Posts - PBC Foundation | HealthUnlocked

PBC Foundation

9,386 members • 7,990 posts

All posts for August 2020

Also...

AST, ALT & Bilirubin are perfectly normal.

gwillistexas

•4 years ago

3 Replies

Feeling Discouraged

Well, I have always been one of the first to brag about Ocaliva. Not so sure now. Alk Phos has gone up a little my last two labs. It is 161. Fibroscan one year...

Well, I have always been one of the first to brag about Ocaliva. Not so sure now...

gwillistexas

•4 years ago

45 Replies

Thank you

I just wanted to share how I feel blessed being among such good and caring community. Every single time when I feel down about my disease and problems, come...

I just wanted to share how I feel blessed being among such good and caring commu...

Sona_akb

•4 years ago

1 Reply

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Has anyone got Pemphigoid

Hi Has anyone on here been diagnosed with pemphigoid ( it’s a rare autoimmune condition of the skin ) there’s not loads of information out there I’ve also got...

Hi Has anyone on here been diagnosed with pemphigoid ( it’s a rare autoimmune co...

Rozm2004

•4 years ago

3 Replies

Friday Fizz

You may or may not know every Friday we get together on facebook for some live music: you can sing or dance, nobody can see you!! Tonight we are doing a...

You may or may not know every Friday we get together on facebook for some live m...

PBCRobert

Partner•4 years ago

2 Replies

PBC Day 2020

Just to let you know the campaign is starting. https://www.pbcfoundation.org.uk/news/latest-news/news-article-6 Also, I have no idea if you have been...

Just to let you know the campaign is starting. https://www.pbcfoundation.org....

PBCRobert

Partner•4 years ago

5 Replies

Should I bring up Naltrexone again?

So I don't know how many months ago it was but when my mothers Doctors at the UC was treating my mother they recommended Naltrexone, of course when she took...

So I don't know how many months ago it was but when my mothers Doctors at the UC...

Rimeru

•4 years ago

2 Replies

Is there an alternative to Ursosan

I have been taking Ursosan for years now for PBC and am noticing, hair loss. Have heard of another drug caller,(I think) Ocaliva which doesn't have this side...

I have been taking Ursosan for years now for PBC and am noticing, hair loss. Hav...

Ash322

•4 years ago

8 Replies

Na-R Alpha Lipoic Acid

Can anyone recommend a brand of Na- R Alpha Lipoic Acid that you trust? I've been researching for awhile and I have been having trouble deciding which brand...

Can anyone recommend a brand of Na- R Alpha Lipoic Acid that you trust? I've b...

SnowbaII

•4 years ago

5 Replies

Obesetas and PBC

I. 'm courius if there are more people who has get obesetas in the time they have PBC. I mean can obesetas has a connection whit PBC.

I. 'm courius if there are more people who has get obesetas in the time they hav...

Zwimming

•4 years ago

6 Replies

What a surprise

When my consultant rang me unexpectedly regarding a barrage of blood tests I had done a few weeks ago. Apparently I am now celiac...yet another wonderful...

When my consultant rang me unexpectedly regarding a barrage of blood tests I had...

Alley27

•4 years ago

7 Replies

Numbers

I have had PBC for about 15 years now, I was given Urso when first diagnosed, it made me violently ill, I have never been on any meds since, I get 6 monthly...

I have had PBC for about 15 years now, I was given Urso when first diagnosed, it...

Jaycee

•4 years ago

13 Replies

Happy

Hope everyone is good x

BabyK

•4 years ago

2 Replies

Pbc? Or not?

Here’s my latest story: I was diagnosed with PBC in 2017 and put on urso immediately. I had the standard 2 out of 3 positives to make a diagnosis. Elevated alk...

Here’s my latest story: I was diagnosed with PBC in 2017 and put on urso immedia...

Pamela4475

•4 years ago

29 Replies

Fluoxcillin

I have started taking fluoxcillin today and have developed intense collar bone and shoulder pain. Is this normal??

I have started taking fluoxcillin today and have developed intense collar bone a...

Mialuciax14

•4 years ago

1 Reply

Fed up

Anyone totally fed up with this diagnosis?

BabyK

•4 years ago

4 Replies

Fed up

Hey guys hope ur all well...well considering this crazy world we're in now. Just wanted to ask if anybody else has receding gums cause of this damn illness?

Hey guys hope ur all well...well considering this crazy world we're in now. Just...

BabyK

•4 years ago

5 Replies

Premenapausal

Is it safe to go through premenapausal whith pbc as I'm sure a consultant said that thay would have to try and stop it

Is it safe to go through premenapausal whith pbc as I'm sure a consultant said t...

Purdy2017

•4 years ago

3 Replies

Anyone ever taken Atarax? Side effects? Results?

Got off the phone with my mothers doctor, and he said he was going to prescribe her Atarax and explained it was use to treat adhd but studies showed it may...

Got off the phone with my mothers doctor, and he said he was going to prescribe ...

Rimeru

•4 years ago

6 Replies

Going back to school

I’m in America and have decided to go back to school at 56 years old. I want to know about nursing or the medical field. Do you think that it’s a possibility...

I’m in America and have decided to go back to school at 56 years old. I want to...

Jennyhadenough

•4 years ago

5 Replies

A Robert Rant!!

Hi, all. I hope you are well. We have been focussed on patient support during Covid. Hopefully you have seen our webinars, our 4pm (UK time) chit chats on...

Hi, all. I hope you are well. We have been focussed on patient support durin...

PBCRobert

Partner•4 years ago

13 Replies

Would using CBD oil affect my PBC in any way

I am a returning blogger and would love to reconnect with all of you. I have had pbc for a few years now and manage my condition with URSO. I want to stop...

I am a returning blogger and would love to reconnect with all of you. I have ha...

Twill

•4 years ago

8 Replies

What should I ask for when testing for pbc?

Given that my mother has it, and I am one of three sons she has, I was wondering what kind of blood test should I ask for to my primary care doctor to test if...

Given that my mother has it, and I am one of three sons she has, I was wondering...

Rimeru

•4 years ago

16 Replies

A son trying to help my mother live longer.

I'm new here to this forum, lived with my mother all of my life, I'm 25 and seeing her being diagnosed with semi-late stage cirrhosis of the liver due to pbc...

I'm new here to this forum, lived with my mother all of my life, I'm 25 and seei...

Rimeru

•4 years ago

19 Replies

Hello everyone

I have a question and hope that someone has had similar and can maybe give me some answers! I have had a dodgy tummy for a couple of days and in doing so my...

I have a question and hope that someone has had similar and can maybe give me so...

Ditz_

•4 years ago

2 Replies

Posts - PBC Foundation | HealthUnlocked

PBC Foundation

All posts for August 2020

Also...

Feeling Discouraged

Thank you

Has anyone got Pemphigoid

Friday Fizz

PBC Day 2020

Should I bring up Naltrexone again?

Is there an alternative to Ursosan

Na-R Alpha Lipoic Acid

Obesetas and PBC

What a surprise

Numbers

Happy

Pbc? Or not?

Fluoxcillin

Fed up

Fed up

Premenapausal

Anyone ever taken Atarax? Side effects? Results?

Going back to school

A Robert Rant!!

Would using CBD oil affect my PBC in any way

What should I ask for when testing for pbc?

A son trying to help my mother live longer.

Hello everyone

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