leaving the practise so hope I don't have a battle to move...

Nothing much to update from me. Just had a second blood test and waiting for res...

astondb9

•11 years ago

4 Replies

Bile Drainage!!!!!!!!!!!

Hi All Well where to start, had the bile drainage procedure on the 14th May, (tube down my nose into my bile ducts to drain off bile hopefully to relieve my...

Hi All Well where to start, had the bile drainage procedure on the 14th May, ...

Bookworm7

•11 years ago

17 Replies

about what to do after winninng my appeal after 11 months ov waiting

i wonder if you can help i won my appeal on 15 5 2013 with the support conponant i went to get paid wich my money should have gone up it didnt i phoned dwp and...

i wonder if you can help i won my appeal on 15 5 2013 with the support conponant...

dasser

•11 years ago

1 Reply

struggling

hi guys not been on in a while. I have been feeling not so great last while. My Lfts have been really high lately. My muscles in my legs and face are...

hi guys not been on in a while. I have been feeling not so great last while. M...

posh

•11 years ago

4 Replies

What do you say or feel when your family tell you they think you are crying wolf regarding AIH/PBC illness and how it affects you?

Alley27

•11 years ago

13 Replies

Gall stone?

Back from the tgastro consult today and he is fairly certain I have gall stones. Waiting on scan to confirm. He said he would get it done asap. Anyway, are...

Back from the tgastro consult today and he is fairly certain I have gall stones....

Lisacj

•11 years ago

5 Replies

Why wouldn't it be necessary to see an Immunologist (as well) once diagnosed with PBC?

I've asked my Gastro to refer me to an Immunologist since this is an autoimmune disease and was told it wasn't necessary according to blood work? I would...

I've asked my Gastro to refer me to an Immunologist since this is an autoimmune ...

Hidden

•11 years ago

7 Replies

starting urso

Hi everyone just back from hospital bloods slightly worse than last time so starting urso.not good with tablets it says to take my 250mg tablets x3 daily.can...

Hi everyone just back from hospital bloods slightly worse than last time so star...

cazz22

•11 years ago

7 Replies

can anyone give me advice on what to expect at an esa tribunal

it has been nearly a year since I had the esa medical and scored 0 points!! I have fibromyalgia, osteoarthritis, under active thyroid, 1st stage lupas an...

it has been nearly a year since I had the esa medical and scored 0 points!! I ha...

justxme73

•11 years ago

3 Replies

Hi I'm Sue

I was diagnosed 2 day's ago. Can anyone tell me if severe sweating (flushes) is part of PBC. These are not your normal hot flushes. I have joint pain and my...

I was diagnosed 2 day's ago. Can anyone tell me if severe sweating (flushes) is ...

highwood

•11 years ago

11 Replies

Back after a transplant

Hi everybody, I am so sorry for being quiet on the forum for a while, I have been rather busy. As some of you will know from my previous posts and blog, I was...

Hi everybody, I am so sorry for being quiet on the forum for a while, I have be...

busylady

•11 years ago

18 Replies

Diagnosed by liver Biopsy only a mild case at present the Doctor said

But no Info on what I can expect, what I should do or eat to keep healthy. I had bad shivers , hot sweats fatigue , achieve all over for about 6 days and my...

But no Info on what I can expect, what I should do or eat to keep healthy. I ha...

Hotshot

•11 years ago

8 Replies

Had enough now

I was diagnosed with PBC 7yrs ago, although I had had the symptoms for 8 yrs prior to diagnosis (I was told I had irritable bowel syndrome)! I have battled the...

I was diagnosed with PBC 7yrs ago, although I had had the symptoms for 8 yrs pri...

Jill68

•11 years ago

13 Replies

On the transplant list and scared, has anyone else been there too? X

Shellbear

•11 years ago

10 Replies

Need help please

Hello, I have recently been diagnosed with PBC and Fibromyalgia and suffer with severe joint pain. I don't go to see a Gastro-enterologist until mid June...

Hello, I have recently been diagnosed with PBC and Fibromyalgia and suffer wi...

Lily-May

•11 years ago

6 Replies

Moving home

Can anyone advise please? We are moving home to a different area and we will need to register with a different health centre. I really dont want to go...

Can anyone advise please? We are moving home to a different area and we will nee...

June9961

•11 years ago

4 Replies

I'm having a liver biopsy next week. Please tell me what to expect!

Please share your experience with having a biopsy. I'm recently diagnosed (per bloodwork) and the doctor has ordered a biopsy to stage my PBC. Although I've...

Please share your experience with having a biopsy. I'm recently diagnosed (per b...

JennerLayne

•11 years ago

7 Replies

Does anyone know/understand if the Dr Mosley's 5:2 Fast Diet might be safe or unsafe for a PBC sufferer? Thanks

brendabell

•11 years ago

4 Replies

Does anyone else have constant diarrhea with pbc?

roseter

•11 years ago

9 Replies

A little info

I was reading this in the morning paper today,The findings by a team from USA were presented at a medical conference,a study shows that a cup of coffee a day...

I was reading this in the morning paper today,The findings by a team from USA we...

cavi

•11 years ago

4 Replies

Does anyone know if absorption of Urso is reduced if taking bile acid sequestering agents, such as cholestyramine (for itching)?

Hidden

•11 years ago

9 Replies

Posts - PBC Foundation | HealthUnlocked

PBC Foundation

All posts for May 2013

ok HELP!!

Newly diagnosed with PBC

Do many people with PBC have pain in the area of the liver?

How do I put weight on!!!

PBC & THYROID ISSUES

Having trouble getting travel insurance for wife whose got pbc plus on the verge of been enemic

What next!!!!

feel down today

Increase in Energy?

Hi Everyone!

Bile Drainage!!!!!!!!!!!

about what to do after winninng my appeal after 11 months ov waiting

struggling

What do you say or feel when your family tell you they think you are crying wolf regarding AIH/PBC illness and how it affects you?

Gall stone?

Why wouldn't it be necessary to see an Immunologist (as well) once diagnosed with PBC?

starting urso

can anyone give me advice on what to expect at an esa tribunal

Hi I'm Sue

Back after a transplant

Diagnosed by liver Biopsy only a mild case at present the Doctor said

Had enough now

On the transplant list and scared, has anyone else been there too? X

Need help please

Moving home

I'm having a liver biopsy next week. Please tell me what to expect!

Does anyone know/understand if the Dr Mosley's 5:2 Fast Diet might be safe or unsafe for a PBC sufferer? Thanks

Does anyone else have constant diarrhea with pbc?

A little info

Does anyone know if absorption of Urso is reduced if taking bile acid sequestering agents, such as cholestyramine (for itching)?

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